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One year ago today
I haven't really had time to post much in a while but thought I'd give you an update on my daughter's situation. For those who don't know me, this is the story: my daughter (my only child) was diagnosed Oct. 10, 2011 with stage IV colon cancer with multiple tumors in her liver. Age 32. Nobody has really said how many…
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good scans
i had a ct & mri oct 8. i received very good news. i have completed 6 tx of folfiri & avastin. the cancer in the liver is gone! the 2 abd cancer tumors have decreased. one was 3.4 cm x 1.6 cm & is now 1.6 x .6 cm. the other was 1.7 & is now .7cm the peritoneal tumors have significantly decreased in size. the rt ovary…
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Cancer hero's
I haven't started a new post in a while but there are 2 individuals on here who have really been on my mind. Not that everyone on here isn't on my mind and in my prayers but these two people have really inspired me. It is hard to inspire me these days after fighting for 7 years. Before I was diagnosed I thought all cancer…
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New scans not good started Zaltrap today
My newest scans (Oct 8th) were not good again...they show new tumors to the lungs and they are getting bigger. There were also new tumors to the liver and that upset me because the old tumors in the liver have been stable for 3 years and now they are active again. There is a large mass in the prostate that wasn't there in…
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Total Colon removal but NO colon Cancer
I am writing here because I can't seem to find another board to discuss my situation. I first off will say, I do NOT have colon cancer or any other cancer. Praises. My colon doesn't work. And has never worked. I've been dealing with laxatives since I was 21. I'm now 43. So I can't go to the bathroom at all, unless I use…
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Facebook
Following Brenda's lead, I'm posting my FB and email information here. My email is revpoulsen@gmail.com and Facebook is Ray Poulsen. I've set my friends list to be hidden, so your contact info will not be shared with others. Ray/Doc
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Radiation burn
It's been over two years since I finished radiation but recently the radiation burn in my pelvis has flared up. I've been using calmoseptin, triple anti-biotic ointment and a medicated talc on it but not getting much relief. Has anyone else experienced burn flare up this long after radiation, if so what have you used to…
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Growth in Lung Mets - help please
Dear Friends, I have been checking the board regularly and keep so many of you in my thoughts and prayers daily. **** has now been at the fight for the past almost 4 years (January will make 4 years). After he was clear awhile (June 2010 - January 2011) he got multiple lung mets. Those have been shrinking or stable but now…
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Any little things that may help . . .
Cancer is just so . . . illogical! (Being a Trekker and a bit OCD, I find that extremely infuriating.) Why does a certain chemo work well for some and not for all, if they have the same type of cancer? Why do some have little, if any, side effects with treatments and others have severe reactions? There is so little out…
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Dear Friends
Dear Friends, As seems to occur, here on the board we are once again having a flurry of less than good news for many of our members. I would like to suggest that on Sunday October 14 at 4pm Eastern time we all take a few moments to collectively give prayers, good vibes or best wishes to those here in need. I feel that our…
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new to Colorectal cancer, any advise?
I found out almost 2 months ago that i have colorectal cancer and have been going to test after test after scan after scan, having both good and bad news. Bad being that they found 4 large dark masses in my liver, but good because they ended up being begning. bad because they also found a spot in my lungs. now i am playing…
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Once again surgery is CANCELLED *Chemo Update*
On further test reviews it is decided I am to do chemo first, and maybe down the road surgery. It is what it is. Winter Marie
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Mother recently diagnosed 2
Sorry in advance for short hand spelling am using my phone to write this. Im sitting here at the cross with my nan (was late getting here) so i never got to see mom before she went... She went in all by herself. Didnt want my nan to go with her. Shes goin in to get radiation started and to get a permanent cvc (i believe…
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Crazy/Frequent bowel movements after ileostomy reversal
I just recently had a temporary ileostomy reversal and have 10-20 bowel movements in a day and was wondering how did people control the same.I am taking metamucil twice a day and imodium as needed but does not seem to help much. My surgery was done 3 weeks back and was diagnosed with stage 2 rectal cancer and had…
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Chance of recurrence
I was diagnosed and treated with stage 2 T3 rectal cancer and was wondering what are the chances/percentage of recurrence of the cancer either in the rectum or somewhere else like liver, lungs etc.
