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Colorectal Cancer

Archives for November 2011

Time to rejoice!
Just got home from Jake's latest chemo. His onc had the results from the PET scan he had on Saturday. Here are some of the findings: "The only slightly warm residual area of adenopathy is just lateral to the left lobe of the thyroid gland, with a max SUV of only 2.7, and this node is markedly reduced in size from the prior…
Immune system and nutrition, off to a conference this weekend to focus on these areas
This is my favourite explanation of immunity, great reading if you have the interest and time. http://lpi.oregonstate.edu/infocenter/immunity.html The key message is nutrition is key to your immune system. It is important to note that PEM usually occurs in combination with deficiencies in essential micronutrients,…
my oncologist appt & his thoughts on my decision
I saw my oncologist today- the first follow up with any doctor since being released from the hospital 2-1/2 weeks ago with the pneumonia (although I did have nurses coming to the house to check on me a few times until mid last week). He wants me to have my next CT scan in about two weeks from now- still giving a bit more…
One Step Closer to Surgery
My husband and I met with the onc. today. He is in agreement with surgeon that HIPEC is next best treatment option. Concern is with getting the spot on the liver at the same time but he said it would be a game day decision. I asked about possible colostomy and he called surgeon and reported back that surgeon believes tumor…
Avastin/Ox for Dummies...........
We just went through the worst year of our life, fighting and winning against colorectal cancer. Don only had one more week of chemo, beginning today. After this we were ready to move on with our “new normal”, live our lives out the way we should. All the doctors were optimistic that he had won the war because he opted to…
A Funny Story
A friend of Jake's told him this story. It is supposed to be true. The friend was at the Mayo Clinic a few years ago and his doctor had had one of our former presidents for a patient. The President told the doctor to play along with him because he wanted to tease the nurse when she came in. When the nurse came into the…
Rectal pain now???
Hoping someone can help me out. My husband is almost 9 months pist surgical. Tonight he is having pretty bad recal pain has anyone else experienced this? Stephanie
My Dad just diagnosed Stage IV Colon Cancer, also tumor on Liver and malignant polyps in stomach...
Now my Mom and Dad are waiting in distress to discuss the treatment plan. The Onc. will see him Wed. Morning. They gave no other news over the phone. He is 66 years old, they only found the cancer because he fell off tractor and broke 6 ribs 2 weeks ago. Since then had 4 blood transfusions because of how low his blood…
My Dennis
We were finally able to get him to a urologists today... he has had catheter since surgery (a month and a day). It was removed several times for an hour or two and he just couldn't go any of the times so it was put back in each time. He was starting to fill a little anxious about the whole thing and I guess I was too. I…
New Drug to Follow
Referred to as KG5, and developed at UC San Diego: New Drug at UCSD From a personal perspective, if/when they start trials, UCSD is relatively local to me. Still, it is at least five years out from being generally available, and it may turn out to be like many of the promising drugs before it...
The Sundance Book is NOW Finished! – “Let’s Talk About This…”
Well, the book is now finished - I’ve got a full manuscript in my hands now, ready for submission. Can you believe it? You can imagine my thoughts as I’ve crammed 7.5 years of my cancer journey and relived it ‘in detail’ for the writing of this book in less than 5-months, right? I have been living cancer 24/7 these past…
Still NED (AND crazy!) after all these years (singing)
Next week, November 25 to be exact, I will celebrate (?) 7 years since I heard those 3 words. At that point, I was told to 'get my affairs in order' and that 'with all the stats, it looks like similar patients have lived about 6 months'. At 6 months, not only had I come through chemo/rads, J-pouch procedure surgery, but I…
Tony in hospital Small intestine question
Good morning, my husband Tony, stage iv, has now been in hospital for 7 days going on 8. doctors have yet to determine what is going on. Fever has been gone for several days. But the diarrhea is persistent and along with abdominal pain. they have done tests, scans, ultrasounds, blood work, stool,samples, etc. Nothing is…
melatonin, milk thistle, flak seed, seeme seed, sunflower seed NO ITS NOT 4 the BIRDS and tumeric
Not advocating this for anyone, I am finished clinical treatment and starting intense lifestyle treatment. I am moving away from store purchased supplements towards macrobiotic vegan diet and juicing....... just sharing, thought i put in the prices here to show how cheap these supplements are here. be interested what it…
