Colorectal Cancer
Discussion List
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CSN push for lowering colonoscopy screening to 45
https://abcnews.go.com/Health/american-cancer-society-guidelines-colonoscopy-screenings/story?id=55530367 With so many younger folks being diagnosed, this would be a good start. Personally, I think 40 would be a good age. Tru
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Anybody heard of this?
I'm wondering if this would help with the side effects of immunotherapy chemos. I've had some pretty bad side effects of the immunotherapy causing inflammation in my colon last September when I got sepsis from it. And the last time it didn't go after my colon, it went after my uterus and has cause all kinds of…
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What happens next? New Stage IV and questions
Hello there, this is all brand new to me and I needed to reach out in hopes for some kind of understanding about the process. I just received news that sigmoid resection came back as T4aN2bM1 (to omentum) My 35 year old mind is reeling right now, first oncology appt is next week. Are there any questions to be sure and ask?…
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Recent articles (updated)
Once again, from the "for what it's worth" department, here are recent articles that might be interesting to some: Frequent follow up may not matter: In this randomized clinical trial that included 2509 patients with stage II or III colorectal cancer, follow-up testing with computed tomography and serum carcinoembryonic…
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Just returned from rectosigmoid surgeon appt..
Ok, just got back from surgeon appointment. I’m not sure how I should feel about this news.....here goes: -CT still has to be done tomorrow and pathology report still not back, however.... -surgeon tentatively puts this at stage 3. He says T3, N? (Although he’s not a radiologist he looked up hubbys scans and said he sees…
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ASCO meeting abstracts 2018
ASCO (American Society of Clinical Oncology) annual meeting is next week. The abstracts are searchable. More info for colon and rectal cancers, and a few for anal cancer.
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Appointment with surgeon on Tuesday...what to ask?
Hi everyone, My husband has been diagnosed with rectosigmoid cancer. He has a 6cm mass about 10-11 cm from the anal verge. By the time we meet with the surgeon, my husband’s MRI for staging will have been completed, as well as the biopsies from the scope. Those of you with experience, can you please tell me what questions…
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New diagnosis, 35 year old Just had sigmoid colon resection, waiting on pathology
I was diagnosed May 2018 with sigmoid mass, on colonoscopy, no evidence of metastasis on CT scan. I’m day 6 recovering from partial colon resection, and an additional mass in omentum and nodule on peritoneum were also removed. Surgeon says chemo will likely follow. My energy is struggling to return-is this common? I am 35…
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Have your views on death and dying changed?
I'm curious because mine certainly have. If someone or something is suffering I am much more for a quick death than a long drawn out, miserable death. We've lost two people in the past week, on the same day, and I realized how much my views have changed. I no longer want to have someone hang in there as long as possible…
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Lonsurf
My husband was diagnosed with stage stage 4 signet ring cell colon cancer January of 2018, he has had chemo folfox along with other chemo meds. His cancer has spread to the lymph nodes around his spine and his neck area. He started lonsurf a few days ago . He has done nothing but sleep and he has no appetite. The Dr said…
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Introduction
Hello Everyone! I finally officially joined after lurking here for almost a year. I've learned alot from reading different folks' posts and questions that have been asked. i see a recent post that I can add my $.02 to. So maybe I can help someone out with their decison-making. Hope everyone has a great weekend - whereever…
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Fatigue after liver resection
For those who had liver resection, how long did your fatigue last? I have to push myself to do every little physical thing. Butt.
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Just diagnosed
Hello, I just had a colonoscopy yesterday and was told I have rectal caner. They found a 8cm mass, but said they found it early. I have a follow up visit scheudled for next Tuesday to go over the biopsy and treatment options. Obvioulsy my mind is going crazy and I cant stop doing research online about treatment and…
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Newly Diagnosed 2018
Hi All! I'm a 43 year old mother of 2 newly diagnosed with colon cancer. It all started on the 7th when I had my colonoscopy. I managed to stay awake and saw the ugly that was hidden in my upper right quadrant of my large intestine. Afterwards, my doctor told me it was cancerous. My the 8th I informed my managers and…
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liver resection, pump, systematic chemo?
Hello, I have been reading your posts for months but it is actually my first post. I got diagnosed with stage 4 back in Fall. I had radiation on my scupular and removal of ovaries because cancer went to my right one. I had 12 Folfoxs. Now I am 3 weeks past a liver resection and installation of the pump. They think they…
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Laz’ 5 year Anniversary!
