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Head and Neck Cancer

Archives for February 2013

On To Plan B,C,D............?
I'm lost in this alphabet. Went for first chemp appt. today, but committe has decided that lung cancer is growing way too fast and more likely to metastasize to non treatable areas than H&N. So, the new plan is 10 lung rads instead of 4, one week of rest, and then on to chemo. He seems to be getting weaker and weaker, so…
Let the healing begin!
I have finished treatment! I know I have a few weeks, but ready to let the healing begin. This has been a long, hard road. I am exhausted, but finally beginning to eat a bit. I need to get my diabetes under control and learn to live with one eye. Bev aka KTeacher, soon to be retired
Back to head and neck treatment
David still has his hip replacement scheduled for March 7, bu after seeing the hematologist today we found out they are suspending treatment of his plasma cell leukemia so that they can go back and finish his head and neck cancer treatments. He has 19 radiation treatments and they will discuss whether to complete the…
white stuff on his end teeth
4th week of radiation and 2nd chemo therapy My husband is just done with his 2nd chemo therapy, and almost done with 4th week of radiation. He is doing fairly fine accept heavy mouth shore. He is eating everything by tube and drinking water by mouth. He was compiling white stuff on his end teeth and I am not sure what it…
Mucoepidermoid carcinoma of the salivary glands (I write from Italy)
Hello to you all. I am an Italian woman, 49 years old and I found this forum with the hope of talking to someone who had my condition. I hope it is understandable what I write because I use online translator. In Italy there are few people who have had this type of cancer ... maybe because rare or because Italy is a small…
Scanxiety; it sneaks up on you
I have a chest CT with contrast on Monday, the 4th. So, of course, I woke up this morning unable to swallow, with throat edema, tight neck muscles, a suspicious new 'lump' under my ear, jerky tongue, dry eyes, and various other worrisome aches and pains... Darn that scanxiety. Had to wait over three months for the…
Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
abdominal pain after radiation?
Hello all! My husband finished treatment for stage 3 BOT in September. So far, clear CT's and scopes! Yeah! One new-ish problem is lower left abdominal pain. It is not related to BM's, and is intermittent. He has it daily, but sometimes it lasts 20 min and sometimes hours. A dull to sharp, deep, achy type of pain. It has…
Hubby Home From Hospital
Surgery went as planned. Thirteen teeth extracted. Mouth full of stitches. Port and G-tube placed. Can barely walk or get up and down, never unassisted. I think he was released too soon. They never determined if he could walk at the hospital. Just managed to get him in wheelcahair and out the door. I had to rent a car for…
Meet Jack - WARNING: GRAPHIC IMAGES
I asked my surgeon to take photos so I could see what I was fighting against. He sent them this morning. I thought you might find it interesting to see what many of you have gone through and what it looks like. Surgery started with TORS with the DaVinci Robot to excise the back of my tongue for biopsies and remove the…
The Wedding...Photos
Thought I'd share a few photos from my trip to Northern San Francisco for my son's wedding. The event was north of San Francisco in a beautiful coastal area. The venue was at an old launch for hire boat house, very rustic, totally beautifully decorated....(I know as I got there two days early to help, LOL)... Launch for…
Back in to the U
Hey everyone ! Finally getting in for that recheck on the lungs. Goodness, weather....flu....and more snow. But today is sunny and beautiful in the mid 30's. T-shirt weather almost ! I am thinking of requesting to return to the clinic closer to home in St. Cloud. I'm finding I'm getting lost in the mix of things with the…
Prayers needed
Okay...take two.....my last one disappearEd. I am being referred to a urologis. To rule out bladder cancer. I have had a week....2 ER visits and gyn appt. Hopefully it will be today I get to see urologist. And I thought norovirus was rough. Try sleeping with the feeling that you have to pee knowing that when you go, the…
Please help- Need advice
Hello everyone, I am sorry to bother you again but I really need some help and advice. I am sure you have read my post since the holidays about my dad and his decline. He started back in treatment for his third reoccurance two weeks ago, but things continue to be up and down with him. Since New Years he has had a major…
Anxiety - Seperation
Hi, After being cured from a tumor on my tonsil. I have a great amount of anxiety about going on a short trip. I have been told that this "normal" and that I am not alone. That my anxiey is the fear from separation from the people and places that helped cured me. I would appreciate any feedback. Much Thanks
