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Head and Neck Cancer

Archives for March 2013

1-year, not what I hoped (yet)
H&N Gang, I come to you partially deflated. Not to put the cart before the horse, but my 1-year (routine) exam was not (yet) the stellar exam I had hoped for. It is possibly not serious “at all” but my ENT found a small enlarged spot while palpitating my neck, I could not feel anything. After his in office ultra sound he…
Happy Saint Patricks Day!
I said to my husband this morning,"you know, it seems so much colder than it was when we use to go to the Saint Paddy's parade in Dublin ( Ohio ). He " I don't remember ever going to a Saint Paddy's Day parade, we use to go to the 4th of July parade all the time.............hummmm, maybe that's why it seemed so much warmer…
Life After Cancer ~ Fun Times
Again, I know and realize, been there, done that, cancer and treatment just plain sucks, totally not fun. But soon many of you will be doing the things you love, and it'll all be worth the pain and suffering you have, are and will suffer...; My wife doesn't care for fishing much, but she has a friend that likes it so I…
Attitude is everything.....
how often do we hear that phrase, from medical professionals, counsellors, caregivers, friends and even within our Head and Neck family? I've always tried to be a 'glass half full' person and recently I got to thinking how I've been able to adopt and keep such an outlook. While searching my archived files the other day, I…
Hearing Aids
I don’t know how many of you use hearing aids, but I been using them now for almost 9 years. This is my 3rd set I got a few weeks ago and by far the best one’s I ever had. I can hear so well that I can play my Guitar again because I can now hear the music. The ones I am now using is the ReSound Verso, if you want to hear…
tirosint
Has anyone been put on tirosint instead of synthroid or the others?
Chef Daddy Mike
Just to let you know Chef Daddy Mike Son is not doing so well. His leukemia came back with a vengeance and they are not expecting him to live much longer. Please keep Mike and his daughter & Son in prayer Hondo
Less is a Good Thing!
I met with my MO today. She's pretty cool and really pretty too (so is my Nurse Practitioner Manager) ;) We spoke about the treatment and I'll be getting a hearing test next week. Hearing loss, if it happens, occurs after several treatments so we'll have a baseline to compare with as the weeks go by. I have all the…
Newly diagnosed SCC in lymph nodes but primary source unknown- Should I get tonsillectomy biopsy?
Hi, everyone. I was just diagnosed with metastatic squamous cell carcinoma -- head and neck cancer. I am 59 yr old male in good health...not a smoker or heavy drinker. My lymph nodes on both sides are affected, but they could not identify a primary cancer site through MRI, PET scan or ENT exam. The ENT is recommending more…
Ready To Get Off The Merry-Go-Round Now
What a day! During MDA Internest appt. this morning, G-tube wound started pouring blood. Son noticed blood coming through hubby's shirt. Doc said "I'll get the nurse". No nurse. Then no doc. Hallway was empty. Finally snagged another doc who found the nurse. She cleaned him up and rebandaged. Continued on to Rad #9.…
SSI..DENIED
UGH, I have done my best to remain positive and upbeat. I tried to naively believe the system would work fairly, well IT DOESN'T! SSI has informed me I am Not Disabled and although I might not be able to perform as I did in the past I can perform to economic status of now. So apparently I have severe hearing lose requiring…
Great Scan Results
The preliminary results of my CT Scan were great. The tumors (for the most part) have shrunk by 50%. I am also virtually free of cancer-induced pain. So I'm continuing with the chemo, with only a slight modification. I will be going to a 3-week cycle, in the place of a 4-week cycle. 3 Weeks: 2 weeks with Taxol and Erbitux…
ChefDaddy 3/18 Update ~
Dawn (Sweetblood), just got word from ChefDaddy concerning his son..., not so good news and prayers needed his way... I know that ChefDaddy was on here long before a lot of the current crowd... He had all kinds of hurdles with dealing with cancer himself, custody of his son and daughter from a physcho, stalking ex-wife..,…
Saying hello, and unexpected worries
Hey, everyone! I haven't been posting quite as much the past few weeks but I've been here every day. :-) I just wanted to check in to say hi and see how everyone is doing! I'm doing better, for the most part. I still have a little trouble swallowing, but my saliva is a bit better and I think my taste is too. I've started…
Okay, Icky Subject, But Looking For Suggestions
For quite a while, hubby has had nasty tasting drainage from his tumor. It's the primary reason he can't eat. He spits constantly. Surgical Onc suggested Mucinex DM, but that appears to be for coughing things up from congested lungs, so he won't try it. Did anyone have this going on and what did you use to alleviate it?…
