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A Long Weekend for Me!
Hi all! Me and my hubby are heading to RI for a long weekend! Won't be back til Wed. I will be keeping you all in my prayers and will miss you. Mary
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colon surgery recovery
My mom recently had her laproscopic colon cancer surgery last Friday. The good news is that it was only in stage 1. The other news is that she's having problems recovering. I guess it's not just too serious, but her colon has inflated and she has some blockage there and she is constantly throwing up. So, now they have put…
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Help with correct spelling
I am spelling this drug like it sounds but what is the correct spelling? Er-a-t-can
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Colon Palooza 2
Just a reminder and an invitation to everyone here to put October 25 - 28 on your calendar!!! That's the Colon Palooza 2 date in Las Vegas at Alladin's Hotel. Good fares can still be purchased and if you act NOW you can still get a good room rate. It will be lots of fun, meaningful conversation, and did I mention FUN!…
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Opinions, please
It is approaching the one year anniversary of my diagnosis. With that comes time to do the colonoscopy. We are in a new town which is small enough that your GP does everything from the delivery of your babies to seeing you for the common cold. Today, I saw the GP for my annual woman wellness exam and while I was there…
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Linda and Jana
Linda and Jana, I have been AWOL for a few weeks. Vacation and then other non cancer stuff. I logged in tonight for the first time in over a week and found myself crying just thinking of you both. You are 2 of my original lifelines on this board and your pain is mine and has been from day 1. Linda, Do what you can for…
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How many treatment drugs are there?
My dad was diagnosed with Stage 4 colon cancer with mets to the liver. He has been on a couple different drugs...I know there is Avastin, Oxaplatin(Eloxatin), Erbitux(which I was told is not a chemo drug but used to help shrink tumors), 5-FU(Zeloda, Xeloda pill which equals the infusion form of 5-FU. Do I have this much…
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Tumor Marker Levels
How much emphasis did any of you put on your Tumor Marker levels? We've been told not to pay that close attention to them because they truly only go by the CTScan then we've been told well yeah they do use them some to give them an idea if something is going on. It's so confusing. My dad had his appointment and treatment…
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Two years and counting
Hi - must be a year since my last post - just to let you know I got the results from my latest CT - 2 years after diagnosis - and it's still clear! I do keep lurking around here - I know a bit of good news is always welcome!
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ct scan results
Ok I think i have good news but i'm not sure. my dad had his ct scan today and everything looked fine except for a tiny spot in his lung that was there last time but it looks a little more "conspicuous" but nothing to worry about evidently. The radiologist thinks its a granuloma. DOes anyone know what a granuloma is????…
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hello just an update
have not been on in a while. well i am going friday for my 6th treatment of folfiri and let me tell you that is a proper name. after that i think i will be scanned. my physical symptoms have improved. i am still kicking around some other alternatives but i will wait to see what the scan tells us. in the meantime i read the…
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Happy Birthday Judith...
Hi Semi- Colons, Let's all join in and wish Judy a very Happy Birthday, 55 years young today..... So Judy I hope your having a Super Day with family & friends. Always, Lisa Rose
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Radiofrequency Ablation
Have any of you had Radiofrequency Ablation on your liver and was it succesfull, my dad is supposed to have this as his heart is not strong enough to take the liver resec... I am so scared for my dad, I just don't want to give up hope for him, but things are getting worse not better. We were so looking forward to this…
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claudia
I have been thinking about you... I almost called you this weekend, but I wanted to give you some home adjustment time. Thanks for the sweet note. I hope you are feeling better. I swear, other than a few lung mets, it gets much easier with time. I'll be strong.. and so must you. I really think the meditation/prayer/yoga…
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but wait -even more bad news
I got the final results today and looked at the mass. IT IS SOO BIG AND UGLY. The onc said he hasn't seen something grow this quickly. AGH And I have a new left lung met. It is the normal and dealable size of 2mm. My thoracic surgeon is out of town this week. I don't meet with him until Monday. AND, my onc is worried about…
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Liver Hemangiomas
I need positive thoughts and stories please! My mom has been through a CT Scan and a liver ultrasound which found a 'spot' on her liver. We thought it was confirmed not to be cancer but it hasn't. Has anyone had a spot on the liver after colon/rectal cancer that turned out to be nothing? julie
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Another Update
Hi all, it's been a hell of a weekend. I had to call an ambulance for Scott Saturday. His pain was excrutiating. It started out as a dull pain in his groin area and worked its way down his thigh and into his back now. He has some kind of blood infection. They have him on antibiotics. They started him on morphine but the…
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scan on wednesday and question
hi guys, it's scan time once again for Daddy, and of course and as usual, i'm scared to death. He had his routine blood work last week and I am thrilled to say his cea is normal at 1.0, but it was always normal, even when he had the colon cancer in him, which turned out to be stage 3, but the one thing really worrying me…
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I Love NED!!!!!!!!!!!
