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We got a New Year's gift
Joe finished his 35 radiation treatments on November 5th and had a PET scan this week. His doc is on vacation this week and we were to get results next Monday. We got a suprise call from her nurse late yesterday with a New Year's gift telling us the scan is all clear! Joe had Stage IV left tonsil cancer and the tumor was…
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A Prayer for the Dying
Father God, Give me the strength to help my husband face death with serenity and grace. Give us the peace we need to make the most of our time together. And give us Your love in abundance. Remind him I am with him to the end. Amen.
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A little disappointed with new ENT today
Well I am a little disappointed with my New ENT visit today, not that they had made a mistake and schedule 4 people for the 8:30am appointment, anyone can make a mistake. He came in to the room and I could see he was in a hurry but sometimes that is normal. He sprayed my sinus in prep to do a scope, and left for about 20…
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Best weight gaining drinks?
So - I was poking around but didn't see a thread on this, of course I am sure there is one somewhere. Any points in the right direction would be appreciated. Above and beyond the Boost and Ensure - any recommendations on good protein powders or additional shakes etc. that help for weight gain. THANKS!
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What's normal??
I hesitate to post this because most people on here are reporting such positive things and I don't want to be a downer. But I am so concerned about my husband and just can't believe that the way he looks/acts right now is normal for chemo treatment side effects. Just a brief background....diagnosed Sept 2007 with base of…
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New guy
Hello everyone, I'm Jason and this is my first time visiting this site. I'm a late bloomer here, seeing as I'm about 16 months post-treatment. I was diagnosed with squaumous cell tongue cancer in April of 2009 and finished my treatments (surgery, radiation, and chemo) in August of 2009. I am happy to say that I am now…
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Dumb Question?
Does anyone know if there is a link between radiation and skin cancer? My husband is one week post treatment for Stage IVa SCC. I've noticed that there are quite a few new "freckles" that are very dark colored. Maybe the radiation just changed some of his existing freckles, but it made me wonder if radiation can bring…
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klebsiella pneumoniae
David has this bacteria in his mouth, instead of thrush which we have been told it was for months now. This bacteria is normally found in the digestive tract, not the mouth? Chemo doc didn't understand or have any answers for us other than, brush and clean mouth better, said it is in the same family as ecoli? Has anyone…
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Holiday Hospital Update
Patrick has been in the hospital since Wednesdat December 22. He passed out, turned blue, and stopped breathing. After myriad tests, antibiotics, a seriously violent delusional spell where he had to be tied to the bed (think it was a come down from the morphine but don't quote me on that) so far this is what we have: The…
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Tips to keep a loved one positive?
My father has tongue cancer that has gone in to his lymph nodes, stage 4. He is HPV positive, which makes his prognosis pretty good. This type of cancer can be cured! He is 75 and retired early, many years ago. He has COPD and has let that sort of damper his activity and he was probably depressed even before this…
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Where's kimmygarland?
Am I just missing her posts? Anybody heard anything from her lately?
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Dale G
I haven't seen anything from Dale G since his post of a few weeks ago - 3 days after chemo and feeling great. I PM'd him and warned him that 3 days is often the calm before the storm and offered a few bits of advice in case the nausea popped back up. I haven't heard back and he hasn't posted anything more on the list. I'm…
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Numoisyn anyone?
My husband has 2 new unopened bottles of Numoisyn Liquid for dry mouth. Fortunately, he doesn't have a need for them any longer. He said it was a great relief when he was experiencing dry mouth. I'd be happy to mail these 2 bottle to anyone who is interested; I hate to throw them out. Just send me a message.
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Back from NC for Christmas
Hi all: Hope everyone had a very Merry Christmas. I got back from NC this afternoon after spending Christmas with Charlie's family. It was a bittersweet one. We had 8 inches of snow on Christmas Day and it turned out to be just me, his parents, his brother Steve and wife Karen and brother Stan. The weather kept the…
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NOW I Have News to Share - and How Are Your Necks?
