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Head and Neck Cancer

Archives for June 2012

Greg
Hi folks,about 2 weeks ago,I had throat,neck and chest surgery,both my tosils had cancer too.It was squamous cell carcinoma,it took the Dr.6Hrs to dig it all out and the pain is real bad,the left side of my head,neck,throat and chest hurts bad and slightly paralised in mouth.I'am use to pain,I had a liver transplant 1 year…
Lung mets. Here goes...
Hi Friends, Back in April 2012, I posted about my 60 year-old husband's possible lungs mets from stage 2, HPV+ tonsil cancer. Back and forth in my mind I have thought whether I should post on this board about our follow up, even PMing friends on this board whether to do this or not. Well, here it is: after biopsy, it was…
Peg Tube Feeding
Wow I did not know I could eat so much and so many things through the Peg Tube. I think I am becoming a little pig because I want to keep trying new things. Had my Wife caregiver talk to Denny’s wife and got a lot of ideas. Tonight I had Coffee and biscuits with Avocado all blinded up and down the tube, oh that was soon…
First chemo tomorrow. Scared!
First chemo tomorrow. Scared! I know they will be giving me Aloxi in my IV and are also giving me Emend, Zofran, compazine and Ativan to use as needed. I know there's a good chance I will be fine since I'm doing lower weekly doses and god knows I have every weapon available to help. What I need are some good positive…
Oral Cancer Foundation Prognosis Information
I just stumbled across the following which is contradictory to what I've been told by my doctors and have read elsewhere. Is this accurate? From the Oral Cancer Foundation Website: Prognosis The 5-year survival for all stages of head and neck cancer is 35% to 50% and this is believed to be due, in part, to late…
STAGE 4B BASE OF TONGUE SQUAMOUS CELL CARCINOMA
My dad was recently diagnosed with Stage 4b base of tongue squamous cell carcinoma. It has spread to his lymph nodes, and he has an 8cm (and growing) mass in the left side of his neck. We also just found out that the mass is leaking and has spread to the tissue in his neck; it looks like the spread is currently contained…
Chimming in for facebook....and prayers needed for few fb friends...
Hi everyone, I am not promoting any specific sites, and as far as fund raising lol (my money and efforts will be for ACS) They do not promote any specific cancer and help us all ! That being said as you all know I have ACC. I have been like a maniac researching til my head hurts....and have found mostly generic info. But…
Misunderstanding.....
Hi everyone... Wanted to clarify....I try to say things to help people but always screw it up somehow ! I do NOT have a reciepe for magic mouth wash....good lord...I always says things inside out. I used the liquid lidocaine, mixed with liquid benedryl...because I couldn't use the lidocaine alone (threw it up !) Also could…
Hi Everybody just checking in
Hi everybody i know its been a little while since i have checked in but i'm 8 days into radiation and 1 chemo down the chemo was horrible i had to go for fluids yesterday so with that and some steroids i was good to go i have my radiation in the evening around 5 everything is going ok i'm feeling a little better than i did…
Off topic prayer....
My husband is heading to Seattle today, for a colonscopy at Virginia Mason. There are two polyps the Dr. here cannot get, so going to a big specialty hospital was advised. Of course I'm hoping beyond hope that they will be able to get those two polyps at Virginia Mason...and this worry will be off our shoulders. He's put…
Halitosis
Ok guys, I feel like I can ask about anything...I mean, there's a thread about oral sex so it's ok to ask about funky breath, right? Before my mouth got really sore I was very diligent about oral care. I brushed 2-3 times a day and flossed at night. I don't have any oral health issues. I visit my dentist every six months…
Another newbie, hi!
I'm a 24 year old guy with adenoid cystic carcinoma... just finished 30 radiation treatments to my head & neck about 2 weeks ago. These past 2 weeks were the absolute worrrrrrrrrst of my life! So much pain in my mouth, and my nose gets plugged like 24/7 making sleep nearly impossible... and my right eye seems to be going…
Online research survey for oral cancer patients and caregivers
To all oral cancer patients and their caregivers: Please take a few minutes to help future oral cancer patients by completing this important survey. Thank you!!! https://mysurvey.moffitt.org/Checkbox/SupportiveCareNeedsinOralCancer.aspx I and Mrs. K did this awhile back, they need more peeps to complete it to help give…
Brachytherapy for base of tongue cancer
I recently had brachytheraphy for recurrent base of tongue cancer in NYC with Dr. Louis Harrison. Wondering of anyone else has had this treatment. Pretty rough treatment but I am praying this works this time!!!
Vital Stim Therapy
I'm going on 8 weeks since my last rad treatment. Had my body scan last week-alls good. My problem is I can't eat. Anything with any texture to it causes immediate gagging. I can do liquids and puddings but after a visit with my Speech Pathologist and a "swallow test" she's putting me on a therapeutic feeding schedule and…
