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CT scan this thurs
Hi again. Well, my marvelous recovery continues. I am feeling so good. Thank goodness. I have a CT scan schedule this Thurs to check my right lung tumor.... the last CT looked really good. My surgeon thinks he may be able to preserve the right upper lung. (please oh please). One of the side effect from taking erbitux (also…
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time for a bit of a laugh....excuse my sense of humor
G'day, I was in hospital the other day and feeling a bit down due to dh current problems and the nurse came in and told us this joke.....now I am not normally a joke person, but I immediately thought I have to share this with everyone on here cause you would appreciate it.....It's a bit long winded .....but it's worth it…
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Scared...
Hi All, I guess I'm "scared" and wonder if I could get some feed back, please... I talked to my mom this morning and she is "finallY" going to start chemo this coming Wed. She told me that they were going to be doing (6) hours of chemo on her Wed. And the onc. "did say" that they were going to attack this "aggressively"…
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CT Scan
I just had a Stage 2 colon resection 5 weeks ago, now a CT scan shows 1 spot at the very top of each of my lungs and a 5 mm spot on my liver. Now they want a PT scan that I am doing. How often are CT scans reliable ? Freaking out in OHIO
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HELP!! Skin breakdown/infection from iliostomy
I posted something for my friend Mark last week asking how long one can leave on an iliostomy bag. He's really been having grief with this from the beginning but since he discovered benzoid, he left his last back on for 16 days. Not having access to the nurse (she's an idiot anyway), apparently leaving it on for this long…
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thanks
thanks to everyone who responded to my "good news"..this site has been my extended family for over 5 years-I have much to be thankful for; not the least being CSN
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Home from surgery
Hi everyone. I am stage 4 rectal cancer with mets to my liver.. I went into hospital Tuesday for my laproscopic low enterial recection and arrived home today around noon. I am so happy to have this part over with and hope I will have no complications as everything went great. I feel great and will now heal and get worknig…
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Neuropathy Relief
Hello, My brother has completed his second round of aggressive chemo after colon cancer recurred in his liver. He had surgery to remove two lessions on the liver three weeks ago and the surgeon feels that the outlook is good. Right now he is dealing with neuropathy in his hands and feet. He feels like it has increased…
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Recent conversation w/mom!
Hello All, First off... I wanted to say "thank you" to all the responded to my first and definitely not last posting. I cannot tell you how happy I am that I made the decision to join this family! ;) I promise once I leave work here I "will" respond to all that have so kindly e-mailed me! And quick question here... I…
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redtoenail.org
this is a cancer site (Blog) by Dr. Phil Berman-(Lung Cancer Survivor)the name derives from his plan to paint one toenail for each year he is a cancer survivor.A portion of his statemet follows: "Once there are enough of us, we become a powerful force in cancer care. Think about it. Every body that profits from our illness…
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Good Scans!
Hi Everyone, I haven't posted in a while. I've had a lot going on at home and have been really down. Originally diagnosed March 2004 with rectal cancer, a large tumor, but no other involvement. I did 5-1/2 weeks of radiation and chemo(xeloda), then surgery resulting in a permanent colostomy and 6 more months of…
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EGFR
There has been mention recently in posts about EGFR; here's a link for those who have not heard of this research; http://www.egfr-info.com/ cheers kanga
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Stage IV's please respond...
WOW... where do I begin here... Well hi everyone! My name is, Mary, and my mom was diagnosed with stage IV colon cancer at the end Jan. 06 with met to her liver and lungs. I plan on being there for her every step of the way; and am trying to keep a positive outlook in all of this... it's really hard you guys! Plan on…
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Good News
for those newbies who don't know my history; I'm crc with mets-(12 plus) to lungs, 5+ years since original dx and surgery. I've been on Avastin/Erbitux monotherapy for about a month. saw the ONC yestrday, and CEA has come down from 18 to 6! Although inconclusive w/o scans to confirm reduction/growth of tumors,this is good…
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Foo Bird
Subject: The Foo Bird Message: I LOVE bad jokes..thanks Sponge & Kanga. Here's my contribution: This eccentric rich scientist spent most of hs time studying rare birds. One day he receives a call advising that a particularly rare bird, the Foo Bird, had been sighted in Africa. He immediately rented a jet and set off in…
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Ever wait so long for a CT scan?