Had modified radical neck dissection (right side) last week - out of hospital on Christmas Eve - healing well, I'm told. Thank you all for your prayers and positive thoughts - they matter. Went to ENT - they say I have a lot of swelling - probably due to radiation. Voice and swallowing are still off, but I can talk and…
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ENT Visit Tomorrow
I did a MRI last week to see if they could find any problems as to why my eye sight in the left eye is going dark, it came back as normal as can be for someone with radiation twice to the head. But did show a lot of infection still there in the Mastoid and other sinus areas Anyway I will be on my way tomorrow to see my new…
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UPDATE SKIPPER:
Writing this from the hospitaL. Well got my husband to the family doc but went from there by ambulance to hospital. Thought he was going to die last night but he pulled through. His blood pressure is 90 over 40 something (now) which is much improved and now he has a low grade fever. We will be discussing his hospice…
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D for Done
Just finished rad #35 to head and neck. No more rads, no more chemo; just time to rest and heal. I am so happy to be done! Just in time for the New Year. Thank you all for all your support. Bob
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Looking for Doctor in Northern CA
I am looking for a doctor (Surgeon/ENT) in Northern California for a second opinion. I finished my treatment (Chemo and radiation for SCC Base of tongue at the end of August) and my 3 month PET Scan showed an area of activity in my lymph node. Rad Oncologist not concerned and believes it is probably residual inflammation.…
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How Long To Bounce Back
Hey there, everyone ... So my husband has NPC ... had the concurrent radiation/cistplatin with his last radiation on September 7th. Then about a month later he started the three treatments of cistplatin/5FU ... with the last one being changed to carboplatin/5FU. He finished the last treatment the week before Thanksgiving.…
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Really Scared - Beginning of the End?
I'm very worried and scared. Had to make a doctor appointment for my husband today. He's very very weak (because he isn't eating) and he says he has trouble eating because his stomach gets full right away. He's extremely thin (now around 100 lbs - maybe less). He's having a lot of face pain from the shingles he had which…
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So their really is a Santa Claus
My wife Connie just got out of the hospital after 8 days. She started out with chronic diarrhea and then progressed to low platelet count. Of course these symtoms started from bad reaction to chemotherapy. The research team that runs the clinical trial that Connie is a patient never even gave her a call to show their…
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Sepsis - anyone else have this problem?
I'll ask the basic question and if anyone would like the back story I can fill in the gaps. Has anyone else had sepsis? Where does it come from?
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Cancer gone and still losing weight
My brother, Paul was told the cancer on the back of his tongue is gone...that's the good news. He finished his radiation treatments about 3 months ago but still has a couple of small lymph nodes on his neck which in a couple of weeks he will have a Pet scan to see if they are free of cancer. I have two questions...the…
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Just Merry Christmas
I just wanted to wish every body a Merry Christmas.
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NO CANCER TODAY
My husband and I have declared this a day without cancer. Just for today let's forget about all the bad stuff and enjoy the moment. Best wishes for a Merry Christmas. Skipper
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Merry Christmas everyone
Just a short note to wish everyone a Merry Christmas and the blessing of good health for you and all your loved ones now and always.
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Musings on a Christmas Card
I received a Christmas Card from a very dear friend. Her personal message included the following statements "...2010 really sucked! Here's to a better year for us all!" Somehow, I don't agree. I don't believe this has been the worst year of my life. Diagnosis of Stage 4 BOT SCC with bilateral lymph node mets in January.…
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All I Wanted For Christmas-
-was my two front teeth. Well, I got them back for $350 on the 22nd! Tooth damage being a common H&N side effect, thought I could offer this bit of experience. My two front teeth developed large chips in the bottom-center of each, with a small crack running the now-shorter vertical length of each. What to do? On the 22nd I…
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2010 Update
Hi Everyone, Haven't been on in long time. Don't really know why. Last treatment was Aug.19,2009.Was clear last scan and check. Go for CAT scan and check the end of January. Will be 17 mos. Always have fingers crossed. Lost 70 lbs. and have kept it off.Needed to loose it, but not like that!! Went through a bout of…