Dear Friends, Tomorrow will be the 5 year anniversary of my diagnosis. Clearly remember the dreaded phone call I received from my doctor in my office’s bathroom. I kind of knew, but was still shocked and went back to work. 10 months of treatment: radiation, chemo, surgery, more chemo. After I felt better divorce and hit…
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Liver Resection Question
Hello all, I am new to this forum and have enjoyed reading what people had to say. While wanting to participate, until now I’ve had no questions and little feedback to offer that hasn’t been offered already. Here’s my question: Has anyone been diagnosed with stage 4 colon cancer and gotten to the point where resection if…
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Radioembolizatiom?
I have Stage 4 rectal cancer that has metaticized to lung and liver. I am terminal but taking chemo (5FU) to push things down the road a bit. Life expecrancy currently is in the 3-6 month range. My oncologist and radiologist want me to have radioembolization since most of my cancer is in the liver and I haven't yet decided…
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The Journey Begins
Hey Everyone. I want to thank all of you for your help and encouragement. Just took my Chemo (Xeloda) and my journey begins. What were some of your first week experiences taking your Chemo?
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No systemic chemo
thats what the oncologist told my husband today. So after reading the pathology report there were 3 tumors, one was ablated because of location, one was not a tumor but leftover fluids from his last resection, and the third ( I didn’t know about) but it was 95% necrotic and encapsulated. So the dr thinks the 12 rounds he…
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Severe pelvic pain, nerve damage issues from rectal cancer
My mum is still battling Squamous cell cancer of the schincter muscel rectal, she has had a full removal and hysterectomy, started with chemo radiation to shrink no luck, so all was removed. chemo & radiation didnt work as it travelled to nearby lymph nodes and lung metasis. however currently being treated with nivumolab…
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My husband will start taking Lonsurf.
Folfori is not working anymore and since they removed his port Lonsurf is next in line. He will start Monday. Anyone have experience with this treatment? Also, Dr. upped his bloodthinner due to all the bloodclots but he is still swollen. Sure hope something gives, he sure needs it!
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A reason to hit the gym?
A new study shows that loss of muscle mass is significantly related to mortality in stage I to III colorectal cancer. (see also, weight loss and mortality, https://csn.cancer.org/node/311659 ) https://onlinelibrary.wiley.com/doi/full/10.1002/jcsm.12305 In this large population‐based cohort study, we demonstrated that…
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Just joined, wanted to get some firsthand feedback
Nice to meet you all! First and foremost, I'm just really thankful a forum like this exists. I was pretty certain it was, but I wasn't certain, if that makes any sense. I've never searched for a forum for cancer survivors, after all. Although, I'm not sure why I hadn't. So, a bit of history. I just turned 30 last month,…
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Vitamin D and its relationship to calcium
I have been re-researching my supplement regimine, and I have come across a troubling issue about the relationship of calcium to vitamin D. It appears that calcium supplements may counter the positive effects of vitamin D. I have been taking a calcium supplement, but as of now will discountiue it. I am hoping someone else…
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Kombucha to help your belly!
I just wanted to share my experience in the hope it may help others on this site. As as many of you know, Chemo wrecks havoc on your immune system, and your GI system, stomach, intestines, colon etc. I have been drinking Kombucha for a few months now, and it definitely has helped me maintain a more normal bathroom routine.…
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Chemo, what to eat and what not to eat?
Being the research guy I am, I've checked out allot of sites regarding food and chemo. I'll be taking pills by the way. Can any of you pass on some of your food/drink experiences? Good and bad! Like... definately eat this or stay away from that! Thanks guys!
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PolyPEPI1018 trial (cancer vaccine)
This is an immunotherapy trial for Tumor Infiltrating Lymphocytes targetting common CRC cancer genes. My guess is that this is follow-on work from NCI. This could be incredibly exciting stuff as this could cure common KRAS mutations in CRC. My guess is that it could cure other types of cancer as well with these mutations.…
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Potatoes juice.
Another interesting information. Phytochemicals & Antioxidants in Potato Juice. http://www.thejuicenut.com/potato_juice_the_juice_nut.aspx During World War I, a group of German soldiers, near starvation, were forced to live on raw potatoes. The soldiers with gastric disorders were relieved and cured. After the war, Dr. J.…
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Newbie here. A few questions
Hey Everyone, Newbie here. Like most of you, I never thought this would be a forum I would be joining, but ... here I am. I'm sure I will be inundating you guys with all kinds of questions and I'm glad an outlet like this exists for us. Thank you ACS! Personally, I am in good spirits considering, and trying to stay…