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life extension hitting cancer from all sides and my update on my newest therapies
Some great news from the alternative universe. Warning this news contains opinions and facts that your oncologist may deem inappropriate, stop reading if this would cause you any distress. now so you have kept reading great, this lef story is what i am into in principle. it comes coincidentally just a few days after i…
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MAy have to skip third infusion...any advice?
Anyone have any advice...my best friend, colon cancer, mets to the liver....surgery 12/2011 for stage ii colon...resection done...June cea up to 49 (cea up to 4.2 in March, 'doctor' suggested waiting three months as level was 'probably' due to inflammation...it wasn't)...anyway, chemo started 7/31, second one…
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Caregiver Advice
So my cancer is spreading. Doctor still feels that I can get this into remission or at least that's the goal. In my gut I feel like I'm going to be okay and will be around for a long time. My husband in the past always knew I would beat this and when I would talk about possibly of not making it he would beg me not to think…
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2nd year anniversary- cancer free but lost my BFF
Helllo! I have been reading a lot of posts here daily but this is my 4th or 5th time to write my thoughts. I was diagnosed last Aug 2010 and was operated last nov 2010, finished my chemo last may 2011. I had my 2nd scan last July 2012 and all are negative. My CEA is also normal, there is rally life after cancer. I'm…
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Cea's
Had fortnightly bloods yest. My ceas have been very erratic. When first dx ceas normal. Once started chemo rose to 5. 6. Then 4.8.10. One month ago , after changing from xeloda to irrinotecan rose to 50!! Yesterday went down to 25. Who,knows maybe from having my infrared sauna each day helped get rid off crapy toxins.…
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An "editorial" on Oxi seems its more effective for Stage III than Stage II.....
If you go to the main page for publications from ASCO (American Society of Clinical Oncologists):http://jco.ascopubs.org on the left go to "Early Release Articles" and for Aug 2o,4th item down is:"Oxaliplatin As Part of Adjuvant Theraphy for Colon Cancer:More Complicated Than Once Thought" and an abstract on fish oil…
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Not Home Yet Perforated Bowel and Chemo
Hi all: Just released from 3 months in the hospital following an emergency trip to hospital with a perforated bowel. Was on life support for two weeks and came to paralyzed from the nose down. Has taken awhile but I can now walk with a walker and move most of my "bits". I'm sure that the perforation resulted from the…
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Nueropathy
Can anyone tell me what you have experienced with Nueropathy? I finished chemo back in March and ever since then I have noticed that my fingers are very numb and tingly, along with my heals and toes. My toes actually do not have much feeling in them, as I have stubbed them and bent back a couple of toe nails without much…
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Scan Results - Oh Bloody Hell
Have had one round of chemo. Today's chemo cancelled due to low platelets. Petscan shows new spot in pelvis and adrenal gland. Still have lung nodules of course since I just started chemo but pelvis and adrenal gland new. Anyone have this? Any words of wisdom? You know you have hit an all time low when you are actually…
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Sundance Audition on YouTube for Dr. Phil Show - "Real Life Do-Overs" (Project Now Dedicated to De
This weekend became about honoring departed friends who made a lasting impact on my life. Jennie’s passing has stirred some deep emotions – the last things she told me via text were “in hospital with infection”….and "looking forward to all of the stuff you are doing for the new Sundance venture.” Sadly, she did not get a…
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pete is starting tallberg and low dose naltrexone and psorinum.
Its been a week since i annoyed everyone with with attempt at gcmaf yogurt and shots. Well cannot let the sunset when we might have some cancer cells to kill. so i have ordered and am starting the following therapies. is starting tallberg and low dose naltrexone and psorinum. one day i might try conventional therapies,…
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just checking in
Hi all. I am just checking in. I was dxd in July 09 with stage 4. I am 2 yrs and 4 mths clear so far. I am so upset about Jennie, just cant believe it.
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Lets talk good
Dear all: Tired of worrying and googling on symptoms, medicines, options, Side effects etc... To energize all, Can we hear about some Outright miracle turnaround stories from the condition you/your loved ones were in during this fight for cancer.. I am Sure Hearing this turnaround stories will give a Mental Boost than any…
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Special Mention by Jennie's family
Jennifer Crowe Jennifer S. Crowe, nee Fiedler, 55, of Freeburg, Ill., born March 7, 1957, in Belleville, Ill., passed away on Saturday, Aug. 18, 2012, at Memorial Hospital, Belleville Ill. Jennie worked as an administrative assistant and was a member of the Cancer Survivor Network. She was preceded in death by her parents,…
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My Mom
On the 4th of July my sister put her hands on my Mom's thigh and asked her, what the heck is this Mom? A lump. Recently, we were going through the process of getting it checked when she started feeling dizzy and had an irregular heart beat, this landed her in ER. Last night the family went in to talk with the doctor about…
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Lower abdomen pain
I had surgery 8 weeks ago, rectal tumor, gallbladder, and liver tumor out. I was in the hospital 6 days. Recovery was rough, but every day got better. Now I'm having stabbing pain below the belly button, 1st right side now both sides. I have done 3 rounds of Folfox and the last one was Monday. Every time I move it hurts. I…
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MISS YOU ALWAYS!
