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1-year, good update
H&N Gang, Sorry about the delay, but my ENT is on vacation. He just happened to pop-in to the office today and heard I was interested in the results from my CT scan on Monday (maybe, just a little). Anyway I just got a phone call from him. In a nutshell, he said the enlarged area of the neck was nothing (did not elaborate…
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Last day of radiation
Tomorrow is my husband’s last day of radiation and he is done with all chemo and red. The last chemo hit him very hard lots of nausea and more mucus and lost nearly 7 pound in last 4 day. He can’t swallow anything since Monday. He will have pet scan after 3 months and hopefully he will be recover by then. We will be…
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The Good, The Bad and The Ugly
First the good. I had a test yesterday that shows in real time what happens when you swallow. If anything leaks into the lungs it is instantly apparent. 99.9% of what I swallowed wound up in my stomach. That's a real improvement over the last time and they cleared me to have soups (pureed) and semi-solids like yogurt,…
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VERY BAD MUCUS PROBLUM
CAN ANYONE HELP ME IT’S BEEN 3 YEARY SENCE TREATMENT AND THE MUCUS IS WORSE IT WAKE’S ME UP IN THE MORNING CHOKING ME THEN I HAVE TO GET UP BLOWING MY NOSE AND MY NOSE RUNNING. MY CANCER DOCTOR TOLD ME TO TRY MUCINEX DM. BUT IT HAS NOT HELPED. ONE LADY SAID WAL-ACT FROM WALLMART DRIDED HER UP DOES SOMEONE KNOW OF ANYTHING…
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alil support, no judging please
Good morning all, I'll start my story 4 yrs ago when my husband was diagnosed with stage 4 SCC, tonsal and 1 lymphnode. He went through 4 rounds of Cisplatin, and 39 radiations tx's. No surgery. He did great, pushed through every tx, still working. Missed 3 days total. 5 months after his last tx, a chest CT showed a spot…
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Checking In
Hi all: Thought I'd better check in! Went to Chatt. last week to be with my best friend (her husband Steve is the one undergoing lung cancer tx) a few days. Steve (her husband) is doing pretty good with lung ca tx. No bad side effects from weekly chemo but really really fatigued from the radiation. He has one more chem…
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Checking In...Sorry for the absence
I'm so sorry but bad news is hard to give Here is an overdue update in october i had a biopsy on a lung nodule and had to spend 4 days recoveing from a pnuomthroax. Then i went in for surgey at the end of october and spent 10 days in the hospital after they removed the lower right lobe of my lung that had 5 nodules . they…
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Our New Journey finishes one course and starts another
2 days Post Treatment!!!! Hi All! The radiation and chemo treatments have come to an end HOORAY!!!!! The next course on our jouney has me on the road to recovery and healing from the side effects of the rads and chemo. The burns on my neck have started to heal and I no longer have to use the silverdean (I know that isn't…
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Our New Journey finishes one course and starts another
2 days Post Treatment!!!! Hi All! The radiation and chemo treatments have come to an end HOORAY!!!!! The next course on our jouney has me on the road to recovery and healing from the side effects of the rads and chemo. The burns on my neck have started to heal and I no longer have to use the silverdean (I know that isn't…
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Thanks for responding to my previous post
Thanks to everyone who responded to my previous post about whether to wait and see versus going ahead with surgery and radiation. Overwhelmingly, the response from people was that the treatment is worth it and the risks of not getting treatment are too high to take the chance. I am getting a final recommendation from my…
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How To Reply To A Topic
Sorry for being so dense, but I can not figure out how to reply to a thread. I clicked on my first post and did not see anything on the bottom of the page like 'add reply' . Thanks for any help. Dennis
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Blurred Vision
Hello everyone, my name is Dennis This site was highly recommended to me by one of the nurses who is treating me. I was diagnosed with NPC on 2/22/13. TC3,N2,M0. My treatment at this time is 35 Radiation treatments and 12 Chemo treatments. So far I have undergone 13 Rad and 3 Chemo treatments. I am having trouble with my…
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NED
Had my 3 month post treatment scan yesterday and got clean relults...sort of in shock...for those of you staring the journey remember there is a light at the end of the tunnel.....I am still struggling with some radiation related issues and major weight loss, but trying to get back to work 1/2 days...The beast can be…
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Speech Therapy UPDATE!
Hello my friends, I am so excited to tell you all that at me swallow study today, I DID NOT ASPIRIATE anything! I closed my wind pupe, my muscles all worked and moved up. I still have a very slow swallow, so still keeping peg and no food or liquids yet, more therapy and exercising needed to strengthen my swallow. But there…
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Technical Problems, No Response from CSN
I've had a "friend request" staring at me when I log on to the site since last week. When I try to click it an error message tells me it can't be linked, and if it persistst to contact for help. Sent email on Saturday, no response. Sent email on Tuesday, no response. What up with this?
