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Colorectal Cancer

Archives for April 2021

biopsy
I am kind of in a funk. Been trying to get appointment with mayo cancer center in AZ. I have a medicare advantage insurance United Healthcare/Optum Care. I have received approval from insurance to go to Mayo for 2nd opinion. Talked with them today... I am a Stage IIIc cancer survivor since 2007. I had a pet scan that shows…
Dr Burzynski
Treating patients with antineoplastons any truth to this I'm curious what those more educated then me think ?
CT scan contrast does it really matter ?
Hello , So many years ago my dad had a severe reaction to MRI contrast and ever since has been unable to take it well now the hospital is adding CT scan contrast as a allergy . However my dad has had CT scan contrast several times where he was originally treated and everything was fine . But the hospital now won't listen…
21st Century Cures Act
I see that this has a law that went into effect this month here in the USA. I am mostly hoping it means my scan results will be online a day earlier. :) I am not entirely sure what the law about being able to get the info means, as I do get my results eventually. I just have doctors who want me to see them first to get…
Back again
Update, had another major recurrence in the liver, five tumors this time, mostly small but one large one. Highest recorded CEA of 13. No idea regarding treatment recommendations at this point as the team hasn't conferred with each other. Will probably hear tonight. I would imagine chemo is back on the table but I've shown…
TACE ahead of us
So, During this week we good a new information how they want to treat my Papafurther and prolong his life. Cure is not an option anymore unfortunately. I thought I am used to it due to his MS but this is more scary. According to my dad there are 5 to 6 liver metastases there. They were not visible during PET scan at the…
CEA rising with No Evidence of Progression (Covid related maybe)
Good Afternoon Everyone, I just returned from my regular 3-month lab work, CT scan, and Appt. with Oncologist at MD Anderson Cancer Center in Houston. The lab work had a very wonky CEA reading. Back in November, I had one lesion on my liver that was growing larger despite being on Folfiri + Erbitux. Doc decided to ablate…
I'm numb they actually said hospice
So everything just came crashing down after the radiation oncologist recommended chemo the oncologist just made my heart break . The oncologist told my dad sure he could do chemo but cause my dad is prone to infection's with his urostomy bag it wouldn't be much of a life . He told my dad he can't be on antibiotics and…
" Once more unto the breach "
So my dad has to go back to chemo and the first time he didn't have much side effects faitgue and some chemo brain was it . Anyone know if that improves his chances of having limited side effects this time ? Or can someone do good on chemo one time then the next chemo drugs do not so good ?
11 years tomorrow
Since my husband had his first surgery. The one to remove the cancer from his Colon. Who knew that would be the easiest thing he did in all of this. I wish I had made him do the mop up chemo maybe things would be different right now. I feel like everyday he seems weaker to me. he has only managed to gain back 5lbs, a non…
pet scan question
Hello So this week my dad see's a ENT cause his last pet scan showed thickness at the base of the tongue and FDG uptake there also and it also said it's of uncertain malignant potiental which I took as a good thing . However someone told me that there is actually tumors that have uncertain malignant potiental in there name…
It grows and grows and grows
Hey, My dad is now after 2nd liver surgery, had CT and MRI this week. The cancer is again in the liver. I dont know how big the lesions are, they were probably too small to be detected during the PET. Now they are big enough to identify. For now surgery is not on the table. On Tuesday they will discuss about other…
Cologuard Thoughts on a positive finding?
Cologuard Thoughts on a positive finding?
Cancer Management App
Has anyone tried any of the symptom management apps? We checked out several and decided to go with ChemoWave. There were a few stories on YouTube about its developer, a cancer patient caretaker who created the app to manage his friends symptoms and care. We just set it up and are trying to figure out how to use it. Most of…
Here's an odd news story
Cancer patient saw disease all but vanish after catching Covid (yahoo.com)
New Diagnosis, Good Prognosis-Managing Fear
I am 53 years old, was tardy on the colonoscopy, and I was diagnosed with Malignant neoplasm of hepatic flexure. This is really just a scary way to name a big ole tumor in my colon that invaded the colon wall and 2 of 50 lymph nodes. Since my surgery, I feel fantastic (if a little sore from the incisions and the port…
Stage 4 Colon with Mets to liver—worse 50th bday gift ever!
Hey y'all. New here and truthfully, scared shitless (no pun intended lol). Went to the Kaiser Permanente Urgent Care a week after I turned 50 with constipation and bloating that just felt "different". Three hours and one CT scan later the poor ER doc came in and with no preamble says "they found a large mass in your colon…
Need advice about surgery, and reconnection
Hello All I’m seeking insight and advise about having a colon resection, reversal, the ostomy bag and the side effects. Most particularly the side effects of having the surgical reversal (reconnecting your colon). I apologize if this is post contains a little too TMI…. I was diagnosed this past August with stage 3B…
Newly diagnosed rectal cx
I am posting for a friend who was just diagnosed on Friday with rectal cancer. she was diagnosed during a colonoscopy. She had a ct scan which was unremarkable. The doctor is advising her to have radiation first to shine the cancer than surgery. I would like to know questions for the oncologist. For example are there any…
Any more info out there ?
Last pet scan showed my dad's neurofibrama in his throat had increased FDG Uptake and thickening at the base of the tongue . He's had the neurofibrama for 20 years but now I saw something in a different section about weed causing HPV related throat cancer . My dad has also smoked weed for basically his whole life so this…
14 years since diagnosis
14 years ago today I was diagnosed with Appendix Cancer. I've been through multiple (8) major surgeries (3 since July, 2020, alone!), systemic chemo: intravenous, oral, and intraperitoneal. I had a temporary colostomy. I've been through a lot. It's been a hell of a rollercoaster ride, but I'm still kicking and enjoying…
No "BINGO" called yet
Hey guys..I am still here. It has been over a month since I had have the stroke like symtoms and Hawaii came to a halt.From everthing I have read, two months is average to survived this without treatment. They started me on steriods which I'll call the drug from hell. I didn't even recognize my own face .I have stopped all…
Colostomy and diet
Any suggestion? salads? The only fried food mom eats is fish

Colorectal Cancer

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