My friend Mark had his rectal surgery on Feb. 2nd. They have finally scheduled a follow up CT scan for him for March 28th! That will be over two months when they finally get the results. They had one scheduled already (with much prodding from me) and cancelled it at the last minute due to an emergency. I personally think…
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Thanks and Question
Thanks to everyone for all the kind words on Tuesday (from my earlier post regarding my moms clean scan results). SpongeBob was correct when he said that now the period of "worrying about every little tummy ache begins !" Needless to say, my mom is getting tired of watching us freak out everytime she sneezes. One another…
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Friend's day Stage III Colon Cancer
My friend's dad just diagnosed with Stage III Colon Cancer. He's 80, the MD trying to say chemo may not help, not giving much hope. I suggested 2nd opinion might be in order. Told her not to give up. Tell him not to, either. She had so much pain in her voice. I cried. It's been a year since my diagnosis. I though I was…
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Liver mets
Hi all, Yesterday we got results of my husbands ct scan which shows no change to his previous scan 12 weeks ago. He is stage 4 with liver mets and after 6 treatments of Folfox6 and avastin he responded well with 30% reduction in size of tumours but after 5 more treatments the tumours have remained the same size so the…
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Possible Clinical Trial at NIH/NCI
Hi all - This week I have been talking to docs / nurses involved in a clinical trial at NCI. The trial involves radio frequency ablation of liver mets but with a twist. They inject you with doxorubicin (standard chemo drug used for breast and other cancers). The drug molecules, however, are "micro-encapsulated" with…
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Catalina Foundation: for women with rectal cancer
Hi. I also wanted to let you guys know that some relatives of mine have begun a foundation called the Catalina Foundation: for young mothers with rectal cancer. The hope is to expand to serve all with colon and rectal cancer. and to partner with other organizations and do fund raisers and provide education and awareness. I…
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I got accepted to be a 2007 colondar model!
Hi everyone I applied for the colondar and got accepted. Anyone else here doing this??? We shoot in June. This is so exciting. 24 folks selected from all walks of life so I will get to know them well over that weekend. Molly from the Colon Club seems so ultra cool. Any of you know her? Claudia
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A LITTLE HUMOR
I went into my oncologist's office for my first rectal exam following chemo. His new nurse took me to an examining room and told me to get undressed and have a seat until the doctor could see me. She said that he would only be a few minutes. After putting on the gown that she gave me I sat down. While waiting I observed…
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just diagnosed stage III rectal
Had my operation on 4th January. Clear margins - 2 out of 17 lymph node involvement stage III. Started Flofox on 28th February. I have been having trouble with diarrhea since the operation and take immodium. Is taking Immodium EVERY DAY the only way that I can control the diarrhea. Once I take the immodium lie down for an…
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Facing Our Fears
Hi all, I have my colonoscopy scheduled for this Friday and I just wanted to share some of my thoughts with people who understand. For those of you who are not familiar, I am a 43 year old and seven year survivor of stage 3 rectal cancer. I endured almost a full year of preoperative treatment, surgery and chemotherapy to…
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re: For Stacy
Stacy, I posted something under your post regarding the iliostomy topic below. Thanks! Kathryn
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More great news!
Hello everyone, I had my CAT Scan results today, completely clear!!!! Dr still worried a bit as my CEA is still climbing, but I had another blood test today and will have one a month and go back to him in three monts time. I am so pleased as the no one grandchild is due in 2 weeks and I will be able to go down for the…
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great news to share
Hello All, I thought I would pass on some wonderful news - my mom (originally diagnosed Jan 2003, Stage III) received a clean bill of health at her 6 month checkup today.. All her Scans came back NED ! As most of you know, waiting for the routine follow up results is a tortuous experience, at best. It is such a relief. (we…
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Elevated Alkaline Phosphate Enzyme
I have had elevated liver enzymes a couple of times and then when I go back to the dr they are normal. Have any of you had this issue. Also the week before the bloodwork, I was sick with what I thought was the flu, stomach ache, low grade fever, but no throwing up. I do have diverticuli and I believe that was the problem.…
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Thank you!
Last week my onc. ordered a CT scan and PET scan because of slowly rising CEA levels during chemo -- and some messed up liver enzymes. Both tests came back clean -- no evidence of cancer! I appreciate all of you for the support you have given.