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update on my stubborn husband (o:
Jack officially (said to his Onc, not just me) quit chemo 2 weeks back...I can't remember if I already posted that....anyway, Onc ordered CT scan, it was done on Tuesday. We got the report today, couldn't wait until next Tuesday to see Onc...everything compares to last CT scan with no changes. Good news. He also slept the…
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Kathi M Featured in ACS's Triumph Magazine
Yesterday I received my copy of ACS's spring issue of Triumph Magazine. I saw Kathi M's smiling face in an article about Everyday Heroes. In the article, she talks about CSN and why she has remained active since 2005. Way to go Kathi! BTW, I have Kathi's permission to tell you about the article. Hope she scans it and posts…
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Colorectal Cancer stage 4 metastasized to the spine
Hi Everyone, A little background on me, I am a NICU and PICU nurse and for the last 3 years have also worked on the pediatric oncology unit. I am now trying to go back to school to become a pediatric oncologist.. considering the depressing amount of children Ive cared for who have died from this disease. But I need some…
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Managing the Side Effects of Cancer Treatment - managing the day-to-day journey of colorectal cancer
Join Us for a Live Tele-Chat! Managing the Side Effects of Cancer Treatment presented by: Eden Stotsky-Himelfarb, Stage 3 Rectal Cancer Survivor and Nurse Cancer treatment can cause many side effects. Some of these are easily controlled while others require specialized care. This chat will discuss some of the most common…
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What do y'all think?
I've received an email a couple of times in the last few days, and I've heard the same thing before. Basically, it states that cancer is a strange cell, and that once you've had it, you don't get rid of it. You may be well for 20 years after being treated, but you will get it again eventually. How do y'all feel about that…
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barium enemas are such fun!!! I wished I could do it again tomorrow NOT
Drop the kids at school, the wife to her car so she could visit her sick dad and I made it to my 10am city appointment with barry enema. Its a joke, he is not a person its a procedure. Did my barium enemas today, no leaks found with internal joins and stitching. I have found some external leaks, been to the toilet 30 times…
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Off topic. My mom update.
Today was bittersweet. I arranged the movers to take everything from mom's apartment back to her house. She had a glorious 3 months in her new home, October thru January, but that's over now. The staff were as warm and caring as usual. They all asked about her. It was then I went and visited with my mom. It was an altered…
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ACS Clinical Trials Matching Service (CTMS)
Today I received the spring issue of Triumph magazine, which is a publication of the American Cancer Society. There was an interesting article about the Clinical Trials Matching Service, which is a partnership of ACS and the Coalition of Cancer Cooperative Groups, a nonprofit organization whose goal is to assure access to…
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anyone ask for your copay back when you have to skip a treatment?
I have a random question. Last week, my mom was supposed to get her 7th treatment of FOLFOX but her platelets were too low. So we're going this week and everything should be ok this time. (keeping fingers crossed). My mom remembered she had paid a $15 copay last week upon arrival (but didn't get treatment), so when we go…
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hi again from gabrielle !! xxx
hi all.....havent been around for some time, hope ur all doin well. xxxxx
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Certainly .
Today has not been the best day in the forum .Hope tomorrow bring us better news.I ask, I beg to all those who get reasons to be positive to let us know ,also l beg to most of you to keep a positive attitude in your/our fight.Just because we need it!. Good night ,good luck!.
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Message from Mary " msccolon " to all of us.
I have come home and in the hands of Hospice as of Monday. Getting everything in order. I don't get on the computer very often now, but I will try to update everybody. The tumors in my abdomen have grown to the point of multiple partial obstructions, which can't be fixed using surgery since my prior surgeries have left so…
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Help-probable mets to liver
I finally need some help. I did not find this site till after chemo and having been hanging around ned, posted when I felt I could relate to a problem. I am 3B 3/30 nodes positive. 7 rounds of folfox--bad reaction. I had a pet scan because of c scan results, probably mets to liver. Onc is going to have biopsy done to be…
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bad news
Hi all, So I went to see my doctor today to get my lab results from last weeks tumor extraction and got bad news. He said it is cancer and will give me a few weeks to heal before referring me to an Oncologist and having more tests done before starting chemo and radiation treatments. What can I expect from these as far as…
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FDA Recall lists
FDA Recall lists For your consumption, and idle moment reading: Wazzamatta Wid Dis Stuff? Enjoy, and check back daily! (Better health to ya'll) John
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colorectal cancer with mets to liver- chemo- should we be hopeful
My partner was diagnosed with colon cancer spread to liver about six weeks ago. Normal colonoscopy August 2010 and normal blood tests for liver function same time. He had no symptoms until the liver was so enlarged that he had severe pain in ribcage. They are still unable to locate the primary tumor but are saying it is…
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With all my respects for every body , I just posted in a thread just saying that I would like
a board where forbidden to forbid were a motto does any body know where that thread is ? It has despaired! There was something disrespectful in those words? Not. Where we talking about religion? Not. was I following the thread? I think yes since some post there were dissatisfied with the thread and I was just answering…
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What Cancer Cannot Do!
