Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for March 2012

NOVA | Cracking Your Genetic Code
This was pretty interesting and rather frightening at the same time. There are states that already allow genetic testing to be used to deny companies from hiring or insuring people based on genetics. The GOOD side is that they can customize treatments for people with rare diseases and also with various cancers. It's still…
Low Blood Pressure
i am currently not on meds but have been experiencing consistently low blood pressure 100/40 to 110/52 for a long time. Before cancer treatments it used to be 130/80 or so. has anyone felt the same? any reason to be worried?
Faces of Blue
FACES OF BLUE 30MAR2012 I'm honored to be part of the Faces of Blue - today is my day on the March Calendar. Click the line at the top of this post to see the story. If you read the stories, you'll see a sad trend of colorectal cancer patients diagnosed under age 50. Please help me spread the word about signs of colorectal…
Two year celebration
Its been two years since my resection. Tuesday CEA 1.1. Chemo ended 11/10 and I still have neuropathy, but worth it if I never see the ugly head of the colon cancer demon again. Thanks for listening
Hi mates it is FRIDAY any interesting plan for the weekend?
Nothing special here, may be some dinner with wife and friends and some family lunch! What about you?
New to site
I am new to this site (as of yesterday) I found myself up until midnite reading posts and garnering sooooo much great information! I felt all of your strength and determination. I read about the loss of Carl and Lisa they were wonderful souls. I wish I had found this site June of last year! So much wealth of knowledge. I…
Pete I think you'll find this clinical trial of interest
HomeAbout this siteCancer View CanadaFrançaisA-A+ Feasibility Clinical Study of Targeted and Genome-Wide Sequencing SummaryTrial DetailsEligibilityCentres / ContactsOfficial Title Feasibility Clinical Study of Targeted and Genome-Wide Sequencing Summary: This research is being done to find out what types of gene mutations…
The Pain...is a Pain
I've had an interesting time the last couple of days. My stomach pain ramped up to new, scary level. Last night was a lesson in how to get through the night because you hate going to the ER so much. I literally moaned myself to sleep. Saw my doctor this morning. I have fought low potassium for several years now, and that…
Cramps and neuropathy will it ever go away?
How long before the cramping/spasms go away after surgery? My removal of my rt colon was June 11. I had to be driven home from work Tuesday due to the cramping. I was ready for a hospital bed and some morphine! My first three month check up with my onc is tomorrow. And the neuropathy..
gemzar/gemcitabine/GOLF
Interested to hear from anyone who is on gemzar (gemcitabine). I remember our dear Lisa (Lisa42) was on this for a while -- but can't recall if others are. Would love to hear experiences in terms of side effects, etc. I am currently on FOLFOXFIRI -- but learned today it is no longer working (boo hoo) so my oncologist wants…
vit c iv???
Anyone doing or have done any vit c iv treatment with chemo? thanks..flyguide
Call Congress
PLEASE take a few minutes of your day to call in. This is one of the issues I went to Call On Congress for. Both the Digestive Disease National Coalition and Fight Colorectal Cancer had this on the agenda. This is a bi-partisan issue. It is not something that is at debate, but was an oversight in the original legislation…
Colon Palooza 10, Buffalo, NY, October 11-13, 2012
Hello all, I will be hosting the 2012 Colon Palooza. It is a fun time by all. Mark your calendar for CP10, Buffalo, NY, October 11-13, 2012, at Embassy Suites, www.buffalo.embassysuites.com Rate per night: $149.95 + tax for a double Queen Suite or Single King Suite. Please use code “CPA” when booking a room online or when…
Colon Palooza 10, Buffalo, NY, October 11-13, 2012
Hello all, I will be hosting the 2012 Colon Palooza. It is a fun time by all. Mark your calendar for CP10, Buffalo, NY, October 11-13, 2012, at Embassy Suites, www.buffalo.embassysuites.com Rate per night: $149.95 + tax for a double Queen Suite or Single King Suite. Please use code “CPA” when booking a room online or when…
The pros and cons of genetic testing?
I'm considering requesting getting tested for Lynch syndrome and I'm wondering what people think about that. It is possible I meet the criteria for HNPCC and I think I should get tested as well as my kids. My oncologist never brought it up nor has any other doctors involved in my care, but that is common from what I hear.…
“The Story of the Man They Call Big Billy” - The Man, The Myth or The Legend?
