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Head and Neck Cancer

Archives for July 2012

Surgery went well
Well surgery went pretty well on tuesday according to my doctor. It looks like the primary was located on the left side of my tongue, but still waiting on pathology results. Total surgery time was 90 minutes versus the 3-4 hours that the doctor said it would take. The only complications so far is difficulty breathing due…
frustrated and needing to vent !
Hello everyone, I received a phone call today from my onologist's nurse. And was told that the pressure issues showing in my optic nerves are not related to my cancer. I asked how he came to that conclusion without doing the specific tests needed. Blood flow can be effected from a number of issues related to my surgery,…
Second PET scan result
Hi I've finished my NPC treatment 6 months ago and this is my second PET scan. My radiation onco asked me to do CT scan to clear things up from the PET result. PET result are as follows:- ================================================ COMMENT 1. There is ongoing good metabolic response in previous intensely FDG avid…
Throbbing pain in my gum and small piece of bone sticking up
When the feeling started coming back, after my tonsil surgery and radical neck dissection, my gums on that side were naturally sore. But for the last week it has actually been throbbing and I finally started putting orajel on it, which helped, but only for a few minutes. When I put my finger back there it felt like it, my…
This is a Fanny Pack???
It's the size of many women's purses....LOL, and weighs 6 or 7 lbs...LOL. I've got it as tight as it goes, and it hangs around my hips like a gunsligers belt, or a very short apron. I was thinking of something more petite, I guess...more work-around-able...I have hang on to it so it doesn't slip right down to my…
Let Freedom Ring
Happy 4th of July
2 weeks out of treatment
Well I'm only 2 weeks out of treatment for laryngeal CA. I have a PEG which I'm thankful for but would love to be done with! I have to use a continous feed pump because when I used the tube as intended it caused severe vomiting. My burn is starting to heal...boy I wish they'd be more honest about how that was going to…
Comments on my pictures
Hey board friends... I just realized people could comment on my pictures in my profile...wow!! So I apologize if it appeared I was being a snob and did not respond .... ....thank you to all who commented and just so you all will know...anybody in my neck of the woods or who just wants to put McCall on their bucket list is…
ATTN: Paintslinger!!
My husband was just diagnosed with hpv+ base of tongue cancer. His, too, was discovered through a bronchial cleft cyst. His, too, was needle biopsied with no signs of cancer. His, too, was removed and found to have a cancerous growth on the inner wall. And then the pet scan which lit up on the left side of the base of…
Just a tiny bit of info about me~~~
29 years ago today, I met the man who would become my Husband...we lived together 10 years and then married...so 19 years as a married couple. He was and is my "rock" through this whole cancer nightmare, we truly have a for "better or worse" marriage.
Machine for water intake
I remember reading somewhere about a little machine that sprays very little water at some interval in your mouth. Does anyone know about this? Thanks, Sam
Happy 4th of July..
Hello to all my brave soldiers today! I just wanted to wish everyone a safe and wonderful holiday, hopefully you are with some family & friends, loved ones, etc. I also want to make my first, 'I'm kind of scared' comment/ story too, if you don't mind: I live in the Midwest and we have some of the best sweet corn in these…
some words of encouragement please peg tube tomorrow morning 6:30am.
hi today I went back to doctor I have grade 3 or 4 musscotispI'm half way through treatment it got very hard in a short amt of time.ut me on fetnol patch for that but because of not keeping weight up they are doing feeding tube placement they said the musscotis would only get worse so they wanted this to be elective I'm…
I thought I was doing so well...
Tomorrow will be 5 weeks since radiation... about a week ago I was starting to be able to eat lots of different foods with minimal pain. Then (this is the only thing I can think of that changed) it was time to go off my dexamethasone pills, and the past few days my tongue pain has been more excruciating than EVER. It used…
