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Colorectal Cancer

Archives for August 2011

Earthquake in Maryland
Yes I'm a wimp! It felt like the building was being shoved sideways. Scary. I hope all on the east coast are OK. Best
5.9 Earthquake on East Coast
Felt up here in NY. Epicenter in Virginia. Minimal damage it seems. It's always something isn't it...
Feeling Hopeful Today
I measure the quality of my days by how hopeful I feel. Today is a good day. We met with husband's oncologist prior to chemo. I came armed with questions thanks to my discussion board friends. My first question was in regard to a 2nd opinion by an oncological surgeon. I had read about the HIPEC surgery on the discussion…
Marinol?
Anyone on this? Any thoughts?
What is the little happy pill?
I read some posts before and some of you referred to an antidepressant as a little happy pill. My dad is on Paxil and doesnt feel it is "uplifting his spirits" enough. Any suggestions? I tried to find the posts I read a couple weeks ago where someone referred to a pill that starts with a V and I cant find it. He is going…
a big day daughter turns 10 today at 5.45pm to be precise
Its been a great day i wanted to share. Its started with an 8am visit to my naturiopath who has been away for a few weeks. so i see her with my box of the 40 supplements approx, my blood tests, some new research. I update her on the gym and my physio and my great results from the oncologist. we agree to do live blood…
New Chemo Regime Working
But it's kicking my wife worse than FOLFOX. The regime, Xeloda, Irinotecan, Avastin, Neulasta has brought the CEA down from 432 to 174!!! But she is more tired and mentally down this time. I sat on her yesterday to make sure she drank plenty of fluids. From reading the newsgroup, this regime causes dehydration, so I'm on…
any stage ll colon cancer out there?
Hi all, I went for my post op check up yesterday and my surgeon said my cancer was stageIIa. he took out 43 lymph nodes and all of my colon and all nodes were clear. He said that he would not recommend chemo because the chances of survival only incresaes by 3% and the effects of chemo outway the 3%. He still referred me to…
7 Years: An Update from Rob;inVan
On August 23, 2004 I was diagnosed with stage 4 colon cancer with metastatic spread to the liver. Here is a quick look at this cancer journey so far, by the numbers... - 5 major operations involving about... - 45 Hours of surgery, and... - 100+ Days and nights in hospital. - 40 Treatments of radiation. - 100 Weeks of…
Avgame looks like another scammer. Greta- help!
It makes me so mad when I see scammers like this messing with us!! Makes me want to kick some booty!!!
Back from ER....
Went to ER this morning after talking to my PC doc. They ran blood/urine/CT/xray. They have no idea why area by my naval hurting. I have nothing there to hurt. I do have a hernia above naval that is small and not of concern. Other than that the entire stomach cavity is clean with all organs intact and not even a lymph node…
Rectal To Liver Cancer -- Please Help Me Help My Dad
Hello, all. I'm brand new. tpmack37's post on the Rare Cancer Support Forum (which I read yesterday)... http://www.rare-cancer.org/forum/viewtopic.php?t=3626 ...brought me to Google his alias and it brought me to this place, specifically his thread @ http://csn.cancer.org/node/190358 So here I am. My family is currently…
sad day for Canada
Hello my dear forum buddies.....as usual i have been in the north woods all summer in my little cabin. Tonight we decided to drive over to the US for a little break before going home....we are on Drummond Island Michigan in a nice wee hotel with running water and wifi and electricity and a washroom....haha all things we do…
little bleeding after PET/CAT scan
Anyone ever have small amount (like a drop) of bleeding after scans. Last time thought maybe it was from Avastin, but today had scans and had a small amount either from urethral or (the other) area. As far as I know, I don't have kidney disease. Just another thing to worry about, i guess...sigh.
Not good news today
I honestly am not sure why I felt like I needed to write this tonight. Maybe a selfish need to just get it out. I was dx with Stage IV colon cancer in July of 2009. Since then it has been a roller coaster. Declared NED in April of 2010 only to find out in Sept 2010 that I have a recurrence in my ovary. I had surgery, did…
Left high and dry by BCBS regarding Xeloda
Hi again everyone. I am supposed to start Xeolda on Friday, adjuvant therapy for stage IIIA colon cancer. Because it is regarded as a "Specialty pharmacy" by BCBS and taken at home, it is not covered as chemo as my Oxaliplatin is. I do not have pharmaceuticals on my policy. Anyone dealing with this? I'm distraught. It's…
ot....a good song