It was late winter of 2010 and the nights were long and dark. I had ‘tied one on’ at the Infusion Center Lounge that day with yet another “Folfiri Bender” - one of the most popular cocktails that they serve at the waterin’ hole I imbibe at. It packed quite the knockout punch on me – you could say that I could do “One and…
Hemipelvectomy information
Have used this board intermittently over last 8 years of battling with cancer. Am 39 now with a pelvic recurrence of rectal cancer I had removed at age 31. HAve had various chemos and re-irradiation since the recurrence and was hoping to get to the point of having surgery again but they have said due to the tumours…
Bad news Good News
Last week I had ct scans and pet scans done. Had bad pains down below and my wife and I were hoping to make a big trip in May to the orient. I told my onc that I needed to know if anything new was going on before we bought the tickets and made all the arrangements. He agreed and ordered the scans. The good news is the…
Avastin - should my daughter refuse it?
Hello all. My daughter resumes her chemo tomorrow after LAR on Feb. 23. The onc wants to change it over to Folfiri with Avastin. She was on Folfox without Avastin because she had blood clots and is on Lovenox. So he wants her to stay on the Lovenox and take the Avastin. He said the Folfox had "plateaued." (?) We are…
7 months of waiting. all for this one moment...
"Your PET scan is clear". Finally good news in this insane roller-coaster ! Waited the last 6 days after the scan, hoping and praying for this result ! Apparently one liver enzyme is out of whack and he want's to have a bone scan done, just in case. But apparently the PET was clear of everything except some irritation…
Okay baggers, I’m ready to join the club!
First of all I want to say hello to everyone at CSN. It’s been awhile since I’ve posted but I have been here lurking and checking in on everybody from time to time. My post today is to kind of give everyone a update on how things have been going, tell you guys what I think, and to hear responses on what you think. Most of…
Just an Update from Sundance...
Alot has been happening...Kim and I posted a 100-hour week that concluded this past Sunday with my dad moving back out of the nursing home - to ER - and then to ICU. (that was just Sunday alone). He is now intubated. He was crashing and close to "coding" the nurse told me. At this point, I'm once more walking in the valley…
After 4 rounds of Folfox CEA has
Dropped from 30 to 20 is not very little?. What do you think is it working?
Last Chem treatment
I am on my last scheduled chemo today. I get the 4.5 hours of treatment, get sent home with the pump, take the pump off Thursday and patiently wait till next Tuesday for my CT scan. Then the following Tuesday I get to visit the Liver Specialist and see what is in store for my future. Hoping to have surgery for my reversal…
Port malfunction.
Last infusion could not get port to flow & rarely can they ever get a blood return. Had to get a partial infustion via IV in wrist on that day. This is the 2nd time this has happend. Have me set up for a flow test in the am @ hosp. Starting to wonder if need a new port or not, guess tests will sjow.
What stores sell Silicone Cancer Wristbands? or where can i Find them
Hi, My Aunt was diagnosed with Colon Cancer a couple weeks ago. She will be going into Surgery in two weeks. I wanted to buy a Colon Cancer Wristband in support of cancer, Anyway my Question is do any stores like Walmart, Sportsmen or any stores like that sell Cancer Wristbands? I know that I can find them online and I…
How do you look for older threads on here?
Hi everyone - good morning. I'd like to dig up some older threads by certain members and have no idea how to do it. Will you help me? Thanks =)
Hmmmmm:"Link Between Opioids and Cancer Growth"
"Opioid- based painkillers, such as morphine,have been the standard of postoperative and chronic cancer pain for over 200 years. Two new studies show that opioid drugs may stimulate the spread and growth of tumors!" While lung cancer is discussed, Akt and mTOR are involved in CRC also Short article at…
Results of study in Australia of SIR-Spheres for those with inoperable tumors
can be found (i hope)at: prnewswire.com once on main page ,look at upper right for search box,type in SIR-spheres,check the "News Release" button and you should get "Largest Comparative Study of Radioembolisation Shows.....",dated march 23 Again,might be worth the trouble to access.......
If anyone can help?
My Mother is entering a bad time of confusion, anger, hurt and memory loss. She has kidney cancer and now Sundowners. She is 78. I have this blasted squamous cell rectal cancer, 5 months out of tx and fatigue is MAJOR, along with the bowel upsets etc. Y'all know what I mean. I have had a daytime care giver with my Mom…

Colorectal Cancer

Discussion List