Speech pathologist appointment
I called for my speech pathologist appointment today, and the first available opening was 7/19... more than two weeks away. Apparently the guy is only in one day a week. Ugh! In the hospital (something like 6 weeks ago now), which was during treatment, I failed on swallowing water but passed for at least pureed foods, so…
Got the PEG today
Get to eat tomorrow!!!! Surgery went fine. I feel ok as long as I'm sitting still but boy when I move I get muscle spasms or gas pains or something. And I cannot wait for these hunger pains to go away! as a side note, GI doc says there is absolutely no damage to my throat from rads yet :o )
CISPLATIN AND HAIR LOSS
I am currently taking 3 rounds of Cisplatin, one round down, day 1 of round two done today. Noticed a large amount of hair loss today at my neck which I am guessing is from the radiation rather than the chemo since it is only on the neck line. One nurse told me I shouldn't lose hair with the Cisplatin and then one today…
Vocal Cord injection
history first, 16 years ago diagnosed with SCC in 5 golf ball sized node wrapped around carotid on left side of neck. treatments were 38 radiation treatments concurrent with chemo fallowed by neck dissection. 4 years ago congronicrosis (spelling) with antibiotic and HBO treatments. 3 years ago SCC on tongue small enough to…
MEC (mucoepidermoid carcinoma)
I'm looking for more info about MEC. My sister was diagnosed with MEC and has to have chemo.
Appointment for tests and set up for rads..a little scared
I have appointment for July 10, for tests and whatever else they have to do and I assume they will set up my appointments on that day. I had tonsil cancer and radical neck dissection, all in same surgery. They removed 17 lymph nodes and out of those there were 7 that were cancerous. I'm feeling better every day but now I…
Dentures
Today, my first appointment to have dentures made..I admit I'm nervous...by the end of July should have my teeth
Delayed celebration...finished rads on wed 6/27 :)
My radiation got done on wed and it felt sooo good to ring the bell! I hit it so hard, they could even hear from front of the building :) But things were not good since i came home, basically mucus, dry throat, coughing, nausea. My tomgue is sore too. I had to go for hydration 3 times. My doc says this is normal stuff and…
Recovery post radiation - Squamous Cell Carcinoma - tongue
I was diagnosed with Squamous Cell Carcinoma of the tongue on Apr 19, 2012, after Excision biopsy Conducted on Apr 14. Carcinoma was identified as Stage 1, T2, confined to Left margin of the Tongue. Underwent Brachytherapy in 5 sessions of 4Gy each, followed by 25 sessions of 2 Gy each Rapid Arc IGRT + IMRT on the Varian…
mucco epidermoid carcinoma
a family member was recently diagnosed with muccoepidermoid carcinoma high grade. anyone diagnosed with this form of salivary gland cancer? I wanted to know the prognosis and what to expect with the chemo therapy.
Neck Dissection
I am almost 1 year out on neck dissection (July 22, 2011). Looks good but suddenly a stabbing pain. I have had a clean PET in April and saw the doctors just a few weeks ago--all good. Just wondering if this is part of the heal. Hot prickly pains in cheek, even though I am still numb from the original surgery Aug. 2010. I…
Back home from surgery
Thanks for the well wishes: I had the robotic surgery Monday where they removed my epiglottis and a piece on the back of my tongue the size of a quarter. Supposedly got good margins praise the lord. I am no fan of the feeding tube and I have a ton of mucus. Start speech therapy next week. Thanks for all of yours prayers…
Biotene for Dry Mouth
Thought I would see if anyone has used the Biotene, I have had extreme dry mouth when sleeping. I wake up take a sip of water and back to sleep however Diane bought me the Biotene in both the gargle/mouthwash and a spritzer. Have yet to use it I tend to be slow at trying new products however I seem to remember post where…
I would like to say!
Happy 4th of July to ALL of my fellow board freinds and there familys, I will be having the usual Runners up BBQ (I'm from England....we lost ) Even though it hurts to eat I will take the lortab and have myself a steak, I hope that everyone has a wonderful 4th of July weekend and go light some fireworks (my dog hates this…

Head and Neck Cancer

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