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No Mo Chemo...For Now
Yesterday was a wierd day. I had formally been told that I might have to take the maintenance chemo indefinitely but my oncologist decided that since I was NED and all my numbers looked good, he didn't want to risk kidney damage that can be caused by the Cyramza. So, whoop whoop, I'm done for now. Unfortunately because I…
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Cold sensitivity
I had my third treatment of FOLFOX yesterday for stage IV colon cancer. The cold sensitivity wasn't too bad the first two times but this time it's much worse. Even room temperature liquids are causing a reaction. I'm order not to make my fingers and toes react, I have to be wrapped up like a mummy almost. Does anyone have…
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CT scan does not look good
I had colon tumor removal surgery 2 months ago. Because of surgery had no CT scan for total of 3-4 months. I had CT scan couple days ago after 2 chemos after surgery. Unfortunately tumors near to bile ducts on left and right lobe have grown. More seriously left lobe tm from 2.2 to 3.1cm With bile duct dilation. I was told…
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Short Bowel Syndrome
Does anyone else have this? They told me I'd have it now after the last sugery. I got a booklet that gave a bit of an outline and suggested things like eating more salt. Actually putting salt in orange juice or gatorade. Canned soups- full of sodium- are also supposed to be good for me. And processed meats, one of the…
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Gum mastic health benefit.
Another natural plant benefits. The resin of Pistacia lentiscus (L.) var. chia (Duham), an evergreen shrub belonging to the family Anacardiaceae and uniquely cultivated in southern Chios, is known as mastic. It has been used for more than 2500 years in traditional Greek medicine for treating several diseases such as…
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Interesting
This interesting new article (abstract only) finds no survival advantage for chemo over no chemo for stage 3: https://www.ncbi.nlm.nih.gov/pubmed/30253025 After adjustment for the competing risk of non-colorectal cancer death, there was no significant difference in recurrence between the 204 patients who received…
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rectal cancer
I had my rectum removed. I had stage 3. I was reattached no bag; I am having alot of pain were iI was reattached bowel movements are very inconsisten. I go 2 or 3 days and sometimes twice daily. any ideas.
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TCM, Immunotherapy, Exercise, O For 3 For Me - Radiation and Chemo Time
Have not logged in or posted in awhile. The title is pretty much the situation. Lymph nodes have been relatively stable/growing slowly this whole time. But in two months between scans the cancer is going crazy. Lungs had substantial increase in number and size. There are other suspect locations, including the liver. And…
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Aspirin
Just came across this and thought if might be of interest: https://www.cardiff.ac.uk/news/view/1299256-could-aspirin-paly-role-in-treatment-of-cancer
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Mixed reviews!?!?!?
Wow not exactly how I wish a doctor would describe my husbands mets. But it was the exact words the surgeon we saw used! I left in tears despite going in knowing that he would be told not surgical. Surprisigly she didn't rule it out yet, and wants to present his case to a different tumor board where the top liver surgeon…
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unexplained weight loss prior to diagnosis?
Hi everyone... Have any of you experienced unexpected weight loss prior to diagnosis? I was diagnosed with Stage III colon cancer waaaayy back in 2002! I have steadily lost weight over the last four months for a total of 22 pounds. Of course I am concerned about a possible met or recurrence. I would love you hear from you.…
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A Lot of Tears, Stress and a False Alarm
Hi all, Well, the tests all began on September 28th. I had my CEA blood work. It came back stable. I had a scope with my surgeon, it came back clear. Then I had the CT scan and it came back with suspicious findings in an area near my last recurrence. My Oncologist was immediately convinced it was an early recurrence and I…
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Wine and initial CRC risk
Raise your glasses (at least there is something we can be happy about): https://www.ncbi.nlm.nih.gov/pubmed/30247171 Neither light to moderate (<2 drinks/day; SRR=0.93, 95% CI: 0.80-1.08, I=69.2%) nor heavy (≥2 drinks/day; SRR=1.00, 95% CI: 0.86-1.16, I=39.9%) consumption of wine was associated statistically with CRC risk.…
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Not sure if this a setback or not *update with good news!*
my husband has been having severe gas pain after eating and Saturday it reallly got bad. I thought it was pancreatitis but his blood test was good. He had a ct scan in the Er here and they said he had bile duct leak, his surgeon at Sloan said he didn’t think so, however he never said what he thought it is. So we…
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Results not favourable
Sceduled appointements with my Onc and Rad Onc, and my results were not favourable. Back to the big city next week for scans. I find it interesting that, no matter how many times you play games in your head, imagining what your reaction will be if the Doctor has bad news, that nothing, absolutely nothing, prepares you for…
