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Merry Christmas to all...
Whatever your holiday, whatever your celebration, I wish you all a very pleasant and fulfilled Day. i am grateful you have all touched my life and my heart. hugs, Kari
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Merry Christmas to all!
I wanted to wish all of my CSN friends a Merry Christmas. A year ago I had no clue that I would have found all of you this year. I had just noticed a swollen gland in my neck(or so I thought). The Dr. said oh it will go down, don't worry about it. A year later here I am, done with treatment and have had a clear pet scan.…
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NEW NEWS MADE MY DECISION EVEN EASIER
As I have posted recently regarding going on SS Disability and getting the stress out of my life, My decision to actually try to make this happen has just gotten easier. For any of you with kids in college a long way from home, or kids struggling with drug and alcohol abuse, I have one of each. My youngest son is home on…
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Have a safe and forward looking holiday.
Be grateful for your friends and family (both on and off line) and that you have a reasonable chance to beat this beast. Even though it seems that my reaction to the RADS have manifested themselfs much earlier than others have reported (Only four treatmemts and the back of my throat already feels like hamburger and…
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salivary gland cancer
Is there anyone who was recently diagnosed or had a recurrence of salivary gland cancer?
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Marry Christmas
Just wishing you all the best as many of you continue in your fight with Cancer into the New Year. Life is a struggle and fight but it can be won, never give up and keep your focus on being a survivor. I just finished HBO treatment Friday; it did not do what the doctors had hoped it would do but there was a lot of other…
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Peace, Comfort & Healing to My Online Family
I just wanted to wish each of you all (cancer patients, survivors and caregivers) a very Merry Christmas. I know we are all from different geographic areas as well as many walks of faith, but you all, everyone of you will never know how strongly I feel towards each of you. So no matter where you are physcially at or your…
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Good News
A few good things have happened in my life. * I have a new grand daughter, Mia Rose. Unfortunately, she lives in the Midwest and I'm stuck in the Pacific Northwest. It is unlikely I will see her except in photos. * I met with my youngest son and his girlfriend. They came up to Seattle from Oregon. * I successfully used…
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Post-treatment stuff I wish they'd told me
I have found the ongoing "lists" on this website (that everyone contributes to, sort of like a wikipedia work in progress) very useful. I am 7 months out from radiation (33) and erbitux (8 weeks) treatment. These are the main things I'd wish they had told me (but they didn't). This list is probably only relevant to those…
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Water coming out the nose while swallowing???
Just curious, now that we are getting the swallowing down pat here after tx, he is noticing whatever he swallows sometimes comes out of his nose. Is this normal? How do you prevent this from happening. Also he says it seems to create more mucus/phlem afterwards.
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Afraid of Possibility of SCC
Hi everyone - I was a long time lurker on these boards because about 10 years ago I lost my father at age 27 to a rare large tumor in his leg that eventually metastacized and caused an Aneurysm. So my story is this, about a year or two ago I saw white patches on the sides of my tongue and immediately was concerned as I'm a…
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Followup scans....
The other day Staceye was talking about follow-up scans....since she and I have the same Oncologist...and go to the same ENT's office, I suggested that we ask about them at the ENT's since she was getting no where with the Onc. Well....I had an appointment with the ENT, and mentioned that tho the Onc had scheduled my 3…
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Upgrade Insight
As I know it... I'm not totally sure of the upgrade reasoning other than an old platform, hardware, etc.... There were some discussions on what would be nice as add ons to the existing forum. Mostly all functionality enhancements I had thought. But just to clear some mystery a little (again, as I know it)... Greta is the…
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Life path change
As everyone knows David's prognosis is not good and measured in months. I have talked with my work about extending my FMLA, but was unsuccessful. They want me to take a leave of absence and pay $1650 a month for Cobra. David and I have talked and we have decided that it is time for me to cut my ties with my school…
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Error 324
again, this morning. Error 324 (net::ERR_EMPTY_RESPONSE): The server closed the connection without sending any data. and now, slooooow like molasses on christmas day. apparently the 'upgrade' has not addressed the site's most glaring and persistent problems at all. bah humbug. pardon for not sounding positive about this…
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tender and swollen neck 7 weeks post radiation
My husband 2was diagnosed with invasive squamous cell ca of the epiglottis. The staging was cT2N2cM0 Stage 4a. He had 35 radiation treatments totaling 7000cGy and 2 6 hour treatment session of Cisplatin. He finished his treatment on October 26,2012. The past week and a half he has been having throat pain saying it is…
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BELIEVE
For my good "Old" buddy Kent...; Merry Christmas...and BELIEVE, John
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Fridge clean out
So hubby and I decided to come home to Vermont this weekend. We arrived home after a wind storm to a house with no power (nothing unusual for the mountains in Vermont). We got our kids, cranked the wood stove, collected water from stream for flushing toilet, and snuggled in the living room all together. My mother in law…
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Update On My Husband
My hubby remains in the hospital. So many different doctors and nurses coming and going, I've lost count. His renal failure is improving slightly, but he now has a bladder infection which is being treated. They have removed some of the myriad of medications which he normally takes. They are using a different insulin(one he…
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Christmas plans have been sidetracked
Well I was going to have Christmas in CA with sister, but things change. On flight to CA I passed out and Doctors on board were worried with my past history. They thought I got overheated and as I was wearing a fentanyl patch I may have got to much medicine, so they checked me out and I had a low blood pressure and was…
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Week 4 is the one where the caretaker pulls their hair out?
I am soooooo frustrated, we saw the dr on Friday, and My husband refused to go to the bathroom before his weigh in.. He said water has weight. He then went to sleep last night and in his many trips to the restroom dropped 5 lbs overnight on our scale, in 8 hours. He's suppose to get in 3000 calories, tries things and says…
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It appears that we can send and receive emails...
but there is no notification that there is one waiting in the box....probably a glitch, but one that they should know about. p
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NEW ~ Posting with Photos...
Discovered that you can now put photos in your posts...., that's cool.. Lake Kissimmee from my boat, going out to the main Lake; Largest of a few specks I caught; I know a few of my fishing pictures from Saturday isn't big news, but putting them into posts now is kinda cool. Best, John
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Swallowing water accomplished!
As most of you know we were struggling with some of the Dr's last orders after tx and they were to SWALLOW! This was a bit of a problem because of the thick mucus and some pain. But after getting great advice from all of my peeps here with using the suction machine more and more rinsing with the salt/baking soda, and…
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what a mess - lost my emails
I had a couple private emails that I could not get to because of all the migration issues. Finally got into check and ALL my emails are gone, even my sent box is empty. I an new here but this is a mess.
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Upgrade...
Oh how we digressed..., LOL. A lot messed up right now... Greta isn't happy at all..., so you can bet she's going to be hammering the IT people to fix what's messed up. At least I got my expressions back, avatar and can reply to posts... Not really diggin this reverse order on replies.., makes it hard to follow the trail…
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There's no place like home !
Hello guys and gals ! Things went well with the VATS/WEDGE resect of my right lung. I lost right around 10 % of the lung itself, and am on oxygen.....for .....???? I will be having a Lung PT person coming to the house a few times a week, until I'm back to a normal routine. Day 2 in hosp.....was tough (pain wise)....still…
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Oh this is bad....
Even the older posts are all mixed up. It shows that the same person started a post and also replied last to that same post however, when you open the post and look at the discussionm it shows another member entirely. I'd rather it go back to the way it was before. Billie
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I have never
I have never in my 12 months on this board seen so many non replys to posts, whats going on. God bless Tonsil dad, Dan.
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This is too frustrating to use. I'll be back in a few days. maybe they will have it straightened o
C'ya