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Head and Neck Cancer

Archives for May 2011

Hair loss
Okie dokie, here's another question for anyone who may have experienced it.....I had my last chemo January 18, 2011 and last radiation February 8th. I lost my hair along the radiation line and had some thinning after chemo, but did not lose all my hair. The last two weeks, my hair has started falling out again. Not just a…
Husband Has Voicebox Cancer
A friend just introduced me to this wonderful website. I am overwhelmed right now and sick with worry. My husband was diagnosed with voicebox cancer on April 4. He started radiation therapy on April 11 and tomorrow will be his 20th session with 13 more to go. The radiation oncologist really didn't give us many details…
Unsolicited Personal Email
I received a suspicious email to my personal email account at 4:00AM last night. It references CSN.CANCER.ORG as finding and reading my profile. Wanting to get to know me, send a photo, etc.... Has anyone else received any emails like this. I know that I've posted my email on here a few times in conversations... Anyways,…
A beverage that might be worth a try when everything is burning....
I know some of us spoke about this first beverage before, but we've had a lot of new people join, so thought I would mention it. One of the things that I could actually tolerate drinking when everything else burned, (even water) was flat, room temp, MUG rootbeer. This was a tip from the hematologist oncologist. It has to…
jawbone replacement surgery
I am scheduled for jawbone replacement in 6 days. I have osteoradionecrosis from intensive radiation 10 yrs ago. Has anyone had this operation where they take out a part of the jawbone and replace it with bone from the fibula (leg)? If so how did it go? How are you now? Do you know of any other options available? The…
what to expect at the end of treatment
My husband is just about done with his treatments. What happens next?
mom's helpers
No doubt the mask is daunting! I too had to take anti-anxiety pills at first, Roz. I had never had any problem with claustrophia before, it was really a form of panic. Good idea to ask for help with the sleeping thing. I have been staying up reading most of the nights, so maybe little 'helpers' are in order here. Thank…
Little off topic: anybody know anything about Saccharomyces boulardii?
It is a active yeast to help control diarrhea. any thoughts?
Cisplatin and 5 fu for concurrent chemo/rad for BOT?
My mom has decided to stay local for her treatment since my dad is sick too....The oncologist here said she would have 7 wks rads with cisplatin and 5 fu on wks 1 4 and 7....Did anyone else have fu 5 as part of their chemo/rad treatment?
First day of treatment....
Well I went in for my first day of treatment at University of North Carolina Cancer Hospital and met my ENT Doctor. He appeared to be a great guy and was able to identify my primary, right tonsil with small affected area BOT. Pre-Op is 16 May and surgery is scheduled for 24 May. My ENT Doc is going to be in touch with me…
Saliva and taste....does it get better?
One of the greatest loves I think I have is food. I'm in the middle of my fifth week of rads. No peg, drinking a lot of ensure, and missing; pizza, steak, tacos, cheeseburgers, beer, gin, vodka. :) I can taste very little at this point and most food burns my tongue. The dry mouth is particularly frustrating as I talk a lot…
Ground Hog Day again?
John, thank you. That perspective fits! I read your post when I got home from treatment today and I have to tell ya it was very uplifting to find your message. Just showing your regard, just showing you care. Thank you. And to all of you. (again) I'll have all of you in my prayers. Man, I sure am one lucky person! Rubytoos
cannibus/hemp oil
Hello, I am new to this website, actually I have been reading on here for a while and just decided to join. Anyway, my father is the one with cancer, neuroendocrine and squamish. He is in his second of seven weeks of radiation. Hes had one three day cycle of chemo and will have another in three weeks. He's having every…
Keep on
Thank you all for your kind words! Yesterday after treatment I came home and simply CRASHED. Sometimes I'm so tired after the radiation, other times not so much. Don't know which of you have to wear the mask for treatment and don't know if any of you ladies are going through perimenopause...but let me tell you sisters,…
anxiously awaiting
Dad is having his first PET and a second CT as I write this. In a couple of hours we will meet with the oncologist for results. Thanks to everyone for your support....I am asking for prayers and support Again today too. Andrea
I started waving at passing airplanes
and am really starting to enjoy it. You see I do a little jogging just to help with the anxiety. Scans in two weeks so this is always an anxious time. Anyway, I live rather close to an airport and the planes take off nearby. By the time they get over my residential street, I'm sure someone looking out, can still make out a…
is a feeding tube that goes up ure nose called a peg tube
my husband undergoes surgery on the 10th may he has to have flap rebuilt and floor of the mouth removed nurse told us he will have a feeding tube for a few weeks is this a peg tube she said it will go up his nose any info please
has anyone just had surgery for mouth cancer
hi my husband has floor of the mouth cancer on the 10th of may he has his op which means he has to have all lower teeth removed the floor of his mouth base of his tongue and part of his jaw bone chipped away he said it is the same op as what is used for tongue cancer with flap built only more work we have had 2 opinions…
The Latest PET/CT Results
In March I had my 7 month post treatment PET/CT scan which showed a hot spot at the site of the original tumor that was diagnosed as residual cancer, meaning they didn't get all the cancer with the chemo/rads. Recommendation was surgery to cut it out of the base of tongue. Not a great day. 2nd and 3rd opinions suggested…
New to site
Hi ya'll. I just joined CSN; wish I had found this site 2 months ago! I have 8 more radiation treatments left (out of 35) and can hardly wait to see this through. I am looking forward to having a sense of taste again, hopefully, and getting enough nutrition by mouth so the peg can come out. I too have moments of real…
Do you think it really matters what facility performs your radiation treatment?
My mom is so torn between going back to Mayo for all her treatment or staying here in Peoria, IL and having it done. Staying local would help my sister and I as my dad has cancer too. My sister and I are going to have to take two week turns going back and forth to Mayo to be with my mom and while we are home have the…
B9
Got the other 5% Friday. All clear B9 NED!!!!! The doc get's his red Porsche. Best to all!!!! Steve
Alabama
Not cancer but I just drove through some of the areas hit by the tornado (this one was just an EF3)and it really is bad. Pray for them and send help if you can.
bleeding in track
Hi my husband had to go to the emergency room this morning because he started bleeding from his track. They took X-rays and did blood work but they said that they could not tell where the bleeding was coming from. They said that we should go Monday to the ENT AND let him look at my husband. Just wondered if this has…
Tongue Tumor Size
When we went to Mayo, the ENT surgeon said that my mom's tongue tumor that measures 5cmx4cmx2cm was "massive". He said that she has already beat the statistics because 99.9% of people with this size tumor would already be dead. He said that this tumor would take her life...He said in 35 years of practicing that he has only…

Head and Neck Cancer

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