Cancer is so Limited: It cannot cripple love It cannot shatter hope It cannot corrode faith It cannot destroy peace It cannot kill friendship It cannot suppress memories It cannot silence courage It cannot invade the soul It cannot steal eternal life It cannot conquer the spirit --Anonymous God Bless you all, Jan
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I loved reading Anticancer by david servan-schreiber international best seller
These are my comments on " Anticancer A new way of life. " second edition. The president MD ANDERSON CANCER CENTER ( number one in USA ) supports the book and its contents. that is enough credibility for me. Read the first edition which I borrowed from my bowel cancer support group library only 3 weeks ago. I liked it so…
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For Gail, Lisa42, Buzz and all my other csn family.
Firstly Gail I'm so sorry that you were attacked online by someone on my Facebook thread. You are so kind and loving, this person should not have jumped the gun without talking to you or me first. To all, it was over a bowel cancer thread, poor Gail just said there were to many semi colons running around in this world. And…
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Pelvic recurrence advise
For many Stage 4 survivors here the experience is of distant metastases in liver and lungs but for myself the recurrence has been in the pelvis. The MDT are rather pessimistic about the likelihood of being able to offer surgery as it is on the side wall near nerves and vessels. They are throwing all at it- hopefully…
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I had taken some time off from forums
I had taken some time off from the forums I visit to get some mental healing from all the deaths that had occurred on this and other boards. Turns out my mental healing finished just in time to allow me to deal with a new stage in my life- stage 4. I don't have much in the way of specifics, except it is bad. Involvement in…
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scans again...
My husband goes for scans again this week, to see if this second round of chemo is working. Went to the oncologist appointment today and the colostomy pouch burst while in the bathroom. We had mistakenly not packed an extra wafer. The drs office sent someone out to the nearby hospital to get one for him to put on. He was…
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terminology for newbies
From time to time,i check the Colon Club to see what they have might be of interest to this site. I originally found a list of abbreviations that helped me a lot. Today I checked, and there was this list just waiting to be liberated and reside on this site. If you are new, these terms should really help, and it's good…
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Home. One of the great 4-letter words!
After a 2 hour train ride, a 10 1/2 hour plane ride, and a 2 hour car ride, we are home. Well, our other home. I had started a headcold the day before, and so my immune system was compromised enough to let in the flu bug flying around in the plane. I had planned on hitting the ground running, so to speak, on Tuesday…
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Neulasta Feedback
Hi. My Mom is scheduled for her 5th Chemo treatment today. Her platelets were GREAT, but her White Counts were low. When she goes on Thursday for a follow-up appt, she will be given a shot of Neulasta. Wanted to asky the board if anyone has any feedback on this medication, sideffects, etc. All the best to EVERYONE - Liz
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Anyone with confirmed KRAS or Braf mutations:trial starting at UNC-Chapel Hill now (plus another ite
if you are eligible for second line Tx for mets, tho of 240 people to be selected some it appears will be givena placebo (This I dislike) for something called regorafenib...... see www.healthcanal.com/cancers/15667-UNC-lead-study-new-option-for-some-colon-cancer-patients.html since above proved sopopuar,I;ll add the…
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folfox #11 went well, one more to go
Anyone doing folfox at the moment ? share your stories here got a call early this morning from chemo ward. where are your bloods ? i said, I don't need them as onc said my bloods are perfect and never change. The onc nurse said bit we want them anyway, come in asap. So, I dropped the kids at school and watched keith get…
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Reading Room: Top Ranked Hospitals for Cancer
http://health.usnews.com/best-hospitals/rankings/cancer
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ct scans
Hi, my husband had a ct yday after finishing his 8 cycles of chemo 18th march. We have and apt to see onc 7th april for the results. My husband is coping very well, im so scared! Just want this nasty journery to be over.