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Colorectal Cancer

Archives for July 2006

4 1/2 Years NED
Hello You Wonderful People, I am sorry I haven't been around much. I started Grad school full time and I am incredibly busy with the work from that and the kids and the dog and....Anyway I had my checkup last week and I am still NED (as far as they know). I only have to go for check-ups once a year instead of twice a year…
My heart is so very sad
I began reading this site in November of 2004 when my father was diagnosed with colon cancer. His cancer was stage 3 when he was operated on and he went on chemo right away. He was on many regimens but the doctors could never get his cea count to decrease. It was only in March of this year when the doctors were able to see…
bereavement Support Group
Hi, does anyone know of a Bereavement Support Group thats on-line. I really would like to correspond with people that have lost loved ones. I cant join one outside of the house because I have a 19 month old and its hard to find babysitters. Most of them are during the morning and my husband is at work. Thanks Mindy
The Cancer/Marijuana Connection
This isn't about colon cancer, but it's definitely interesting. Study Finds No Cancer-Marijuana Connection By Marc Kaufman Washington Post Staff Writer Friday, May 26, 2006; A03 The largest study of its kind has unexpectedly concluded that smoking marijuana, even regularly and heavily, does not lead to lung cancer. The new…
stopping chemo early...
Hi everyone. I was wondering if I could get your input on something: My dad just began Xeloda this past week in place of the 48 hour 5-fu pump. He was horrified after seeing how many pills he has to take everyday (He has to take 12 pills--6 in the a.m., and 6 p.m.) He has had to do this everyday for a week. Today is his…
NED 3 years
I don't often post, so I will give update. I was colon cancer metasized to liver with positive lymph nodes. I completed my CT Scan, PET Scan and colonoscopy this past week. NO EVIDENCE OF DISEASE. I feel like dancing!! My medical ONC told me not to change a thing. He is aware that I am still eating the Liver friendly diet…
The roller coaster ride of cancer
Hi to everyone, First, thank you for all of the wonderful information we have received from this site in the past year. We have learned much from you people. Myself as a caregiver, and my husband as a patient. Quick recap, dx. last sept. stage 3, chemo/rad. then emergency ilieostomy, surgery for removal of tumor, 6months…
Encinitas Relay for Life
Hi all, I'm writing to invite you to attend the Encinitas, CA Relay for Life on August 26 & 27. This is one of the smaller Relay's as it's still fairly new so will have that "intimate" feel to it. Information to register can be found on the ACS Relay for Life web site. Hope to see you there! (Thanks, Jose!). Howard
Happy Birthday To You......
Kathi!!!! If I read correctly, your birthday is today? Doing a happy naked dance for you here!!! ( the traditional birthday dance!) Congrats and many many many many many many more! Love, Barb
ChemoRadiation and No Surgery?
Hello. My husband was diagnosed with Stage 3 rectal cancer. He just finished 6 weeks of radiation (twice a day) and Xeloda daily during radiation days about a month ago. He went for a follow up PetScan the beginning of the week. The first PetScan showed an SUV uptake of 19.9 and now it shows 3. The radiologist told us at…
Neuropathy article
This is from an article on healthtalk.com on side effects. ...Now, at this particular meeting [ASCO 2006], there was a trial reported of a new agent, an experimental drug called xaliproden, which has been shown to be very effective in the laboratory in preventing nerve damage resulting from oxaliplatin. And so this drug,…
Surgery scheduled August 1st
Don't remember what I've updated out here, but my husband is to have colon resection with an ileostomy next Tuesday. I'm getting more nervous as the time nears. Can anyone that has been through this give me any information and what to expect? Doctor says he is a bit concerned as this is not the usual type case - whatever…
I'm new here.
Hello I'm a newbie and this is my first post. I've got all the symtoms of colon cancer and have my first doctors appointment this coming Thursday. What sould I expect...I'm already worried that I have cancer. Please advise. Thanks.
HNPCC
Hello All, This week I received my results to genetic testing and the results confirmed that my cancer is associated with HNPCC (Hereditary Non-Polyposis Colon Cancer). I have a few questions for people who have gone through this process. What is the best way to tell family members and when is it appropriate? My brother is…
*#&##XX!!!
is anyone else having tech problems with this site..it's getting worse. Everytime I reply to a post, it takes about four steps to get back to the crc forum; first I get a blank page saying "click here to return to the home page-(where I don't want to go..), then I have to go to my start page, then crc forum...GRRRR! Bud
