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So Totally Wrong
It's Halloween, and well, um, I have to admit, I've been eating the trick or treat candy allllllllllllll day long!!! Going to have to turn out the porch light early tonight!!!
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nanoknife- locations and question of who's had it
Hello All, On another post of mine (where I'm whining about not feeling well & talked about my colorectal surgeon checking me out last week and feeling a rectal nodule), Clift/Buzzard replied to look into nanoknife. I had always assumed it was radiation, similar to cyberknife. But, apparently it is different and fairly…
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Welcome to plh4gail, LeesburgKate, and elaineG
OK you guys kind a snuck in and just to let you know, I'd like to formally welcome you to the board. While I'm sorry that you have to go through this s***y disease, I am so happy to welcome you to the board. There are a lot of really great people here with a whole lot of experience under their belts. I am so glad you found…
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Update on bdee
Had a PET and CT last week. I don't understand how they can be so different. The PET had six of the seven tumors markedly shrinking. I have mucinous adenocarcinomas in my pelvic area, they think. PET was not positive about this. A ventral hernia is noted along the anterior abdominal wall and pelvic wall. Mucinous producing…
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JohnnybeGood
Just wanted to say it was nice to see you back, even if for just one post. Sorry that you aren't doing better. Was so hoping that your symptoms would have let up some. My life now seems to revolved around before cancer and after cancer. It would be nice to see you post a little more if you get a chance. Glad that you're…
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Update-really low wbc
My husband had a fever last weekend. We spent two seperate days in the hospital getting IV antibiotics for his low WBC. There wasn't any infection in the port or blood line. His levels were back up enough on Thursday to get the triple treatment on Friday (CPT 11, Avastin and Erbitux). Thank you all for answering my…
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PaulaG
Paula is having a really rough time of it as her husband John declines. I just wanted to start a new thread so that folks here who know her might send her some love and support. As for me, I'll say, Hang in there Paula - we love you and are holding you and John in our hearts.
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nutrition and supplements
I had really thought that the HIPEC surgery last year would have gotten the cancer once and for all. Since it didn't, it's pretty obvious that my body just can't take care of it without help. To that end I'm changing my diet, removing sugar and going towards vegetarian. I think it's slowed tumor progression as my CEA level…
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Folfox 6 treatment effects.
Hi, hope someone out there can tell me what to expect. I just had my first Folfox 6 infusion on Wednesday and went home with a pump until Friday. To say I feel like I am "in a fog" is really minimizing it. I have read of some symptoms that I don't have (YET!) but feel so weak that I can't believe it. How does one "live…
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Tomorrow is a big day---UPDATE disappointing
Well it's here. Tomorrow I go to San Diego to consult with Dr. Lowy at UCSD. He will be the tie breaker--surgery then chemo (what I want) or chemo then possibly surgery (what the surgeon wants). This is my second recurrence, my first after HIPEC just over a year ago. Seems like it's still in the abdominal cavity but each…
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Just4Brooks, Please everyone take a look
Please take a look at his wonderful Avatar, this is what he has submitted for the front of the calendar collage!!! I've only gotten 3 for the front cover, so please don't be afraid, look at just4brooks avatar and you will see how wonderful you can make it on the cover of the calendar!!! Thank you, Winter Marie PS…
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Mother's Pride O/T
OK, so I want to brag a little. And I can tie this to my cc dx. This really helps me get through this rough 1st round of chemo. My oldest son has been in marketing for a major Los Angeles based sports team for quite a while (even left his high paying job to pursue this one as sports is one of his passions). Other of his…
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feeling lousy & had colorectal spec. appt yesterday- better now
Hi, Just whining a bit- frustrated that the Xeloda hits me so hard lately with the hand/foot syndrome. I have also had a headache and am tired, achy, and basically feel like crap. What a weekend for it too- I had my 10 yr old go to her school carnival last night with her friend's family (my husband had to work late, then…
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make sure you vote next week
I realize that some of you out there do not always agree with me politically, and that is okay. However we both know that your heart and/or brain tells you to vote and that it is important that you do so. That is what America is all about, and it is through our disagreements that we usually lead our country to do what is…
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Pepe-book finished
Hi Pepe, I finished "Spanish Lessons" last night. I would say it was good, but not great. I think the problem was the author was trying to be humourous, but was not that great at humour.
