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Here we go again
Hello Everyone, Well my mom had her biopsy today and the silly surgeon comes out and says yes it looks like recurrent cancer, he's sure. This is the same surgeon who took a biopsy March 4th that came back negative at that time showing acute and chronic inflammation with necrosis of bone. The PET scan last month lit up in…
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loosing layers of skin
My husband is on his 27th radiation and he his loosing layers of skin on his neck. We are putting Aquaphor cream on it. Any other suggestions?
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ASAP Please
Husband 53 yrs. Although my husband underwent a tonsillectomy on 11/24/11 for cancer he wasn't "officially" diagnosed with SCC of the tonsil until 12/1/11. He is staged at T2 N2 MO Stage IVA. He finished a radical chemo/rad treatment 3/28/11 & just had a new PET Scan done. The scan showed an all clear for for the tonsil…
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Interesting side effects
We have been talking about serious side effects of radiation years after the end of treatment. Has anyone experienced unusual ones which are not so serious? Buzz lost his whistle but gained long, dark, curly eyelashes! He looks like he is wearing mascara. Karen
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SQUAMOUS CELL NECK CANCER
can anyone help me know my possible outcome.... my dr just said we will treat this... i am 58 years old, female, a transplant paient (so a reduced immune system) i had a 2 inch squamous cell tumor (that grew in just 30 days) taken out of my neck, it was stage 4 cancer, including cancer in my lymph nodes on that side of my…
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Angiogram in the Morning Up-Date Friday the 13th
Well my Heart doctor finally did it; He got me to agree to have an Angiogram. He says everything on the other test all looks OK. But with all the High and Low blood Pressure problems, pain, and fluid build up on the brain he thinks I should do this test to make sure the Heart and Kidney have no restrictions or blockages.…
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Just wondering
Hi all: Anybody out there heard anything lately about Jim (delnative). I was just wondering. I looked briefly on lung c board but didn't see anything. I remember his telling us the beast had returned but don't remember seeing anything lately about how he's doing, treatment, etc. Just wondering. Jan (basketcase)
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another biopsy-please pray
Well friends, please pray for my mother, Pauline, as we go in the morning for another biopsy. so scared A couple of questions...have any of you heard of surgeons using some type of GPS sytem to guide them during surgery to the mass. Also it the pet scan is very bright in an area, does that mean its cancerous? This site is…
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COFFEE and CSN - UPDATE
Man, was starting to get cranky from not being able to have my morning cup of Joe with my CSN buds and buddettes..... I think we are just getting so much traffic in the Head & Neck Forum, we're boggin the system, LOL.... ***UPDATE**** Our FaceBook was hacked for those of you that are our friends there... We are not stuck…
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Deafness or just infection?
Ok guys I'm hoping someone has been in my shoes and can tell me what might be going on. Saturday I thought I just had an ear ache becausey left ear just kind of throbbed, bought ear drops and took Tylenol. Sunday it throbbed here and there and just mostly felt like my left ear was under water (all sounds are muffled)…
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radiation, chemo side effects years after treatment
After providing the doctors wrong I am still here 9 years after stage 4 tonsil cancer. Even through I beat the odds 15% survival rate I have developed what the doctors say are the side effects from chemo radiation. First Feeding tube, acid reflect that they say was destroying my right vocal cord (left destroyed during…
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Ear pain
I had 2 neck dissections and 95% of my tongue removed and replaced with my thigh. Plus chemo and radiaion. Also several surgeries on my tongue to try and shape it right for speaking and eating. My left ear hurts really bad but the doctor says he can see nothing wrong with it. He thinks its just nerve damage from the…
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My husband does not care for his oncologist
My husband does not care for his oncologist and staff. The oncologist is very young and her onco nurse is not very friendly and the front desk staff are not very professional. I talked to the doctor today, my husband is in alot of pain and was taking more than prescribed and she basically talked down to me. I understand…
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Lacking confidence after treatment
Hello Everyone, My wife Connie finished her radiation treatments March 21, and she did a ct scan April 10th to check her cancer status. She also had a ct scan after chemo on Jan.10, that detected no tumors. We are cautiously optimistic. My question is why have her doctors not ordered a pet scan, I thought the pet was more…
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First Chemo completed
I've had a pretty rough start to this journey (including a collapsed lung as a result of the mediport placement). I was hospitalized for a week with a chest tube which resulted in the doctors moving back my treatment start date. I did my first chemo (cisplatin) today and thankfully I feel pretty good (fingers crossed it…
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New pix
Hi all: Been playing around with pictures again thanks to John's help. Anyway thought I'd run a test and see how this came out. THis pix is the last one I took of Charlie and it was about a month before we found out about his return of cancer. Anyway thought you'd like to see a closer up view w/o sunglasses. I'm working on…
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Looking for information on experiences with Cetuximab
Hi there, I'm new to this journey, just had my second chemo and first radiation treatment today. I have been given cetuximab combined with radiation therapy and would really appreciate any information from someone who has experienced this combination. Can anyone enlighten me?