Hello Have been reading everyone's posts but have been so nervous about my boyfriend's scan last week that I haven't been able to think straight at all. Well.... his CT scan is clear!!! He had 3 or 4 mets to liver in June. I love erbitux!! Onc said that he can't believe the results and that we should be "cautiously…
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For all of those going through bad times
And even those who aren't... I have been so busy lately that I haven't had much chance to reply to any messages though I read them every day. I know that I am still new here and very unknown so I know my lack of responses aren't missed. I do want to say this. Every message on this board touches my heart. Whether it is…
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HNPCC
I was looking for some opinions on HNPCC testing. After my next surgery I have been referred to discuss it with the genetics counsellors. From my view, the good things are; regular screening for related cancers (not covered without positive evidence of HNPCC), allows informed decisions about having children (50% is a big…
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Complete badness
Ran into the oncologist at the gym this afternoon. We both did our seperate workouts and then he called my husband and I over to let me know the spot has grown. It started as a <3mm area of unknown inflammation, now it is >3 cm mass. The thoracic surgeon states I don't have time for pre-op chemo... that if I wait, the…
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Update on Scott
Hi all, it's been a while since I've posted. Things have been hectic with the kids going back to school. Well Scott had a meltdown last night. I felt so helpless! He has another fistula and this one is leaking bad. The wound nurse gave him ostomy bags to collect the fluids, but they break easily. He is just getting more…
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Neuropathy
Hi everyone question. I have been off Folifox treatment with the oxiplatin(sp) for about a month. My hands and feet are worse then being on the chemo now. Some times I have these sharp big toe pains that stop me in my tracks, also my feet are more numb causing me to drag my feet when I walk. At times it feels like my shoes…
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CT; take 2
Well, it is that time again. I got my repeat CT on Thursday... and now I wait for the results on Monday. I am asking for the good vibes to come flowing my way - chasing off any cancer!! I had a scan 2 months ago which showed "activity" above my right hilar lymph nodes (in the lungs). I had a lung met removed 5/04 and would…
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Grateful
"Theoretically, you are supposed to be dead." That's what my oncologist pointed out to me yesterday. Thankfully, I am far, far from dead. I completed a 60 km walk over two days a couple of weeks ago to raise money for cancer in memory of a dear friend we lost last year to the beast. I started graduate school last week. I…
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My Sweetie is Hurting and I hate it
well my husband Hayes is going through it. He asked for his chemo to be changed on FOLFOX w/Avistan as he cannot deal with the neuropathy he has it pretty bad. Well now his hands can hardly close as it so painful, does anyone know if this is normal? He will see his doc today, so that will be a main topic of conversation i…
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Hello Everyone!!
Hi guys! I am sorry that i haven't been on board in such a long time. Things for me haven't be the greatest. I am still trying. I just don't know which way to go anymore. I have been going through the motions for so long that I don't know what reality is anymore. I am trying to do everything I can to stay grounded. I just…
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Beci -
Hello! I am so sorry to hear of your husbands passing!!!! I know to well how you are feeling!!!! It will be 9 months for me on the 24th and it still feels like the day of!! If you would like to talk, maybe we can help each other. Plese email me if you would like to!! My deepest sympathy!!!! Sue
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Cancer-free and NED
Now that all of my doctors have reviewed last week's PET scan, which shows that there is no longer any cancer in my liver but suspicious activity in my formerly colon area, I can now say that I am cancer-free. I still have to endure a few more chemotherapy cycles, just to be sure that all the stray cancer cells are killed…