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Anyone have experience with irinotecan
hi, my husband has bowel cancer 2009. then thyroid cancer in 2012. Around same time they found spots on his lungs. So he has secondary lung cancer (bowel mets ) treated with avastin and capecitibine. Then he developed a tumour in his right arm (bone) and rib. The chemo worked on Lung tumours but not on bone. So. Now he has…
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Newly Diagnosed Stage III
I was recently diagnosed with Stage III colon cancer (age 51). No family history at all. See the cancer centre on Oct. 11 to discuss chemo (1 positive lymph node). Arrived on this site after reviewing many depressing statistics. I'm much more optomistic after reading some of the stories especially those who are longterm…
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Abrub Surgery Update
Surgery lasted 10 1/2 hrs yesterday. 3 surgeons working their specialities. Lots of tiny dissections to carefully remove the tumor without violating nearby organs. The 5 hours in the PACU before being placed in a room at 2:30 in the morning. Word has it that surgery was successful, but that I will need the IntraPeritoneal…
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Recently diagnosed with Stage 3 Colon Cancer
Hi! I am new here and about to start chemo treatments but have not had much time to do any homework on the subject. I am seeking second opions but have been instructed to start treatment and wait till second cycle and scans to meet for second opinion. I was admitted to the hospital on 8/31/16 with severe abdominal pain. I…
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Stage 3 Treatment-Fistula
My 38 year old sister was diagnosed with Stage 3, Rectal Cancer last week. The tumor is rather large, and she has 2 swollen lymph nodes that were detected near the rectal area during the MRI. Also she has a fistula and partial blockage. We met with the Oncologist, who is at our local Cancer Center, and he recommended…
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Weight Loss
I am new to this site. My 38 year old sister was just diagnosed last week with Rectal Cancer, Stage 3. I am very concerned about her weight loss. She lost over 20 lbs within the last few months, and she was skinny before she lost the 20. She looks so frail. Did anyone else experience a substantial weight loss prior to…
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Folfiri and avastin chemo
Hello Group - I have recently been diagnosed with adenocarcinoma colorectal cancer with several mets to my liver. Will be starting folfiri and avastin chemo. Would anyone who has had folfiri and/or avastin, please post with their treatment, side effects, or suggestions. Thank you so much. Well wishes for everyone. Bellen
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New Allergies Coming Up?
It's hard not to attribute anything new that hapens that makes no sense to the cancer and chemo and radiation and all that happy crappy. I have a new allergy that I'm still trying to figure out what the cause of it is and I'm just wondering if this could be something that can happen after all the poisons we get pumped…
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Rectal cancer survivor, bowel management problems. Does it get better?
You Sep 22 * Delete Hi, My name is George. I was diagnosed with stage 3 rectal cancer 6/15. Since then had chemo/radiation and then my LAR surgery in 10/15 then 4 mos of chemo followed by my ileostomy reversal 5/16. Since then I have had a hard time trying to manage my bowels, i.e. 40-50 BM daily then down to the 20s and…
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Any help for 5FU reflux feeling?
First, hello to all. I am new to CSN but have been reading posts for a week or so. The care and support between members is wonderful. I'm happy to have found this site, to give and receive what help I can. I have a take-home pump that dispenses fluorouracil / 5FU over 46 hours. The drug causes a reflux-like feeling of…
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Stage 4 Metastatic Colon Cancer
My husband was diagnosed with stage 4 metastatic colon cancer that spread to his liver and abdominal lymph nodes. A week later he began chemo therapy. Oxaliplatin ever 3 weeks and Xaloda for 2 weeks on and one week off. After a few days, he had a horrible reaction to the Xaloda. He was having severe chest pains, so they…
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Surgery In A Few Hours On Lung
So will be a little scarce for a bit. Some "Ah ^&^# not again" happening right now. Just getting ready to get my butt out of bed ASAP and doing those wonderful MSK laps to get released quickly. (You all taught me that the last time through )
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New here- advice on managing chemo & it's my birthday today
Hi all: Today is my 46th birthday and I am trying to recover from the side effects of my first chemo treatment. I had my port put in on Wednesday and my first treatment on Friday with a two hour Oxalalipin (spelling??) infusion onsite. Then I went home with a 5FU (spelling??) pump for 46 hours. The Oxa side effects of the…
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Appendix Cancer
Dear Friends, I have always gladly made myself available to help others, especially those with appendix cancer. However, for the next few weeks at least, I won't be answering emails and such, as I have to take care of myself. I've had a recurrence after 9 years of NED, and am headed to Sloan Kettering for more surgery in a…
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Dehydration with Ostomy
My issue isn't a dramatic one but it is an issue for me and I don't know what to do about it. I'm not good at googling things and can never seem to get the information I'm looking for. So I have the illeostomy and have dehydration because of it. I drink all day and drink so much that I end up going to the bathroom over and…
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26 year old daughter just confirmed colon cancer in liver, lungs, etc
I am so numb - don't know what to do or think. How do I handle this? What is the next step?