Fibula Free Flap Surgery
Hello all. I just found out that the HBO and/or debridement treatments were not successful. I now have a fracture to my left lower jaw that needs dealing with. I was diagnoised almost two years ago with tongue/tonsil cancer. I did two weeks of chemo and 37 radation treatments. Thought I was getting pretty much back to…
Follow up to joint pain post & an interesting article
Hello all. As you all know I posted a thread recently about my worsening joint pain in my elbows and shoulder (in particular my right elbow, really quite painful). I mentioned it to my regular oncologist around the same time and he said to take vitamin B to see if that helped and to take Aleve for the pain. He also said on…
thanks
Hi all, Just wanted to thank you all for responding to my last, accidental double post. Your words all bought comfort to me and turns out my parnoia was simply a cold. I had forgotten ow when I was sick I had to remind myself I will get common things and bumps and lumps but it all won't be the beast. After this last…
"T" Day
The results are in and the schedule is set. I went yesterday to have the mask made. I had a CAT scan and a MRI. The dry run will be Wednesday March 13th. Treatment starts March 14th. I meet with my Medical Oncologist Friday the 15th. Chemo starts Monday March 18th. This way I'll be at the hospital all week to help manage…
Thymic carcinoma
my father is said to have inoperable thymic carcinoma. He did radiation and chemo beforesurgery to try an shrink it. Once they went in for surgery they could not remove it because it wathat teaches to his heart and lungs. Whilewaiting to start over he had a few dizzyspells, busted his head open and all the other fun…
About Cyberknife
Hi everyone, I have a question on cyberknife. If it can remove tumours, why do H&N cancer(such as NPC) patients still need radiotherapy?
Long Day Tomorrow
Hello All, We met with the Surgical Onc today and surgery is planned for tomorrow. He will have fourteen teeth removed, chemo port put in, and G-tube. I'm guessing about a four hour surgery. He will then be kept in hospital, at least overnight. I'll be meeting with a nutritionist regarding the G-tube in the hospital. The…
HERO
I want to thank everyone for all your advice and encouragement to my husband, Papapaul....when he is encouraged, I am encouraged. you are all so brave.... groovygrammy
Has anyone had this happen
My husband has been thru laryngeal cancer, radiation, chemo/surgery no spread in lymph nodes. Then last year cancer of the cervical of the esophagus was found with no spread. Another radiation and chemo. PET/CT and scope were clear in September and October. January's PET/CT scan showed a small spot in his right lung that…
Tube-less in Oklahoma
just back from a morning of doc appointments and got an unexpected bonus -- PEG tube is gone! Hubby has not used the tube since 2/10but gastro doc wanted to wait another week or two to take it out. Had appointment with ENT this morning and got a good report. Throat/tonsil area looks good. Weight up about 6 pounds (would…
A new one for me - PARANOIA
Has anyone suffered medicated induced paranois. My husband has been on Vicodin for 2 years and a low dose of prednisone for over 6 months. Along with levvothroxine, heart medicine and neuropathy meds. He just went back to work and he seems to be getting paranoid. Never seen him like this before. I think it has to do with…
Teeth extractions after radiation
My wife completed radiation and chemo 2 yrs ago for throat cancer. The cancer is gone but now her teeth are breaking off at the gum line. She has 2 front teeth on the bottom broke off and another tooth is about ready to break off. Her radiation Dr. said if the has her teeth extracted she should have Hyperbaric Oxygen…
Caregiver down for the count
Friday night my hubby ended up taking me to the ER. I had norovirus. I got IV fluids and Zofran and reglan. I have never been so miserable. I have slowly been recovering ....up to saltines and applesauce today. What I am most upset about is the possibility of giving this to,my hubby. He is 3-4 weeks out of treatment and…
Post TORS surgery side effects?? Please help
Hello, my mother has just been diagnosed with SCC of the posterior pharyngeal wall. Her TORS surgery is scheduled for March 8 and would like to know what to expect after surgery. This is her second occurence, the first one was SCC of the epiglottis in 2004. She did rad/chemo so she still deals with post treatment side…
Chemo Arm Infusion
Apparently the chemo needle slipped and Taxol went into the arm tissue rather than the vein. I did not notice; I sleep thru must infusion sessions. (I'll have caregiver check on my arm next time.) Well, whole arm was swollen and at Level-8 Pain. Pain meds and ice packs brought the pain level down to a 5. So I spent the…

Head and Neck Cancer

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