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An update on my Father
Well, Thursday May 5th, my father had surgery on his neck. After his surgery we were told that he may be able to leave on Tuesday May 10th. However, after the meds. wore off from surgery, he was pretty lethargic to say the least. He had 3 drainage tubes coming from his neck, and being that he had his jugular vein removed…
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Spitting up blood
My husband was spitting up blood this weekend and all of his gums are white. Is that the mouth soares I that I have heard people talking about? Any solutions?
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PET Results
I wanted to check in and let everyone know. My PET Scan was all clear and i do not have to go back to see my Doc for 6 months. It is nice to be able to share some good news on here. I know we all have had some really hard moments and will continue to have those days, but there is hope and i am happy to share some good…
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Pain Clinic
After surviving 3 surgeries, 30 rads,and right side facial paralysis for the last ten months, I now have moderate to severe pain in my eardrum, temple, jaw, and throat. This pain moves around and is sometimes an annoyance and is sometimes horrendous. My ENT says he is quite sure it is a TMJ disorder. Well, I sure don't…
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PET scan and biopsies
Have any of you had MRI that shows abnormality near where original cancer was, then a biopsy that is negative, and weeks later PET scan and MRI still light in that area. So..gotta go for another biopsy so ENT surgeon can remove more tissue???? Treatment was 8 months ago. So very confusing with these tests.
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Michael Douglas
Michael Douglas will be on the View tomorrow May 9th, if anyone wants to watch. Sue
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Happy Mother’s Day
To all you Mom’s going through treatment or has been through the fire already and to all Mother’s who are Caregivers taking care of us in need. You are the blessing of the Earth giving by God to Man and I thank you for your never ending giving. I know that without my caregiver Wife I could not have made it as far as I have…
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Where in the World Are You and Who on Here is Close to You...
Just wanted to stick the Survivors Map up, for newbies and other survivors.... Take a few minutes and find yourself on the map, and especially others that might be close in location to you... Where in the World Are You If you need added on the map just let me know. Thoughts, Prayers and Happy Week-End, John
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Fresh From the Salt - Tampa Bay Grouper
For all of my fishing buddies.... There is fishing after Chemo and Radiation.... This is my friends Blog on recent fishing trips. Some with me, some with others.... The cover is Josh, my buddy holding a double fisted pair of grouper. Our first double hook-up a few eeks ago. Fresh From the Salt If you scan through the older…
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swelling
My husband last rad and cemo treatments has been now around 5 weeks. He wants to know if anyone on this site as the experienced the swelling like he is? Under his chin is really swollen, and hard. If anybody has experienced this same thing about how long does this last? We have asked all the doctors and they always say "…
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please please give advice
Hello everyone, Well my mother had stage2-3 sinus cancer. She did radiation, completing it end of august 2010. her ct in november was clean. In Feb. her ct showed abnormality near original cancer area. Her radiologist said she was sure it was a recurrence. Her sinus surgeon said he did not know. He is her ENT and trained…
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New products
Well, at least they are new to me. Anyone tried something called "Pill Glide"?? Yea, I know....sounds like something from a dope addict amusement park. But anyway, it's a swallowing spray that you spray on your tongue and it really does help in getting the larger pills down the ole throat. It's sugar-free, dye-free, and…
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My Fathers udate after surgery yesterday....pretty good so far
Well, the surgery has came and went. The Doc. wanted to take the infected lymph nodes out of both the right and left side of the neck, but after he opened my father up, he found one of the lymph nodes wrapped around the juggler vein. With that being said, he had to remove his juggler vein in order to get 1 of the 5 nodes…