re: good news but still troubled
Mark is back on the trial (Xeloda, Avastin, Oxy). That is good, I think, although I'm concerned about two things: 1) the Xeloda that he is going back on. He was taken off because of the raised bilirubin levels. Won't that just happen again taking the same dosage? 2) The enlarged lesions in the lungs found on the last scan.…
re: Mark back on the same study
This seems unbelievable but after the visit with my friend Mark's new oncologist - where he was told that the study he was on was not working and that he needed to discontinue it immediately AND to decide in one day which new treatment he wanted - another unknown trial or "standard treatment" (still don't know that might…
Erbitux Rash
Well as you know I had posted to find out when my husband should expect to see the "ErbiRASH" Well it's here and pretty nasty. Today will be his third infusion of Erbitux. Just wondering does anyone have any remedies to sooth it a little, I have stocked up on Head and Shoulders for him, as I read on this board that that…
CANCER & FERTILITY
I often see postings related to fertility so I thought I'd share this with those who may be among our group with questions. Sorry, guys, it's really geared toward women's questions about fertility. In our case, the simple answer is to preserve swimmers before starting a chemo or radiation regime. Your onc can help you with…
sigmoidoscopy
Since my CEA keeps rising on Wednesday I'll be having sigmoidoscopy done to see what's going on. Looking for good vibes and prayers. Thanks Sue
Just had port put in...OUCH!
Hello all. I just had my port put in so I can start chemo on Monday but I have to say that it hurt a heck of a lot more than I counted on! They did tell me that since I am so small that I will have a lot of bruising but I swear this hurt more than my incisions from my surgery. Also, I was awake the whole time. They had…
Friday Giggles
Hi All: Here's some hyperbole to get your weekend started on a real buzz :) Cheers, Ying - - - Mighty Mouse Three mice are sitting at a bar in a pretty rough neighborhood late at night trying to impress each other about how tough they are. The first mouse orders a scotch, gulps it down and slams the glass on the bar. He…
Proton therapy
Hi everyone!!!! I was wondering if anybody on this web site has been treated by proton therapy. There are a few places in the U.S. (a new, large facility at MD Anderson) that have this type of radiation. They claim they have treated gastrointestional tumors. I am looking for a place that could remove "an inoperable" tumor…
To Jose
how come I have to re-enter the crc forum every time I reply to a post? Bud
Research...
Hi everyone. I have done a lot of research about a supplement called Avemar. I have mentioned this supplement before with few responses, and I'm not sure why. Am I missing something? It seems like something that could slow down the metastasis of colon cancer. Here is something I read on the "Self-Help Cancer" website.…
Has anyone tried Sutent?
My dad has stage IV colon cancer that has spread to his liver, lungs, spleen, etc. He has tried everything and nothing is working. He had some success with Oxyplatin, however the neuropathy in his hands and feet was devestating. It's been a year since he had his last treatment with Oxyplatin and he is just getting feeling…
Done Chemo!!!
Hi All, I don't start topics often but do post to others. To give a little background. I was dx Dec 19th 2005 with T3 1node colon cancer and had my tumor taken out the next day which was my birthday. (very ironic) I was on folfox for 9 treatments. I just want to share my joy that I decided to stop the chemo and my onc…
what does it mean?
I am a stage 3 patient with a colostomy. I think that there may be blood in my stool, but I am not sure, it could be that my stoma was irritated last week and it may have bled a little. How do you get those fecal occult blood papers? What does it mean if there is blood in my stool? Is the cancer back in my colon, or is…
Survey - how many trials have ya'll been on?
My friend is going for clinical trial number two. The doctor said it is not uncommon to go from one trial to another. I would love to know anyone's experience out there with this. Has anyone been on more that one? How long were you on it/them? Thanks so much. Kathryn
Good Rectal Cancer Survivor Stories??
Hi all, I am doing really well..about 3 months post treatment. Getting back into exercise, eating well. Went away last weekend to a really neat lake in the north cascades here in washington to beat the heat. I read here often....and want to try to post more especially to new folks just starting treatment. You will get…

Colorectal Cancer

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