Pain medication
Are you taking any pain medications? Right now i am taking advil and that seems to be working but my doc thinks it might get bad pretty fast and i should try some narcotics to make sure i can handke it. Earlier she had prescribed oxycodon but when i told her i am prone to nausea, she gave methodone. I do not knkw which one…
Rang the Bell!!!!!!
I had my last Rad treatment this morning. My husband and daughter came with me and met all the wonderful people who have been taking care of me for the past six weeks. My hubby even took pics of me on the table. I think it might have freaked him out a bit. And I got pictures taken with the techs, my nurse and my RO. Some…
How You Chose Your Screen Name
While answering a reference to a question in another post, I remembered this thread; "How You Chose Your Screen Name" It definitely brought back some fun memories during some good times with many here. At the same time though, it's a bit sad as so many from that original thread have had a bad go of it since that time. It…
6 Weeks Post - Mucous and High Throat Pain
We are new to this CSN/Discussion board and thankful to have found it! My husband diagnosed in Feb. 2012 w Squamous Cell Carcinoma base of Tongue Stage 3. No surgery, but had 6 weeks of chemo and 7 weeks of daily Radiation. He is now 6 weeks post, but he is eating less and says that the mucous is keeping drinks from going…
Cancer Recurrence
Hi there everyone. It has been a while. I see some familiar names but unfortunately a whole lot of new people are dealing with this horrible disease (and its treatment). Buzz (my hubby) finished treatment January 2011 for base of tongue cancer. The cancer is back. He now has 3 tumors. One in the Fossa of Rosenmuller…
Smoothies that are good for us
Megan had posted that she is having bolthouse farm smoothies and she is feeling better. So when i went to whole foods i picked up some and they are gooood! I can still taste coffee so really like their coffee smoothie for morning. It has about 30 grams of protein in each bottle so i have half bottle 3 hours apart. I also…
create a friend list ?
Hi everyone ! I am very computer savy....not ! How do I make or get a friends list started ? I would love to hear from you this way instead of going through all the lists of messages. Not that I won't continue to post if I think I have info for people, or just a goofy thought ! Thanks for your help guys ! Katie
Homeopathy and natural treatment
Some good reading for anyone interested in Homeopathy and natural treatment. Luc Montagnier, Nobel Prize Winner, Takes Homeopathy Seriously Dr. Luc Montagnier, the French virologist who won the Nobel Prize in 2008 for discovering the AIDS virus, has surprised the scientific community with his strong support for homeopathic…
Waited Til The Weekend
To get the sore throat. Ice chips, ice cream, Magic Mineral Broth. Other than that, any suggestions to get us to Monday and an appointment with the rad onc? And hopefully the Magic Mouthwash. Hubby's had a tough time with the treatment which surprised us because he has (read that had) such a high pain threshold. But he got…
First week past treatments
Sorry I haven't posted this week. I ended up in the hospital again because I couldn't stop throwing up. It turns out it was a combination of the mucus (which I suspected) and the fact that I had been eating so little for so long that my stomach had kind of shut down. They put me on a new anti-nausea medication that is…
APB on Laralyn.....
Just checking on you...we haven't heard anything since last weekend. Has the nausea abated any? Are you feeling any better at all? p
Question?
This is just a question, 6 weeks out of rads and doing pretty good, taste improving a little, then disapears, very dry mouth and a sore throat well its not the throat it the back of the mouth before the throat that's really sore but overall not complaining I'm doing well. My question is it seems my nasal passages are…
help with securing peg tube
I had my peg tube and port inserted yesterday. The port seems to be fine, a little sore but really no pain. I had a lot of discomfort from the feeding tube last night but it seems to be getting better today. Of course the fact that I vomited shortly afterwards probably didnt help anything. The home health nurse came last…
Lasting medications
Everyone practically knows my story, Stage 4 laynx cancer, i had some screw ups, and they finally pulled my butt threw everything, I am not right, I have HARSH TALKING VOICE, MY OPERA DAYS ARE OVER..my breathing isn't the greatest, but i live day to day without mechanically devices, though my doctor would love to fit with…
A couple of questions for Pat (Longterm survivor or anyone knowledgeable)
I'll ask my onc Dr. Thurs. but I wonder what is causing me to choke so badly on saliva, just about any liquids, if I'm not very careful. I assume it's the swelling to my vocal cords (rads only to vocal cords, not to nodes)/throat? Also my mouth isn't dry since it's not being radiated but my lower throat is so incredibly…

Head and Neck Cancer

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