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Did I say something, not say something, do something, not do something????
(This is an entirely tongue-in-cheek post...) I'm thinking, if I stop posting for awhile, someone will remember ME as being an inspiration...sigh...my name never gets listed in the 'great people of the board'...ROFL! And, yes, this post IS all about me....LMAO (sigh)! Hugs, Kathi
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Does any body know something about CherylHutch?
no posting in a while!
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oxaliplatin rare side effect frustration
I am on my second cycle of oxaliplatin/capecitabine(xeloda).On the evening of the second infusion of oxaliplatin I experienced a wierd feeling in my tongue, including a slurring when I spoke, and which lasted around 15 minutes. As advised I called the hospital to report this and ended up as having had a suspected TIA. My…
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Guatemala Update
Guatemala City is crazy. I'll write more about this later. I've had two of six treatments thus far. They adjusted my treatment today to encompass an area closer to my stomach. The Dr said I may feel a bit nauseous. I did. I spent 7 hours hurling. It was awful. No treatment until tuesday. I think I'll see about altering the…
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This thing called life...friggin SUCKS sometimes! Forgive me while I vent......
Hi all, Haven't posted for a while. As some of you know (full story in my "about me" page)...my 19yr old son has metastatic stage IIIc colon cancer. He's on FOLFIRI/Avastin for mets to multiple lymph nodes. The good news is that his last CT scan was clear, except one VERY small node. THANK YOU LORD!!! Now for the bad…
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Power port problems
Hi, I'm popping in from the ovarian board, wondering if anyone can shed some light on the power port. I have had mine for 3 years and it has worked like a charm. Yesterday, however when I went for my infusion, the drip was very slow. After changing the needle a few times, what they discovered is that it is not clogged, or…
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Just got Jim home from Hospital
Poor Jim got a nosebleed yesterday morning that just would not stop. Went to ENT to get it packed and came home. Started bleeding again. So back to his office near the hospital to find everyone had left the office. Made a few calls and found out his Doctor was doing surgery there at the hospital so we went to surgical…
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Waiting. All clear. :)
I am sitting in the room waiting for my results from a second mammogram. **** is in the waiting room. My mom was diagnosed with stage 1 breast cancer 5 weeks ago. I went in for my mammogram last week. Got a call at work today we need another look. I lost it. Said I cannot wait must be seen today. Now waiting for results.…
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Hi mates ,It's FRIDAY again any interesting weekend plan????????
Just enjoy the city, go shopping and have lunch in any interesting fisherman village ,we will see where!
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RectalCancer/JPouch
I was diagnosed with a low rectal cancer in October 2009. Had chemo/radiation and surgery in March 2010. Temporary bag until July 2010 and then the takedown. I am having constant fecal leaking and the surgeon said he isn't sure this will stop. I am using gauze evry day and doing an enema every night to clean out, so the…
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Scan Issues, Big Bump In The Road, Anyone Know About IRE Nanoknife?
We went to get our Scan Results to be told that we have an issue, the scan shows a grape sized spot on his liver. (oh no) im scared. His Oncologist is going to do a PET Scan ASAP to make sure that it lites up. The doctor then talked to us about options and explained that surgery for him was out as he has already had a…
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Pepecan - Paella
Pepe,do you have a good recipe for paella to share? I have not made it for a long time + it probably wouldn't be authentic. They just made paella in the book I am reading, but the two Spanish helpers slipped and dropped it on th gravel, then put it bavk in the pan -yuck!
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Tumor on Left side? Not there, it's on right side
On Monday I got a call that they had an earlier appt for colonoscopy. The reason for this was to see exactly where my tumor was, as apparently it was pretty close to rectum and they wanted to make sure exactly what type of surgery they would be doing. So did the prep yesterday, went to Stanford for the colonoscopy today.…
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Miss my husband so much...
My husband survived 15 months after dx'd with stage 4 rectal cancer....I think of you all every day and wish you all the best....Don't ever give up hope....Cancer took my life.
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woke up from surgery with no front teeth
Good evening everyone! I hope it's ok to post this here...not cancer related.. Some of you may have seen me mention that I was going to have surgery yesterday..I went, they operated Doc found and removed adhesions, so, hopefully pain will be gone. My problem? I woke up to 4 strangers staring at me. When they removed the ET…