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Update for "Terrified"
I received the MRI report today and "there are no suspicious lesions". I am SO RELIEVED. Thank you all for being there for me. It was so helpful to come here and share my fears. Bless you all. I am now 5 years NED Love to all Kelley
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Once again seeking encouragement
Diagnosed in May 2017. 28 chemo/radiation treatments Summer 2017. Rectal removal and permanent colostomy surgery October 2017. Mets to liver, multiplying. Folfiri Spring 2018. Interrupted by broken hip early July of this year. Got some lab work done at my PCP and he sent me to the ER today to check for a blood clot. No…
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11 YEAR ANNIVERSARY
Tomorrow's a busy day for me so I'll leave this here now, 11 years have past since I wrecked my wife's birthday fun with a diagnosis neither of us really saw coming. Tomorrow I'll put her ashes in the columbarium at the cemetery, toast her birthday with some of the kids, and move on with my life. I'm four years NED from…
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weight loss big time
Good Morning, I'm new here. My husband has stage iii T4 N2 M0 rectal cancer. Diagnosed in June. He started chemo in August. He's getting ready for his third treatment on Friday. He's on Xeloda /Capecitabine. Over the last year, he had lost weight (probably about 20sh pounds). Since he's started chemo he has lost about…
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Questions on behalf of my mother
My mother has stage 4 which has spread to the liver. She did 4 or 5 treatments with Folfiri but the tumors have grown/multiplied and they have switched her over to Folfox and Avastin. She is experiencing first bite syndrome and she can't hold anything cold - her fingers pain her when she does. I understand that these are…
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Sauerkraut juice.
Packed With Probiotics Sauerkraut juice, due to the fermentation process, is rich in natural lactic acid, which inhibits the growth of undesired intestinal bacteria and encourages the growth of good bacteria. This makes sauerkraut juice an excellent choice for treating sluggish bowels and poor digestion. Drinking this tart…
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Less strength
Have any of you with recurrences felt defeated? I didn't enjoy the first go at chemo, but I felt like I would do it and then be okay. I had my first round for recurrence and just feel so defeated this time. If it weren't for the energy of my kitten, I think I might be sad a lot.
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Feeling defeated scared desperate and looking for opinions pls
Hi again , So I have Been having weird symptoms that could be a number of things Its mainly being bloated and having dirrehea , Its not every day but over the last month I dont seem to be able to go more Than 3-4 days of having normal stools and then I'm normally getting either liquid dirrehea, looser stools and/ or poop…
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Folfox vs. Folfiri
I have completed 6 cycles of FolFox and have neuropathy in fingers that I am afraid may be permanent, I am hoping to switch to FolFiri--is there any diffference in their efficacy? I went for seond opinion at Mayo and the rather cold hearted oncologist told me he steers away from Oxiliplatin , says it is what the "older"…
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Infusaport placement
Well I have had 2 ports placed on the Right side and both have gotten infected after about 6 weeks, I am dut to have a third port inserted but this time on left side. Has anyone had any bad effects from the port on the left side? My inner nervous Nelly dreads the thought of it so close to my heart. Any info/thoughts…
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Abrub follow-up
New growth, but essentially status quo I’m just back from Sloan Kettering and my latest MRI and dr’s appt. While the MRI has shown some definite tumor growth (we don’t have the full report yet with exact measurements) my surgeon is not overly concerned. We do have to watch it, but he believes it to be confined by scar…
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Lung mets, wehat about the other lung?
So I have four mets in my left lung but nothing in my right lung. Does anyone know the odds of having it transfer to the other lung at some point? Or does it usually just stay in one? Thanks! I'm leaving it to those who are far bettr at research than I am. Jan
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Inquiry
Hi. This is my first time posting on any discussion board. My father is suffering from colon cancer stage 4 ( it has effected the liver). i want to know that after first chemotherapy can they determine through tests whether the chemotherapy worked or not. if yes then through what test ( blood test, biopsy etc). secondly,…
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Follow up time
hi everyone i hope everyone is doing great this group and people here are real inspiration i joined this group when i was severly depressed as my Father had a tumor in colon which was removed in 2017 since then i have been in touch this time he is supposed to get his annual colonoscopy in October i request eveyone to pray…
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Nutrients deficiency question.
Hi, I have some question to people with similar problems. Did your oncologyst check your nutrient deficiency during routine blood test. To our big surprice oncologyst in John Hopkins (Maryland, Baltimore) where my sister get her treatment don't chek it. She was lack of vitamin D, less than 13 ng/ml and they never checked…