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Head and Neck Cancer

Archives for October 2012

10 weeks out and running
My husband is 10 weeks since his last treatment and he just ran his 22 (in a row) marine corps marathon in DC last Sunday!!! His time was better than last year. (he is not a very fast runner) I think it is because he lost 50 pounds. We got out of there before Sandy stranded us!! Those of you wondering about exercising…
Happy Halloween !
Hello guys and gals ! My wish for all the little ones - a safe evening full of adventure and excitement. I think of all the folks on the East coast and all their going through. I go in tomorrow finally for my 5th PET and 4th MRI w/contrast. Boy this yr has been an adventure....won't get results until the 19th, unless the…
Breathing test
Finally starting to feel better following my visit with Mr Pneumonia. Yesterday I had a test done at the local hospital to measure my lungs somehow. Shoot - taking the test tired me out more than anything. Haven't gotten the results yet but last night my GP Doctor called (he scheduled the tests) and they have advanced my…
101.8 fever
David started complaining of some pain last night and whining this morning. They just took his temp and it was 101.8. Now we are waiting for more lab work. This morning has been crummy. I got up early to do some work for meetings people are covering for me this morning and my laptop came up with a system error. So I am…
OOOO RAHHHHHHH!
I had my two week revisit with the ENT that did my neck dissection, healing very well, and was able to review the pathology report. The 'remnant active disease' was literally just a few cells, according to the report. My ENT declared me NED! Woo Hoo!!!!!!!!!!!! I'll have revisits with him, with my oncologists, but only for…
thumbing my nose at the beast
hah! not gonna knock me off so easily, you ****. 3 months after tx ended...PET scan still showed a hot spot in my throat. two weeks after that...my jaw/neck swelled up and the trismus worsened (was barely able to open my mouth). my onc was out on a two-week vacation, but the ENT doc found necrotic tissue deep in my throat…
Busy day at Markey
David is wore out from all the people in and out of his room today. He had a dietician, 9 doctors at rounds, hospital staff, someone took him for a CT scan, someone came to draw blood. Then you have his hourly visits from the nurse and tech. The doctors wanted new CT scans to rule out any new masses from his head through…
Getting tough
Think today must have been a turning point for my husband. He just completed his 13th radiation and today is worst day so far. Been doing ok but now today has alot of throat pain and just doesnt feel well. I am thinking from here on out it's gonna be a bumpy flight plus he has chemo on Thursday( his second Cisplatin). He…
How invasive is getting a "Pic line" in?
Well he's getting a pic line put in tomorrow. Wondering what to expect. I know what it does, but he's a litte anxious about it. Especially with previous heart issues and that's where they lead to the line to The reason he never had a port was because he only gets chemo once a week, but now that they are doing more IV…
PET SCAN and NED
I had my first scan since finishing radiation and erbitux in July, my Onc went over the results and they came back NED. I was so happy that I actually was crying in the doc's office, the results were just too much. I look at this sight all the time for the great information and the inspiring people that respond, I am so…
First Treatment
I have stage 3 tonsil cancer on left side with left side lymph node involvment. I had my first dose of chemo/cisplatinum this morning and my radiation this afternoon. I had a little reaction to one of the anti nausea med that they tried to give me through the iv (zofran). Once the reaction was dealt with, we continued with…
Island Time...
Island Time ~ St. George Island... Island Time ~SGI Fresh raw Appalachicola Oysters, Smoked Mullet, crackers, hot sauce and a few cold beers ,,, Best Happy Halloween Survivors, John
Another day at Markey
Just had our rounds with the oncology people. David's chemotherapy and radiation has been put on hold. They do not think he is well enough to undergo treatment at this time. Their goal is to get him taking enough nutrition and liquid through his PEG. He has been put on the continuous feed pump and started at 10 ml per…
Has you tongue ever gone numb and turned white?
I posted this last week but recieved only a few replies. Hoping that ppsting under a new title will cause for someone similar to read and respond. I finished my treatment about 19 months ago. Have gained my weight back and life is beginning to return to my "new" normal. So I'm pumping gas yesterday and my tongue starts to…
Ups and Downs
I swear this mucous will be the death of me, I was doing pretty good early last week, then my ONC thought she saw some thrush and started me on an antibiotic and anti fungual, both of which made me vomitit and nauseas, next day radiation oncologist loook in my mouth didnt see any thrush, told me to stop taking the…
A day without a Smoothie