Let me introduce myself.....
...my name is Dario, I am Italian, 37 years old and I live in NYC since 3 years, last July the first I went to Bellevue Hospital for a terrible left side stomach pain, after that ct scan, blood analysis and other checks didn't show anything they did a colonoscopy and they found a "tennis ball" in the middle of my…
"Chemo vision" I can't see $%@#!
Since I have been undergoing chemo it seems like my vision declines weekly. It is now to the point that even glasses do not help much because my vision is so blurry. I am making many mistakes trying to read numbers and read and write -- all the time. Someone told me not to bother going for an eye exam or new eyeglasses…
6 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga 4 SURVIVAL BOOST UPD
6 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga 4 SURVIVAL BOOST *** GET MEDICAL OK AND ONGOING SUPPORT BEFORE STARTING ANY EXERCISE PROGRAM, I did *** *** DO YOUR STRETCHES BEFORE AND AFTER ALL WALKING, other exercises do relevant **** *** AT THE END OF THIS POST IS A SUMMARY OF OTHER POST…
NEW PIC.....
Just posted this on FB and thought it was time for a new pic here too. This pic fits in right now since its hunting season.... the time of year I become a hunting widow and the only way I can get my husbands attention is by wearing antlers..... or "Doe in Heat" ..which is basically deer pee..... no thanks..Guess I will go…
Lisa 42
Hi Lisa, Gail and I are planning a day trip to come and see you..... We need a group hug!
1 Join me in Meditation UPDATED
this thread is not spiritual in a sense, its not based around any religion. its purpose is to simply share our experiences of meditation. its not a forum to discuss its weaknesses. don't read this thread if meditation upsets you. if you have complaints about my or others faith in meditation then post it as a separate…
Michael left a hole in my heart, and went to be with Jesus tonight
Tonight at 7:42 PM, Michael lost a fierce and courageous battle with cancer. He was at home surrounded by his Family and Friends. I am amazed at how many lives Michael touched in his 43 years and one day on earth. I can't begin to imagine what he can accomplish in heaven while he is watching over all the people who loved…
5FU Question
I've been on Oxaliplatin and 5FU for 9 treatments, 6 of which included the pump for slow infusion of the 5FU. At the 7th treatment my Onc changed to an quick injection of 5FU following my 2 hour infusion of the Oxaliplatin. On the eight treatment I had severe chills and shaking for about a hour and very lethargic for…
Drug expense question
Just have a quick question. It seemed that I remember reading that the company that makes Avastin only charges a certain amount per person per year--something like $50,000. Is that true and does the same apply for Erbitux?
Guinness World Record for Most Surgeries?
Nah, probably not...this is only my 5th in two years, and I bet there are folks on this forum who can beat my record! I am thinking that maybe some kind of punch card would be nice, kind of like they do at my coffee shop. Buy 5 surgeries, get 1 free...that sort of thing. But really, I'm grateful that I can continue to get…
pain/numbness
ive been having pain and numbness in my left leg from my thigh down to my calf. they did an ultrasound and a bone scan to rule out clots and bone mets. has anyone had this problem and figured out what it is? my onc has no idea why this is happening.
Does chemo itself ever raise CEA?
Does chemo treatment itself ever cause CEA to rise? K1
Surgery Tuesday - Questions
As the day of my surgery gets closer I am trying to get things ready and prepare the best I can for what I'll be facing. I will be having a colo-anastomosis with a temporary ileostomy and I'll be having a hysterectomy at the same time, all open incision. The colorectal surgeon felt that my uterus needs to be removed…
SNOW****** SNOW ****and Remembrance
YOU MUST FORGIVE ME..for any number of reasons.....hahah our first snow and for Candians this is a big deal...you hate it you curse it but the first falls of the season are so lovely. Today is our Remembrance Day..in my small city we will remember largely WWI and WWII vets with some young guys from Afganistan. We all…
Friday Riddle
Remember NO googling or searching the Internet allowed, and good luck !!!!!!!!!!!! RIDDLE: Five young girls are all friends and are all big Disney fans. They have named their pets after cartoon characters from their favorite Disney movies. Each girl owns a pair of pets of the same species. Each pair consists of two…
Metal Stents
Hi I know I dont get on here very often but I have been trying. For over a yr now I have been getting a stent in the right urter(sp), sorry I now I am not spelling that right. Due to damage from the radiation I had. They are also using metal stents instead of the one I have in. does anyone no anything about the metal…

Colorectal Cancer

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