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Colorectal Cancer

Archives for May 2019

New here
Hi All Ive been lurking for a couple days and am so glad to have found you guys. I was diagnosed in July 2018with colon cancer.. Started chemo in August with the plan to have the 6 months of folfax oxiplatin etc. 6 mos came and went and I’m still getting the chemo every two weeks. My doctor has not discussed an end date…
FIT and Cologuard: Conflicting Results - CT Colonography Results
Hi! It was suggested that I start a new thread on this topic so that my post would not be lost. So glad I found this discussion board. History: I have had several bouts of IBS iover my adult life. Typical symtoms - bloating, occassional cramping, sometimes diarrhea and sometimes constipation, 'noisy' GI tract, etc. but…
Recurrence after almost 10 years NED - came back with a vengeance!
Hi, Well been a while since I have been on this board. My husband was diagnosed with stage II colon cancer back in Sept 2009. Had surgery and was NED ever since. Well during just a routine annual Xray guess its back in full force. They found liver mets and mets in the periitneal and also he has some ascites. He was felling…
Kayak On The Water
The profile pic I uploaded was from my first kayak trip today. Boy, can I tell my energy level has changed.. lol Muscle tone wasted away over the past few months but I paddled thru.. lol.. The pic shows a momma duck and her babies. They came right up to me.. such a beautiful day. I am so grateful for this “moment”...Hope…
Been lurking for 4 years....
I was diagnosed in June of 2015 (3 weeks before my son's wedding!) at Stage 4B with mets to lymph nodes, both lungs and one adrenal. Didn't tell my family until after the kids got back from their honeymoon. By that time, surgery was only a few days away. Had 12 rounds of Folfox with 5FU followed by 12 rounds of Avastin…
ran across this does anyone know of trials
https://www.cms.gov/medicare-coverage-database/details/nca-proposed-decision-memo.aspx?NCAId=291 it goes along with this article https://www.medicalnewstoday.com/articles/321716.php these are two articles on CAR t-cell therapy and how quickly the cms has proposed payment of trails.
Vinegar
I've heard so much about taking a tablespoon or two everyday for health benefits and wondered if anyone here has done it. I've been doing it for about a week but wondered if anyone else has done this. Kim
Ritalin?!
I had three rounds of Avastin, oxalyplatin & 2 day pack of 5-FU. I could not handle the extreme neuropathy symptoms I was having. Once said only thing to do was to take me off it. So then they changed the protocol to Avastin & Xeloda. I don’t know if it’s the xeloda, particularly, or the cumulative effect of what is now…
Happy Birthday Alice514
I hope you are having the best of days, and that this year will bring your nothing but good news, good times and lots and lots of love. Tru
Post takedown
My husband is recovering from an ileostomy takedown he had 1 week ago. So many questions...! We didn’t realize it would be this hard. Do the nearly constant trips to the bathroom ease up soon? It’s very painful for him and we’re wanting to know if this is normal from people that have experienced this. Thank you. Mary
CEA is up again, so frustrated
I just got a call from my doctor's office. They have all the results now from my last bloood test. My creatine is up which means my kidneys are getting worse, as I mentioned previously, my magnesium is low again, and my CEA has gone back up tp 55. It was 5.6 in March when I stopped chemo. I feel so defeated. It's so…
POST COLORECTAL TREATMENT
Hello to all CSN Members, I am in search of recommendations/suggestions that the community may be aware of with regard to discomfort from bowel movements as detailed below: Background: * Diagnosed with CR Cancer Stage III on Jan 4th 2018. CT Scan and follow-up biopsies taken during Colonscopy confirmed Low Grade…
practical advise before surgery
I'm the caregiver to my husband who was diagnosed last June with rectal cancer. Over the past year we've completed chemo and radiation. Just yesterday we finally received the surgery date. June 13th. I'd love some practical advise/suggestions on how to prepare. He will have a temporary bag. We live in a three story house,…
Have you guys heard of sulforaphane?
I was just poking around on the PubMed site (as I often do, I know, I should get a life) I happened across an article where they were testing how you could increase the anticancer activity of 5-FU by adding in sulforaphane, which is a naturally occurring compound in broccoli and other members of that family (but found up…
I'm ready to fight for my family.
I'm new to this site. Found out I had a problem on Valentine's Day of this year. Sigmoid colon cancer. What a slap in the face. Had resection surgery. That went well. My surgeon was amazed how quickly I recovered. 2 of 20 lymph nodes were positive. Mets to my liver. Everything else in there looks clean according to scan.…