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Diagnosis: Tx, N2c, M0 squamous cell carcinoma metastatic to cervical lymph nodes on both sides wit
Thanks, everyone for being so helpful in response to my previous posts. I got my official diagnosis today: Tx, N2c, M0 squamous cell carcinoma metastatic to cervical lymph nodes on both sides, with unknown primary As I have posted before, the Mayo Clinic surgeon is recommending robotic surgery to remove the cancerous lymph…
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Swallowing exercises
EVERYONE GOING THROUGH OR ABOUT TO BEGIN TX: I know its beat in your head, but I'm gonna beat it some more: DO YOUR EXERCISES OR YOU WILL SUFFER CONSEQUENCES If these had been available to me 12 yrs ago more than 85% of my problems wouldn't exist, and 1 may not exist. My head moves and turns like the worst stiff neck…
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Late effects to lungs - check!
Got a preliminary written report on my CT Thorax from my oncologist (still not the lung doc) which stated two conclusions of note: (1) Multiple nonspecific pulmonary nodules measuring up to 4 mm in the right upper lobe, and (2) Biapial ground glass opacities, likely representing postradiation change. First response -…
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Tube Out... Problems One Year Later???
It will be one year next month since my husband had his feeding tube removed. He continues to have stomach problems and projectile vomiting on a daily basis. Is this normal? Is this a permanent side effect? Please share your knowledge/experience with this.
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Has anyone had Surgery for nasal adhesions after treatment for NPC????
My husband had Nasopharyngeal Cancer, diagnosed in 09/10 with mets to the lymph nodes and liver. He has been NED, since finishing treatment- Praise God!! He has had a consistent problem with nasal and sinus infections, which the ENT Doc contributes to scaring from the radiation treatment. The Dr is recommending surgery due…
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NED Is Still My Friend
Doc called me at 8:20 this morning to let me know everything is still clear. I have two modules in the lower part of my left lung but they have remained unchanged since Day 1 and show no indication of malignancy so I'm not going to worry about that. So far, so good!
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Kent Cass ~ Gone Blog
Not sure if you realize it or not... But apparently our long time brother has posted a Gone Message on his blog... While I can understand, I really hate to see Kent go. He is one of the best, one that makes this site what it is...one that always reminds us to BELIEVE. Has been interesting, and did me a lotta good thinking…
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Robotic surgery recommended
Today, I saw a Mayo head and neck cancer surgeon. Despite several MRIs, PET scans, and scope examinations of my oral cavities, they still have not found the primary site of the cancer. The only place it has shown up is in the lymph nodes, both sides. Their recommendation is robotic surgery where they would biopsy each…
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Excess salivation and mucous remedy?
I just finished chemo and 33 rads for cancer of the mandible with fibula free flap. Towards the end i was blessed with excessive salivation and mucous which would inevitably lead to me throwing up. Many people have experienced this, so i will just let you know what works for me so far. Wal-Act from Walmart dried me up…
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Dad going to rehab
Dad should be going to in-patient rehab tomorrow. He is doing amazing. He already has about 50 percent use of his arm and leg again. So far no problems with his feeding tube. Thanks for all the prayers. Kathy
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Stupid question?
Hey Guys, Those of you that have feeding tube or had, and had to do it yourself... I get delivery of my Ensure once a month, I get food, syringes, and 2 bottles of Saline solution along with qauze bandges for the peg. Question is, WHAT THE HECK IS SALINE FOR? I have been flushing with 1 60cc of tap water, food, and than 3…
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recommened radiologists
Can anyone recommend a radiologist(for a 2nd opinion) in the Orange County or Riverside County CA areas?
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Donna B ~ To Radiate or Not To radiate...That's the Question...
Reposted for a first time poster,,, donna b Posts: 1 Joined: Mar 2013 Mar 18, 2013 - 1:07 pm This is my first time on this New This is my first time on this sight. My case is a bit different from those I've read, although similar enough for someone out there to help, I'm sure. In january, I had surgery for stage 1 tongue…
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More bad news
I am not sure if any of you remember a young couple who posted here a few years ago. The Guy’s wife was having a recurring of NCP cancer for a second time and they were looking some advice. Well they did the second treatment of Chemo & Rad only to have the NPC come back 4 months later for a 3rd time. She did a lot of the…
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Glossectomy and radical neck dissection
Looking for someone who has dealt with almost a complete glossectomy and radical neck dissection. Has been 3 months since surgery and don't see much progress. Getting extremely discouraged. Wondering if anyone has been through this.