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Head and Neck Cancer

Archives for June 2012

OK you guys.....5....yes that is FIVE
amifostine and rad treatments left to do!! :) I am excited that the last week is finally here, and that by next week at this time, I'll never have to have either again. I got thru this relatively unscathed, too...I weighed 89 1/2 today at rads, which is only a 3 1/2 lb weight loss from the git go. Thanks to the diligence…
Cricopharyngeal spams or incompetent esophagus ?????
These were the two scenarios given to us today by the ENT as to why dad cannot eat 7months post treatment for tonsil and lymph Anyone have any information on this Dr. Said the way to find out is to treat as if it were to see if it works. Treatment for the spasm is Botox injection at the upper Esophaguial sphincter. Any…
"You've Lost A Lot of Weight"
I will acknowledge up front that it's a nice problem to have and I'm fortunate to have come out of the worst year of my life relatively unscathed. But I'm curious what other people do in this scenario . . . I run into a co-worker/acquaintance who I don't really see that much. They comment "Gosh, you've really lost a lot of…
CT follow update
Dad is still all clear. There is one place that shows up, but has not changed in two and half monthes. Dotor not sure if it is scar tissue or the root of the cancer. Since nothing has changed he told dad not chemo now and come back in 3 monthes for another scan. Thank you all for your prayes they seem to always work. Kathy
Results from 1st pet scan
It was not as good as we hoped. But not as bad as it could have been. This is after 5 rounds of cysplatin and 35 radiation treatments for BOT cancer with lymph node involvement and only two months post treatment. Primary tumor shrunk considerably but a small amount remains. Also left side where cancer was found in the…
Cancer survivors and care givers....
Hey everyone, Kind of zooming around on different links. Man I have felt alot of the same feelings of frustration and anger at the lack of information and new treatments out there. But cancer no matter what kind it is stinks ! I have had my foot in both worlds so to speak.. was a primary care giver to my Mother for two…
new to board
i'm a newbie. i'm 72 years old and finished treatment 2 yrs ago. cancer on right tonsel.35 treatments of rad. and 6 chemo treatments.2 months later right neck operated on.have had all good scans.still no taste and only about 40% saliva. was able to take my elk hunting trip to co. last fall and have taken 2 ski trips to co.…
Vomiting due to excess mucus
My husband has had 23 rads as of today. He's having a rough time with lots of mucus in his mouth and throat, which then drains down into his stomach, which then makes him vomit. Nothing seems to help. He's taking zofran for nausea, reglan to help move things through his stomach quicker, and some tussin (generic Musinex) to…
AGNOTCSIM
After 3 years since the end of treatment for stage 4 Left Tonsilar Cancer ( in which they told me that I may have 5 months left due to aggresive spreading), I have my results from the 3rd year Pet Scan. It showed that I Ain't Got None Of That Cancer Stuff In Me.....so thank goodness. Larry
New to this forum, worried
Hi all, Never posted here before but have been reading a lot of helpful posts and encouraging thoughts on this board and hoped I might get some answers and support. My 75-year-old Mom was just diagnosed by an ENT with what he terms stage IV tongue cancer that has invaded her epiglottis and larynx and at least one lymph…
1st Petscan 2 months post treatment
My husband had his first followup petscan yesterday. We go tomorrow at 9:40 for results. Nervous, but optimistic as are doctors. Please pray for NED, NED, NED! Thank you.
Follow up CT
Dad will get the results of his CT tomorrow. He finished treatment for a reoccurance for tongue cancer in March. The doctor gave him a two month break since the CT then was all clear. We will find out what the plan is for the next couple of monthes. just wanted to keep you all updated. Kathy
95%!!!
just saw this article last night. unless i'm misunderstanding something, it looks like what i have and the treatment i'm getting is now resulting in a 95% 5 year survival rate! http://www.redjournal.org/article/S0360-3016(11)02863-X/abstract
Lips peeling
Hi to all.... Just wondering if anyone's lips peel My dads lips will shed like a snake shedding his skin...only somedays.. It is soo strange. Has anyone experienced this? Thanks Michelle
Contact name at MD Anderson
have someone needing a 2nd opinion at MD Anderson-Houston. I know several folks were treated there, but can't remember who. If you have a contact there, pls send me a private message with dr. name and number. THANKS SO MUCH. Ingrid K
2nd Pet/CT