Appointments in the AM
Finally! My two week wait is over. Tomorrow at 8am Dan sees the ENT Surgeon who manages his care, hopefully he will remove the wax in Dan's ear so he can hear! And 10 minutes later, is my appt for the thyroid removal/biopsy planning. I never ever thought the two weeks was going to pass. We have waited so many 'waiting…
Problems after two years NED
I feel bad, haven't been on here in sometime, but I have been a creeper checking out peoples posts. Now here I am humbly crawling back for advice. I recently celebrated two years NED. I had high grade MEC in my submandibular salivary gland. It was removed along with the floor of my left mouth with reconstruction. All nodes…
Anyone else with unknown cheek mass anterior of parotid gland?
About 2 years ago I had a marble sized lump in my left cheek--dx was blocked parotid gland. It resolved on its own. In January of this year I felt another lump thing in the same general area. The mass has a thread from the top of the cheek( off the gum) coming down into the mass. The mass is moe like V with a tail and then…
Finally a desicion from Social Security
Hey everyone, I have been waiting patiently since mid January for Social Security to make a decision, I expected that they would request that I be seen by their doctors(but no request came). I could log in everyday and check status and it always said "No decision, processing your medical information", well yesterday it…
Dad had a stroke and an UTI.
Hi guys, I wanted to give you an update about dad. Last Tuesday he was sitting at the table eating and then told me he felt very weak and needed some help getting up. I helped him up and off to bed he went. Woke up at 5:30 with dry heaves and diareha issues. Mom and I had a virus so assumed that is what it was. One top of…
"T" Day
Well this is it kids! The bags are packed and in about hour we'll be on our way. Simulation today, 1st RT tomorrow and Friday then home for the weekend. Chemo starts Monday. I just want to say thank you for all the encouragement, positive vibes and prayers. The knowledge I've gained will help me immensely as I begin this…
Unfit care giver anxiety
Hey there ! I'm hoping you folks can help me through this one. Or chew my butt if I'm off base on how I'm feeling tonight. I received a call today from my sister-in-law. Had a very good visit with her until the end of the call. I was told that because of my health issues (meaning my cancer and lung issues) I was going to…
Our New Journey
30 Rads Down 3 to go!!!!!!! Taking a day off tomorrw to have PEG placed. Nutrition is way down, throat and mouth very sore, can't seem to drink anything thicker than water. Going to get fluids everyday now. Not to sure about chemo. There is a possibility of continuing on for a few weeks post rad treatment. I should know…
First night alone
Tonight is my first night home alone. David is in Cardinal Hill after a total hip replacement. I am glad we had the surgery because we found out that the hip was indeed fractured. They repaired the fracture, removed the tumor and completed a total hip replacement. He is a little stressed being there in the evenings without…
Oscar Sierra II
Well, I saw my ENT after speaking with my RO, and it seems that the two of them have a rather vocal disagreement going on. The RO seems to think that the ENT missed the node that was hot on the October scan. The ENT maintains that he did get the right node, after all, pathology came back with evidence of active disease.…
Arts and Crafts
Take a peek at what my daughter's friend made from my radiation mask. Way to GO Marie!
Checking in....
Hello everyone. I haven't posted for awhile but still think of everyone on this site. I think I just needed a break from thinking about cancer. Selfish I know, but it seems since my husband was diagnosed with cancer my emotions have been all over the place. But, I am glad to be back on the site and hope all of you new and…
Introduction - Husband has Metastatic Squamous Cell Carcinoma & Stage 3 Severe Bullbous Emphysema
Hello CSN, I am a brand new member here and feel I should take some time to introduce myself. I am a person that enjoys forums and chats and because of this I realize it will take me some time to understand the culture here at CSN. But, I do want to say I am sensitive to such issues and will endeavor to be a good member. I…
Hi From the SW Desert of Arizona
Hi Everyone, While I don't post often anymore, I do try to read the post(s) everyday. All has been well, I'm now almost 15 months out of treatment, all scans to date have been good. My Ent, Oncologist , and Radiologist have cut back my every 3 month vists now to 6 months, they just don't all fall back to back to back, but…
Scanned Today-Results Tomorrow-UPDATED
Well, had my scan today and my Onc went all out. CT of the neck, chest, abdomen and pelvis. Now I have 24 hours to make it though. Man I wish I lived in medical marijuana land. :) Joe

Head and Neck Cancer

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