just wanted to share this with you all.sometimes when i get on here people post funny videos or songs that really uplift me or make me laugh.Martina McBride has a new song out."Im gonna love you through it"i dont know how to post a link to it.i just go to youtube and you can hear it and see the video also.this song will…
Anyone used or heard of this.....any opinions ?
Photodynamic Therapy......I will check into this after my appt Wednesday at Vandy...They offer this at The Jewish Hospital in Louisville Ky..... What is photodynamic therapy? Photodynamic therapy (PDT) is a medical treatment that uses a photosensitizing drug (a drug that becomes activated by light exposure) and a light…
Need your quick opinion...Go to Hospital..or not????
I don't know what to do. I have a full week planned next week with various doctors BUT..I have a few ongoing issues I may need to address before I can even put that foot forward. Here's the deal. I have had a hoarse barking cough for over a month now. Onc gave me some swish and swallow crap that was useless. Not coughing…
Cost of Xeloda
My insurance company formulary does not offer coverage for Xeloda, which is what I was told on Thursday I will have to switch to for startup chemo due to the 5FU shortage. How much will I have to pay for the 21-day dose of Xeloda per month in the U.S.? I have heard that the manufacturer, Roche, has a financial assistance…
Anyone have strange sensations during infusion of Oxaliplatin?
Hi, having my first infusion of Oxaliplatin on Friday in combination with 14 days of Xeloda. Heard there were some side effects during the infusion. Can anyone shed any light on that for me. Just would like to be prepared. All the best to everyone. Mary
Has anyone had HIPEC in the state of Florida?
I may be a candidate for HIPEC and am looking for the best surgeon and hospital. It would be great if I could stay in Florida for insurance purposes, but I also want a surgeon and hospital with lots of experience in this procedure. I have been told by my oncologist that Dr. Lavine and or Dr. Sugarbaker are the best in the…
For better or for worse
For better or for worse, in sickness and in health. Today we celebrate our 40th wedding anniversary.. We are going to dine out which hasn't been very successful previously on chemo. However I timed my Xeloda as well as took other precautionary steps. Actually, the food is not that important. I will be with my most…
Calling tomorrow
well guys im calling tomorrow to get jorge's CEA count im so scared on friday the doctor was talking about the CEA count and told us that the cancer can be growing because back in april the count was at 2.0 and a month it was 5.1 .i so mope its not growing hugs to all Tina
Checking in....
Hey Guys..... Thanks so much for keeping an eye on me. Makes me feel good that Ya'll care that much. Sorry it took so long to check in but I just haven't felt like talking. I have been doing a lot of research on different options to treat my lung mets. Next week is a big week for me. I will be talking to several new…
She thinks we are seeing too much of each other...
...If I only had a nickel for the number of times I have heard this in my life! In this case it is good! news. My onc says that since I have been responding so well to my treatment, we should only meet once a month. I still have biweekly chemo, but will only do the doctor's visit every other time. Sorry for the provocative…
Just sharing a little of my small stuff....
I know this is such a minor complaint compared to what some of us are living with. But here I am and I will go on anyway. I have to wear a pad everyday. (I won't go into the details but if anyone REALLY wants to know, of course I don't mind telling you.) Learned to live with it. Not a big deal. Who cares anymore that I've…
Radiation Side Effects
Hi all, I just completed my third week of radiation and the side effects are kicking in big time. I have severe diarrhea and have been taking Immodium but wondered if anyone has advice for using Immodium and/or other dietary advice. I am using sitz baths and Aquaphor for the anal sores which helps some but it is still…
Enlarged lymph node in the neck
Hi, I was diagnosed stage 3 rectal/sigmoid cancer in Aug/Sep 2008 at 37 years old.I recently found a lump in the right side of my neck close to my ear (not subclavicle). My recent CT scans of the body were clean except for a simple cyst in my kidney. A CT scan of the head and neck showed an enlarged lymph node (the one on…
Brown bagging chemotherapy drugs
My husband is currently receiving FOLFOX with avastin for stage 4 rectal cancer. The company he works for is self insured and after seeing the bill for the first chemo told him to check with his doctor to see if they would allow us to bring our own chemo....Has anyone had any experience with this. Our doctor has said that…

Colorectal Cancer

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