I had my second post treatment PET/CT scan today, report will be sent to my onco, they gave me a CD for the rad doc...my ENT gets a copy as well...I know in my heart everything is fine...packing right now to go back east for 10 days to celebrate grandaughters 7th birthday and just enjoy all my family. I will never ever be…
Trismus, neck pain, tooth pain, jaw pain, vocal chord paralis, trach tube
Hi Everyone I am new here. I had all my cancer treatments in the Summer of 2002 everything has been downhill since then. I have severe neck and jaw pain that no DR listens to. I have severe trismus and I have vocal chord paralis and because of that I have a trach tube. I have a horrible voice that people cannot understand,…
NEW TO CSN
I am new to the boards so thought I would introduce myself. I have been reading info on here for the past few days and thought it was time to join. I had surgery in April 2012 to have what I had been told was a branchial cleft cyst removed. After a cat scan, ultrasound and needle biopsy which came back benign and meeting…
Adenoid Cystic Carcinoma
Hey everyone, Was just on a site talking about different cancer centers. HOLY COW ! I know how they feel but also I have learned darn quick that I am in charge of me. My cancer was in my submandiblar gland (saliva) and was told very rare. My options are pretty limited, but I am not giving in to that. I have been…
Faster feedings using a feeding tube - options?
Hi I have been using my feeding tube for about two weeks almost exclusive. I'm using the gravity bolus method but it just seems to take forever and when my wife makes me something a little too thick it takes even longer. Has anyone heard of ways to move food quicker? I ask this because I eat about 8 or 9 times a day and…
Next Wednesday is the big day
Next Wednesday is the big day. Chemo and rads. Will do the weekly Cisplatin on Wednesday's, hydration sessions on Monday and Friday, rads Monday thru Friday. The duration will be 6weeks. Got fit for my mask today. Couldn't do the long mask. I have obstructive sleep apnea and the mask part around the neck felt like I was…
Ophthalmologist Visit?
Wondering if any of your ENT docs told you to see an eye doc after radiation treatment. Should we include this as part of the ongoing follow ups? I had double vision when I was daignosed with NPC but now my vision has returned to normal.
Teeth Cleaning and X-Rays
Hello all. My Radiologist thought it might be a good idea to go get a thorough teeth cleaning and start using something called 'Fluoride Trays" every evening. Surgery for partial tongue removal and right/left neck dissection is June 21st. Should I not have x-rays done this time around just in case that the pathology on my…
Magic Mineral Broth
Tried it yesterday and hubby and I both enjoyed it. It actually DOES slide down your throat like silk, even smoother than water does for me! Amazing. I couldn't find the Kombu or whatever that was, but everything else I did according to the recipe. I will go to Whole Foods and can probably find it. Did not burn my throat…
Pictures anyone?
I asked my rads techs if I could let my son take pictures tomorrow of me and my buddy (mask)on the table and they said yes. Am I crazy for wanting this momento? My family says I just want more sympathy and they're probably right!! :) Just wondered if any of you did that or wanted to? Will take pics of the tech's too who…
8 months out of radiation treatment-NPC
I completed radiation 8 months ago, my throat cant swallow solid food with a little help of water, that is ok with me,i can handle it, my problem is the sticky greenish like mucus from my throat especially in the morning.It bothers me a lot, it smells bad too.What could be causing it?.
Self Dialations
Has anyone heard of self dialations? My doctor is wanting me to try this for my next dialation & i'm not sure how I feel about this. It's supposed to be a tube filled with murcury that I can self dialate with. I'm a laragectomee so there won't be a problem with the airway as I breath through my stoma. If anyone has any…
Trouble with brushing teeth and gag reflex
My husband has started gagging and vomiting when he tries to brush his back teeth. His gag reflex is crazy sensitive right now. My only thought was to take an Ativan half an hour beforehand because a lot of it is that he did it once, and then anticipates doing it again. But that may not be the best solution. Has anyone…
my 1st radation treatment done
1st radiation treatment is done and tomorrow morning is chemo at 8 please keep me in your prayers i'm very scared about the chemo.It will be my 1st 3 week cycle.
Too much gas and constipation
I guess this is a group where i can post any question. I have lot of gas...switching to soy protein...i guess too much of whey protein. I also have constipation...tried senna and colace but not helping much. Any good ideas? Should i add fibre in my smothies? I could not eat much today becuase of this.,,i know i cannot go…

Head and Neck Cancer

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