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Head and Neck Cancer

Archives for October 2012

Strange symptoms.
Hi there, I am 2 months post radiation treatment (35 fractions of 70 Greys) with concomitant cisplatin (2 rounds, day 1 and day 22) and also 4 weeks post carboplatin and 5FU (first round a month ago, second will be in a few days) for NPC stage III. I started to experience some rather unusual symptoms, beginning a few weeks…
amoxicillin and diflucan
back on amoxicillin for 21 days. grrr. since amoxicillin is an open invitation for thrush to move in and party, my ENT gave me a script for diflucan. so the kid picks up the prescription, and it's one pill. one lousy $4 pill. what am I supposed to do with that? take it now? or wait until thrush hits? I hate antibiotics.
Can't wear my dentures
I finished my treatments 4 weeks ago. I feel much better and I thought I could eat something but when i tried putting my dentures in, it was like they were too small. No way I can afford new dentures after all the medical bills. That's the only thing that's really keeping me from eating, I can't chew without my dentures.…
NED
PET SCAN RESULTS ARE IN!! NED!!I haven't stopped smiling yet, thanks for all the prayers and support!
It just keeps getting better.
I sometimes feel a little guilty when I post the good blessing that have been given to me when so many of you are still going through the pain and side effect during and beyond your treatments. I've just come home from my visit to see my ENT at the University of Miami for my results of my CT scan last week and…
Update on my Mom
My Mom is doing great and ready to leave the hospital following successful laposcopic surgery for stomach cancer. Pathology report came back clean. A couple of hurdles over the last two weeks but at age 87 that was to be expected. She will be going to a care center for rehab to continue rebuilding her strength before…
moffitt
Anyone have experience with having mandibular resection and reconstruction at Moffitt with DR T Mcaffrey? Thanks
Ups and downs
Hey everyone, I've been trying to stay positive and keep the humor that is so important. I had posted and deleted on this stupid throat of mine. On meds again to get rid of thrush...have had it in the past yrs ago from asthma inhalers. I need to be better for those scans Nov. 1st. According to my new team I should of…
Rancid, Bitter Taste
**I have also posted this message over on the Cancer Compass website. Sorry for the double-up but I am trying to reach as many people as I can with this query. We really do appreciate your time spent offering advice** I am writing on behalf of my 46yr old sister who is being treated for Head and Neck with Unknown Primary.…
I passed the weight test....
I'll be getting my PEG tube yanked here probably next week....YEAH!!! I had to cheat, tho...hubby bought me a pair of Danner work boots a couple years ago...I wore those...LOL...I mean what's a couple of pounds, huh? I haven't used my tube since Sept. 14th for gawds sakes, so what is the point of having to have one?? p
vomiting
Poor David is having such a hard time. We start chemo/radiation on the 30th and he hasn't eaten solid food since September 18 and that was only soft foods. He has lost over 40 pounds. He is down to 139 pounds and to top it off he is starting to vomit. Not only coming out his mouth, but his nose as well. He is so miserable.…
Lhermittes
Hello All! Just checking in, it's been a while. I've had computer problems, ugh! Anyway just wondering if any of you out there have been effected by Lhermitte's syndrome? I'm wondering how long it lasts? For those of you that are unaware of this crazy thing it is a sort of an electrical shock that goes down your back and…
Pregnancy after cancer?
My husband and I are ready for another baby. Seems simple enough, right? Oh to have the days back when a decision like this would be simple and cancer played no part in the process! I finished treatment in June, only radiation no chemo. I had a clean MRI and chest x-ray. So far every thing looks good. I visited my OBGYN…
NEDDY O'NED
Had my first PET-CT scan on Saturday and ran home to look at the cd. Everything looked good to me --> NED Do it Yourself. I was not as brave as Skiffin to announce it to the public, though. Just came back from the doctor office who confirmed my self-diagnosis --> Officially NED. For the newbies: I was diagnosed in February…
Saying Helloooooo
Just saying HI to everyone. I hope all are well or at least on their way to it! Everything is moving right along for me. Went to speech pathologist to learn the exercises to strengthen my swallow. Sounds kinda funny that I even need help being that I ate a 14 oz ribeye the night before last. My swallowing varied from day…
My mom is having a liver biopsy
Well after getting my mom's PET Scan results back last week and seeing that the mass that was in her neck was gone, they saw a small spot on her liver(about 2 cm). She is scheduled to have a liver biopsy on Monday. I am numb. I thought this part was over and I'm sure she did too. I thought we were just gonna continue to…