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Isolated
I just completed the 7th of 12 treatments. I am getting the Fluorouracil, Klor-Con M20, Leucovorin Calcium, and Oxaliplatin. The neuropathy associated with these makes me feel very isolated. These last 3 days have been horrible. All I can do is cry. I thought today was going to be better but then my daughter got up nagging…
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My CT scan results
So I got my results today from the ct scan a couple of weeks ago. Not bad news but not good news, either. I wish they'd say I'm NED or that they can find no signs or something more definitive than what they say. It never seems to be a 100% answer and its hard to keep getting answers that are non answers. It's much better…
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22 year old daughter just diagnosed with Stage IV CRC
My wife and i are beside ourselves. Our 22 year old daughter with Crohn's just had her colon removed (small tumor on colon during biopsy) and now has an ostomy bag which she is fine with. During surgery they found additional cancer on her peritoneum. Everything I read scares me immensely about outcome. In any event, they…
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Keytruda
Has anyone else had experience with taking Keytruda, immune therapy?
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Long term effects of treatment
I think this subject might be of some interest to those who are currently in treatment, and those who are out of treatment will probably relate to some, if not all of it. My last radiation treatment was October, 2007, and my last chemo (Folfox) treatment was April, 2008. I've had four to seven surgical procedures; some of…
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Ileostomy Reversal Question
Hello Evryone, Hubby is having Ileostomy Reversal tomorrow, He is on liquid diet today just like the prep for colonoscopy and LAR. We forgot to ask the doctor,.. Why he need to be on 24 liquid when he does not use colon since he has ileostomy. Hope anyone share the answer.. Thank you
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For some Sunday reading
Some information regarding TCM and Cancer in a fairly easy to read compilation: http://www.itmonline.org/arts/gicancer.htm That is only one of the thousands of websites one can access through a quick "Google" of the topic. I try to stay with the "dot org", "dot edu", and similar based sites, rather than the "dot com"…
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Stage 4 colon cancer with mets to the liver and now new anal cancer diagnosis
Hello everyone, I'm new to this forum and wanted to reach out to anyone with any words of encouragement or just to talk because I'm a mess right now. Here is a quick rundown on my fight. I was diagnosed with stage 4 colon cancer in august of 2013 and had a colon resection in October of 2013. In November of 2013 I started…
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Another ostomy question
I managed to avoid what felt like a blockage that was starting a few days ago. I had all the signs but instead of just drinking lots to try to flush it out I chose to eat things that were harder to try to push it out. It went away but according to the internet this is not an advisable way to deal with it. Anyway, it got me…
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New here....
Hi Everyone, I am saddened to be here but grateful to seek support from others in the same tragic situation. My 84 year old father (excellent health other than cancer!) has stage 4 colon cancer wtih mets to the liver. He was told over 10 years ago that he had a precancerous tumor in his ascending colon and dad refused to…
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Sharing
Hello fellow fighters. I though I'd drop in and share a couple things.., In my onc's recommendation I read "The Obesity Code." This was a very interesting view on fighting weight gain. I think it also ties into fighting against cancer recurrence too. Has anyone else read this book? Also, there is a telethon on tonight to…
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Birthday wishes for tomorrow janderson1964 - Jeff
Thinking of you, my friend. Knowing that you are at a tough part of your journey and hoping that you get to celebrate your birthday comfortably tomorrow. Wish I could post one of those fun birthday smilies to brighten up your day, but sadly, CSN hasn't fixed their side of the problem. Birthday thoughts and wishes. SUE
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New to it all......
Hi everyone. I joined a few days ago after reading all the posts. I want to tell you how thankful I am that I found this site and I am grateful that all of you (those still with us and those that are now gone) have been so candid and willing to share your personal journeys. Thank you!! I'm not quite ready to share…
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Question re Surgery
I'm trying to remember if I read somewhere here about some supplement or OTC med to take shortly after surgery to cut down inflammation. As I'm heading in for my 4th major abdominal surgery, I have more concerns than ever about adhesions and inflammation. Was it an acid reducer or something else? Thanks in advance for any…