Treatment starts on Friday - Info appreciated
Hi, I have been reading the topics for a few weeks. I was diagnosed on March 28th with rectal cancer, Stage 3, two lymph nodes are iffy, not sure of but they are assuming they are affected. I have been through tests for five weeks and have been told they can treat and get me through this as there are no other areas…
In Hopes It May Help Someone Else During Chemo
I am posting this in hopes that it may offer some relief to someone going thru treatment. I make no apologies for not being a supporter of chemo. Before I could have surgery, I had to do at least four rounds with Avastin to even be considered. I actually did five before surgery. I took several things that kept my blood…
My horse, my support animal
I just wanted to post something nice because things seem to be a little bit negative right now. On Saturday I went out to see my horse and give him his pill. I haven't been feeling well because in all the chemo and IVs for magnesium I managed to somehow totally forget that I need to have an IV for my parathyroid issue so…
Stage 2A to Stage 4
Hello all, Long story short, I had rectal cancer in 2016 received oxliplatin and radiation along with surgery to remove the mass. I am now 33 and my cancer has returned with a two inch met to my liver. My doctor initially decided to start me on the same oxliplatin and xeloda which was the regimen I was previously on. I…
Crooked Drug Companies
I recently posted about pharmecutical companies being concerned with profit only and doing anything to control the market. The link below is an article that made headlines this morning..need I say more. https://news.yahoo.com/u-states-sue-teva-19-other-drug-companies-135226843--finance.html
Just read this news
https://advancingthescience.mayo.edu/2016/12/29/drug-combo-stems-tumor-growth-in-lung-cancer/
"Mr. Bubbles" Is OUT
My grandson gifted my port with that name when it was put in, lol. Again, a much better name than what I had in mind. I had surgery to have it removed yesterday and I drove home to the mountains today. They knocked me out in the OR and used surgical glue so I wouldn't have to make an extra trip back to SC. I couldn't…
Manapart and Surgery
Just wanted to let you know that you have been thought of and prayed for all day today. I've been praying that all went well during surgery and hope you are able to let us know as soon as possible how you are doing and how everything went. I'm sure the doctor has briefed you in on his findings and has answered some of your…
Why A Good Doctor Is Important -MSK Giving Me Three Weeks Cycle
One of the things I consider myself very luck is that the staff - doctors, nurses, receptionists up and down the board, with one exception - have been absolutely great. More so when I see some of the things people go through here. Ditto for being lucky that I think I have avoided many of the major side issues. I mean other…
ileus after open abdominal surgery
Since my oncologist nurse blocked my cell phone and email from asking any further questions about my surgery thursday morning, I guess ill pose the question here about ileus. How long does it take for your digestive system to function normally. Its kind of unpredictable in my case since I have gastroparesis, so it doesnt…
Natural remedies to fight colorectal cancer
I recently had surgery to remove an ovarian mass only to find out during surgery that cancer had started in the colon and had spread to my ovaries. Everything was removed (hopefully), so I am very keen on building up my immune system and hopefully preventing anything from coming back in the colon. I have started taking…
removing colon tumor before chemo or after
My husband was diagnosed with colorectal cancer and liver mets in October last year. He received Folfox for 6 rounds and then folfox, oxi and avastin for 6 rounds. At first his pain was severe but he had a pain block done and was great for 3 months. Last week he had a ct scan and the liver is doing well but the colon tumor…
WAR
"Flags, medals, wigs, and prosthetics are not enough to convey the truth or mobolize human beings to dessent, resist, and demand the end of war, the cure for cancer, AIDS, and so many other mutant offspring of capatalism.The devil is not in the details, but in the abscence of details that would activate the people to…
Having a panic attack
I am sitting here waiting to meet my new oncologist. I should be happy that I am now at MSK where there might be more treatments to choose from but instead of being happy I am all of a sudden terrified.
new to the colon Cancer/Colectomy
My husband has been in the hospial since May 1st. We thought it was a bad case of food posioning. Surprise as the doctors recommended an extended Colectomy. Adenocarcinoma and awaiting comfermation on Lynch syndrome 2. We are awaiting pathology results. A Colectomy seems pretty radical. I was told about a J pouch. any…

Colorectal Cancer

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