Going to see my "Hero"
At 1:30 today, I have a check-up and scope with my Dr Carrau. I'm confident things are still okay, tho after, almost a year (November2,2011 )I'm still having some issues with the feeling of mucus in my throat...it's annoying. Tomorrow, I go for a CT scan, to check a spot on my lung, the Dr has been watching this since my…
need your help and opinion
Hello. Some of you may know my mom's story. My mom had total of 3 surgies for head and neck cancer since 11/2010 plus radiation, no chemio. Anyway after the last surgery in March of 2012 here is the list of what happend: 4/12 MRI post surgury to see if any cancer is left over- something showed but Dr. thinks it is scars…
It was Monday; must mean time for a new case of pneumonia
Had/having a rough time with this bout. Sunday night I could not pile on enough blankets, temp was 102 and my blood pressure was a staggering 58/44. Needless to say I felt like crap. Went to the doctor yesterday and they said my oxygen level was 53% so they put me on O2 and Clyndomicin and one of those inhaler…
Tired Of Fealing Bad
I had stage 4 tongue cancer in 2010 They replaced about 7/8 of my tongue with my thigh and all the tissue in my mouth from the tongue down. I also had a double neck dissection with cancer in 38 lymph nodes. I had cisplatin for chemo and radiation. I had 76 grey radiation. Now on to 2012 my jaw still hurts from radiation…
Headache
My husband just finished radiation #7 yesterday. Doing pretty well and still eating well...in fact seems like his appetite has increased. The radiation peeps told us at about the 10th treatment it starts to get alot rougher. He had a rough bout the first week but I attribute that to the chemo and since then seems like the…
Surgery is Wednesday morning with tumor in neck lymph node
Hi all and thank you for the uplifting interest and support last week with this ordeal. 4 and a half weeks ago I found lump on neck about marble size. 1st doc said salivary gland when I came to him with my swollen 'lymph node'. Now, 3 doctors and a dentist later, the CT scan shows the tumor to be the lymph node just next…
Tongue Cancer when Radiation is NOT an option... now what?!
Hello All... My mother was recently diagnosed with Cancer of the Tongue. It was surgically removed and The pathology came back with invasion to the lymph nodes and nerve. She had tonsil cancer with metastasis to the neck lymph nodes 7 years ago. She had radiation and was cancer free for 7 years. It came back on the…
Home
Man, what a week, I am home from the hospital, everything went well except for a little A-Fib, which was a scary thing, It was cancer, a very low-grade bronchialveola, (s?) doc said I made the right decision, will see him in month and then 4 month intervals. Will do a better update when feeling a little better. Denis
HNC- Carcinoma at right Upper Alveolus
Seven days back , through series of tests.i have found out that i have a malignant tumor. Initial indication was a gland swelling below the right side end of the jaw.The gland swelling has been initally observed in Jan2012 and consulted an ENT who prescribed some antibiotics. The swelling again increased by Aug/Sep 2012…
Need recommendation to sooth the throat from Radiation
Hi Folks, We are experiencing some sores in the mouth/throat area right now. Not excruciating pain, just uncomfortable. Do not see doctor until tomorrow for some MAGIC MOUTHWASH, but wondering if you have any recommendations for now.... ie, lozenges (that aren't high alcohol based). He's using baking soda/salt water right…
Family, friends...hmmm gotta love 'em !
Hi guys and gals, Was trying to help get my 79 yr. old Father relocated to my kid sisters house this past wk. end. Not alot I could do but drive a loaded van, but it was important I was there. All I heard was...you're not eating enough...you look worn out...are you sick again. I laughed and said STOP...I'm here and it's…
Scanxiety
First post-treatment scan Tuesday, get the results Thursday. Now I know what all of you mean by scanxiety. Trying to stay positive but those doubts just creep in my mind all the time. Especially in the middle of the night when I wake up, my mind just starts racing with all the what ifs? But I am going to think NED as much…
Balancing guilt with sanity
Ok this caregiver job is so hard. Watching my beloved husband in pain, losing weight and miserable at times is so hard. I find myself sitting alone in the house for hours while he sleeps. He is such a light sleeper I can't even vacuum or clean the house so I sit around a lot more than I am used to. I have had so much…
pain after IMRT
Dear Sir, My mother 63y is suffering 4A degree toncil cancer and undergone 36 IMRT radiation which was completed on 25 july 2012. two out of six chemo only could complete due to her blood count went very low. Her peg tube was removed very imediately after treatment due to infection. so she can drink liquid food only. There…

Head and Neck Cancer

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