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Follow up care -Stage II rectal cancer
Hello all, I was diagnosed with stage 2 T3 rectal cancer back in January of this year and since then have undergone chemo and radiation along with 3 surgeries to remove the tumor, ileostomy and then reversal. I wanted to know what is the exact follow up care that anyone with the above staging is receiving every 3, 6 months…
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Post-Surgery Questions
Dear All, My father (age 70) was diagnosed with Stage 4 colon cancer in April. He did radiation and chemo, then surgery. His surgery was September 14th. Everything went well. He got an ileostomy that can be reversed in a few months. He was home from the hospital in 5 days. Since then, he's had some problems that I am…
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Good news -- and differing treatments
Haven't posted much lately, but pop in to keep up with everyone when I can. Wanted to share some good news -- I've had 4 scans since dx in February, and all have shown improvement, and CEA has dropped from 44 to 1, and stayed in that range for months. Which is nice for a stage IV, terminal dx. Scan results last week showed…
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Confused and crushed caregiver
Hi everyone Apologies for a very long first post, but after being a lurker here since august I've reached a point in my caregiver situation where I am just lost. I realise there is a caregiver forum here as well, but this board seems more active and I could use some advice from both caregivers and patiens. Backstory: I am…
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Histology and progress
Thought I'd pst a brief update now it is three weeks since my hind quarter amputatation and pelvic clearance for my recurrence of rectal cancer. Histology has come back showing they got clear margins which is great as would have been all for nothing without that. Will start scanning in three months and will be probably…
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mother recently diagnosed...
hello to whomever decides to read this... i just needed a place where i could put down my... every thought. I can't really believe that life would throw such a hurdle at us. my step dad passed away of lung cancer in aug 2002. My grandpy passed away of prostate cancer in feb 2007, and my father passed away from gillian bar…
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From bad to worse (Brain tumor now)
Sorry I havent been posting up much or in a while but my plate has been full and not getting much computer time. Anyway as some may recall I have been fighting lung mets and have been going to MD Anderson to have them surgically removed (so they said) left lung was done fine and after a 6weeks wait I returned back to have…
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New clinical trial-Ziv-aflibencept
My sister was diagnosed with stage IV. Mets to the liver and lungs in Nov. 2010. They sarted her on the clinical trial ziv-aflibencept. Have any of you been offered this? Farm Girl
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To: NJC
Was wondering if you have been on the boards lately.?? If you don't mind, I have a question.....again. Thanks.
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Help with dealing with post surgery survivor
My mom survived colorectal cancer surgery. She is 83. She is able to get around with a walker and cane, and she has a bag My Dad lives with her. He is trying do hard to be helpful, but she is rejecting his every effort, and closing him out. He is losing his ability to maintain his compassion. She yells at him and us very…
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Daughter showed up on my doorstep this Afternoon from Ohio
She came for my Monday surgery, so will be leaving Tuesday, she already had the tickets before my surgery was cancelled and changed for Thursday. How exciting! Winter Marie
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Clinical Trial -- regorafenib - anyone on this? or have info?
If my husband can stay healthy for the next 10 days, he can start this trial. Hoping for some good results after 7 months without chemo, progression to lungs, failed clinical trial, infections, small bowel partial obstruction -- a real rollercoaster. Despite all that he still has a great attitude. Would be great if he…
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Ostomy - what type are we dealing with???
Hey all, quick question, could anyone shed some light on exactly which type of osteomy Rick has now? I thought that they all would have a round red stoma over which we place the bags. But I was rather surprised to find that the higher one closest to his left chest looks like a bullet hole with poo. Nobody told us about…
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HELP...Moving Pain
I need some help desperately. I have been experiencing pain that seems to be rotating around my body affecting hands, knees, ankles and shoulders. Some days i can't write with a pen and many ays it is hard to even type. The Oncologist has seemingly indicated that he has not seen this before. They issued me Hydrocodone…
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iv vit c good review from lef fyi
http://www.lef.org/news/LefDailyNews.htm?NewsID=16266&Section=Vitamins&utm_source=DailyHealthBulletin&utm_medium=email&utm_term=Vitamins&utm_content=Body+ContinueReading&utm_campaign=DHB_121006 a little vit c, when i make it through my current challenges, well i suspect my iv c may have helped. i am at least happy to have…