http://www.youtube.com/watch?v=cX6m1xNwmgY One Sweet Day - Mariah Carey & Boyz II Men I DON'T KNOW HOW TO GET A HYPERLINK IN THIS BOARD.. HOWEVER A FRIEND ON FACEBOOK JUST POSTED THIS SONG.. AND IMMEDIATELY I THOUGHT OF CHERYL AND JENNIE OUR FRIENDS WE RECENTLY LOST.. SEE YOU BOTH SOME DAY.. LOVE YOU BOTH AND WILL MISS…
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not being the typical patient
My mom's oncologist has told us a number of times that she is "not the typical patient." I have mixed feelings about hearing this. I know it's supposed to be a good thing, the fact that she's been fighting stage 4 stomach cancer for close to 3 years now, when statistics said 12-16 months. However, my mom feels so tired…
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My partner was diagnosed stage 3 , t3 n1 how many have beaten this long term without it coming back
Hello my partner was diagnosed with colon cancer , t3 , n1 ..... Stage 3 , no futher spread to other organs ...... How many have beaten this without reccurances and have any of you gone past the 5yr "cure" period , I've read online that it is beatable in stage 1-3 . Thanks in advance for anyone who replys
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BENIGN TUMOR IN SECUM
JUST WONDERING IF ANYONE EVER HEARD OF IT.. IT DOES HAVE TO COME OUT AND WONDERING IF IT IS A LONG RECOVERY OR A SIMPLE SURGERY THANK YOU
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Post Surgical Swelling
Hello to all on the board. I found the site by coincidence this morning. Had surgery for left hemicolectomy, gallbladder removal and endometriosis surgery all done on June 14. Having swelling in abdominal area everytime I eat something and feel swollen and just plain miserable. Feeling the constipation that I read that…
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Dearest Jennie (idlehunters)...Has Left the Building:(
This is the hardest news I've ever delivered here. I am in a state of shock and denial. I hope that I'm not out of line for speaking for Jennie, but we just received word from her daughter that Jennie has passed away this evening. Apparently, there were many brain mets and this led to complications and her subsequent…
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Peritoneal mets
I've had these mets since December 2011. I've been on different cocktails of chemo and am currently on a trial drug. If you have these mets, can you answer a few questions: what kind of pain do you experience? what do you take for this pain? do you have fluid build up on your abdominal cavity? if yes, how does your doc…
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Great Scan Results
Hello All, I know its been a while since I have posted, I do lurk from time to time. I had my scans done a week ago last friday, and I got the ALL CLEAR once again. Thank you GOD! In November it will be 4 years in remission. History: DX in May 2007 Stage 3, had surgery, did chemo and rads, all clear in June 2008, came back…
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shoes neuropathy
Any suggestions on a brand(s) of shoe that works with neuropathy and looks decent enough to wear to work. Last winter I was home so it really didn't matter, I finished the winter out in houseshoes the ones that looks like boots. Anything closed toe kills me. Thanks!
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Iliostomy care
One of our members wrote a great blog post about stoma care but now i can't find it! Im not having any issues, just want to be prepared. Does someone remember the blog I'm thinking about. Thanks all - Robin
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Life & treatment surging ahead - lots going on
The generosity of family, friends, and in particular others in the CRC community have just blown me away! I am so blessed to have you all in my life. My new bed has been ordered. I laid on one like it while the paperwork was done last night. After a day of laying for two separate planning scans (and setting up two separate…
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metronomic ? Daily xeloda, etc?
Credit to Manwithnoname for introducing me to metronomic (repetitive low dose Chemo) therapy in his recent post. I found research to support this, and it appears to be a possible option for my wife who can no longer tolerate conventional full dose chemo. is anyone else here on a low dose drug, say for example xeloda, daily…
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would like erbitux info
on monday i will have erbitux added. i am doing folfiri plus avastin. have had 2tx. i am kras neg. just wondering what i have to look forward to!!! thanks judy
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Bum is raw
Hubby is on xeloda and it is making his bum raw; he has tried desitin but wants me to ask you guys what worked for you. Any advice? Thanks Brenda