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Jason's CT Scan results....not good
Well, Jason went to get his chemo today, & to get the results of his CT Scan from the Oncologist. The CT showed that the large tumor on/in his colon has shrunk by 50%, great news, BUT he was also told that the ONE met in his liver is now 4 because the chemo combination he has been on obviously isn't working for the liver…
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Gamechanger from ASCO conference:Stop using calcium and magnesium with oxaliplatin
www.medscape.com/viewarticle/805232 Something you might want to discuss with onc perhaps PS: when i was doing oxi i don't recall knowing about calcium/mag and i can't remember at what point the neuropathy kicked in
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What A Grandmother Is!!
Hello My Friends, First, I wanted to let you all know that the results of JBG's scan were good. I spoke with her today & she said it shows shrinkage in the lung mets. She's having a great deal of trouble with her feet(redness & swelling) relative to "Hand & Foot Syndrome" caused by the Xeloda so her dosage has been reduced…
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light at the end of the tunnel
Hi there, I've been looking at posts for a while and decided it was a good time to share my story. I am 36 on dec 2011 I was diagnosed with metastatic (liver) colon cancer. With no symptoms in my normal life, suddenly I had high fever, went to a hospital and looking for answers doctors performed an ultrasound scan and saw…
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Need ideas on managing Dad's fecal incontinence - Stage IV Metastatic - Sigmoid Colon
Dad is not mobile having spent 3 weeks in the hospital for pneumonia contracted during initial radiation treatment (9 days). He can use a walker for about 20 feet - to get from the house to the car to the Dr's office. Unable to know when he has to make a bowel movement and there's alot of pain/cramping. He wears Depends…
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Tomorrow
Well.......tomorrow is my CT scan. I was diagnosed in July 09; stage 4 with mets to liver. Liver Resection in April 2010.......so far so good. I am a nervous wreck and it will be a long day. I pray that this awful disease will be cured one day and that people will not have to be faced with the problems linked with it. This…
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From NED to terminal in one evening
Have had some ongoing symptoms of back pain that weren't settling in their usually way so went back in last Thursday for an mri to have a look and my cancer has returned with a vengeance. There is a mass in front of the sacrum invading into theneural tube where the spinal cord passes and pressing onnerves there. Also…
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Good PET
Good news on my PET scan last Wed. I'll recap a little for the new folks. I've had stage IVb colon CA met to the liver. a lymph node close to the aorta and a lymph node close to the tracheal branch (carini) since Sep 2008. I went through 3 1/2 yrs of Folfiri/5FU, 6 mo of Folfox/5FU (that didn't work well). I was doing fine…
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rectal pain after excision
my tumor base was excised 3 and one half weeks ago about 2 cm up from the rectal verge just opposite the prostate. The excision was about the size of a 25 cent piece or 50 cent piece or in between, and the surgeon says he went all the way through the wall and stitched the hole with disolvable stitches. Well it's been very…
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ASCO highlights, EXERCISE proven again
Long-Term Tamoxifen Benefit for Breast Cancer Confirmed Anna Azvolinsky, PhD Women diagnosed with estrogen-receptor (ER)-positive breast cancer who took tamoxifen for 10 years as adjuvant therapy had lower risk of late recurrence and lower risk of death compared to those who took the drug for 5 years. These results…
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Radio frequency ablation on lung metastasis
I have one tumor 20mm in one lung and three in the otherNay has anyone had RFA. iOslo, what size were tumours and what location? I live in Australia and am looking at best place to have done if posBile. I'm hoping to go to the USA end of year to visit son too? thanks, any info,appreciated Regards. Sue
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Financial Assitance for Co-Pays for Chemotheraphy
Does anyone know of any valid, current programs to help with co-pay assistance for chemotherapy? I have gone through the following: CancerCare Co-pay Assistance Program - out of money Drug Company (for 5FU) Patient Assistance Program - they referred me to Partnership for RX assistance - they referred me to Community Health…
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JEN2012 - Sundance and Big Billy Story Still Under Consideration From Coping Magazine:) *****UPDATE
Hiya, Jen:) What's happenin', baby! I hope you got your ears on this morning, LOL! Well, Memorial Day came and went.....and I had not heard back from Coping magazine....they had said it would be about 8-weeks before I heard something. I was going through my emails and found the one she sent me stating this. We were 'one'…
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No Avistan
I just had my 13th folfox tx this weekend. I have been doing very well on it, liver mets shrinking and I seem to be going in the right direction. This weekend I didn't have Avastin because I have having my colostomy reversed two weeks from tomorrow. I am worried about being off Avistan for a period of time (four weeks…
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Why erbitux or vectibix may stop working and possible counter measure
fromongoing ASCO conference,this might prove effective http://ecancer.org/news/4107-some-patients-with-treatment-resistant-colorectal-cancers-may-have-a-new-option.php and from same site,same conference, http://ecancer.org/news/4116-asc0-2013--cetuximab-superior-to-bevacizumab-for-advanced-colorectal-cancer.php
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Hi mates sorry for de delay ! It is FRIDAY here any interesting plan for the weekend?
Sorry for the delay but it's tax payment time here so I been doing my mother, my wife and my tax Declaration yesterday gathered with tax advisor! So very tired ....and depressed ! LOL. Well now I'm resiting watching Nadal in Roland Garros and tomorrow probably will meet my whole family for a paella in my sister house at…
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What should I expect? - FolFuri, Irinotecan + Avastin
It took 4 or 5 days for me to come to grips with with the terrible results of PET scan. Well, it's official... I remain inoperable. CEA climbed from 4 to 21 in a few months, one tumor in the liver grew, the others remain the same.... but the spread to the pelvic area and bones continues. a few spots on the acetabulum,…
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Folfox Side effects?
I am wondering and asking who had side effects with folfox 5fu. I am embarking on this wonderful journey of 12 rounds starting June 10th. I just got my Port in. I have a ileostomy and im 27. If you can please share with me what to expect. I would rather hear from my fellow Warriors that actually get blasted than my nurses,…
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Folfox Side effects?
I am wondering and asking who had side effects with folfox 5fu. I am embarking on this wonderful journey of 12 rounds starting June 10th. I just got my Port in. I have a ileostomy and im 27. If you can please share with me what to expect. I would rather hear from my fellow Warriors that actually get blasted than my nurses,…
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Suggestions for doctor at Dana Farber/Brigham & Women's ??
My cousin was diagnosed with colorectal cancer last September and has been receiving treatment locally in Rhode Island. She has had a recurrence and is seeking an opinion in the Boston area. Can anyone recommend an oncologist that they have had a good experience with or know is well known? A little background info...my…
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Update on Jason.....mixed CT Scan results
Hey all, I haven't been on here in a while. I had family members from 2 states come in, so needless to say I haven't had a lot of time to do much. Jason & I just got home from the hospital, he had to go to the ER Wednesday night with severe abdominal pain which turned out to be a partial blockage, which has since resolved…