Everyone, 219 days post treatments and I can declare my first day without a smoothie or protein drink (at all). Frosted flakes with half-n-half, broiled chicken, mojo potatoes, almond joys, snickers, cake, cherry pie and a ham sandwich and I may not be finished yet, I might need some food to make it more balanced. Granted…
Two down, four to go
We start our third week of treatment tomorrow and on thursday he will be getting his second round of Cisplatin. Did fairly well with the first but am wondering will the second round be more difficult. Does the chemo have a cumulative effect? Also, doing ok with radiation. He is only having the right side of the neck…
My Mom Passed Away
Hello everyone. I just wanted to let you all know the sudden and devestating update about my mom. She passed away yesterday morning. I found her on her bed, slumped over. I was home with her and had just spoken to her about an hour prior to finding her. My sister had called and talked to her as well. We do not know the…
What should we expect with getting PEG, Types of PEG's, Care, and How to use?
We're expecting a PEG to be placed soon. Can you tell us how to expect this to be placed, what types there are, how are they used with putting food in and is it limited to just Ensure/Boost type products, or can you used blended foods you make. And also, what kind of care(cleaning/bathing) should we expect?
My father's update...
Hey everybody! I know, I know... I haven't been much here lately. Actually, I did not write for quite some time... The reason for that is the fact that I needed some time off. Off everything, off cancer and thinking about it, reading about it, writing about it. It affected me so much that I could barely live normal for the…
COULD USE SOME GOOD MOJO AND WHATEVER ELSE YOU CAN OFFER
6 weeks sure has gone by in a flash since I started my latest treatment for my recurrance of SCC. After my Chemo, I go for my first of my every 6 week CT Scan with contrast to see if the treatment is working. Of course would love to hear "your tumors have dissapeared", but will also take anything from they are shrinking to…
BUDDY UPDATE
I know Dawn, "Sweetblood" had said some time ago she was taking a break from CSN, but has anyone heard from her? is she doing OK?? And the same for "Kimba", Marks Partner, "Doctor Mary", "ECKDENNIE" ETC. I may have butchered some of the names. Thanks Mike
light headed feeling that increases during exercise
I'm 40 years old and completed treatment for NPC 2 years ago. My treatment included neck dissection with the removal of 25 lymph nodes, 5 weeks of radiation with 5 weeks of Cisplatin and then 3 months of 5FU. I have many side effects from the treatment but I have one that I can't figure out and wanted to see if anybody who…
Has anyone had hypercalcemia
I am trying to figure out what impact hypercalcemia will have on his outcome. He has stage IV BOT cancer. He had a 4.5 cm cancerous tumor removed in July 2012. That lymph node showed extracapsilar spread. A BOT tumor removed September 19 with clean margins. He is scheduled to start chemo and radiation on Tuesday. As of now…
Advanced NPC NED
Diagnosed stage IV NPC in April this year, finished treatment in early October and my last PET scan showed NED! I would share some of my own experiences in hope that they could be useful to new comers. First of all, a little bit of background. I am a 40-year old male, was generally healthy before this. For stage 4 NPC, the…
Oh, what a shinner!
Biopsy, check. Nothing conclusive, need to wait until next Friday. Took the bandage off last night--I don't know why I didn't think about that. At least the headache has gone with all of the meds I am taking.
Raynauds
I finished my treatment about 19 months ago. Have gained my weight back and life is beginning to return to my "new" normal. So I'm pumping gas yesterday and my tongue starts to tingle a bit. I should mention it was chilly out.the tingling seems to be progressing and moving to numbness. So I head to the gas station bathroom…
High creatinine and calcium levels
Davids CT scan results back and no obstruction. What thy did find is very high calcium level 15.0 (normal 8-10) and very high creatinine levels. They seem very worried and are moving him to the Markey Cancer Center. The want to know why the levels are up and have to get them down. They seem a lot more concerned then when…
Need relief for tongue radiation tx... (Fentanyl lollipops, popcicles?)
Hi Everyone, Week three is complete today! 4 more to go.. We've had a rough go of it this week. Since he is BOT radiation,(no surgery) his tongue is really tore up. As most of you saw on a previous post, they refuse to put lidocaine in his MM for fear of aspiration to the lungs due to the condition of tongue, I guess. So I…
Beach Bound ~ Florida Panhandle - St. George Island...
I just wanted to wish all of my buds gals/guys and Abi-Normal Clan a great week-end. Shelley, Kali, Jazzy and myself will be beach bound for a week.... Azz in the Sand, Toes in the Water.... It's our anniversary week, and a time to relax and reflect. Just know from myself and the several other veterans here that you going…

Head and Neck Cancer

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