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Caregivers

Archives for August 2011

I'm a caregiver, my fiancee is a survivor, and a patient and his prognosis is good. We are in Watch
I'm having a hard time right now. My fiancee is a 10 year testicular cancer survivor, and is in remission from lung cancer (ok not really remission, but he has no heath insurance and the indigent care at the hospital says watch and wait until it becomes life threatening again and then we'll look at more treatment.) We…
Hi all,
Although I've been posting on the esophageal site here for months, I have not ventured into the caregiver site until today. I guess I've just been so busy trying to 'fix' my husband, that I've forgotten about myself. But, alas, here I am. Let me introduce myself. My name is Chantal and my husband is Lee. He was diagnosed…
activities
Hi all - my mom has late stage primary liver cancer. There's not a whole lot she's able to do...she has problems with her eyes and can't focus to read. She sleeps most of the time, and when she's awake is incredibly fatigued so moving around isn't an option. She has tremors and such so anything requiring fine motor skills…
He is dying now
My Ric has maybe another day in this world. I am so broken inside. I'm trying to remember the good times, but he blames me for "poisoning him" and "Killing him". Hospice says it's the tumors in his brain talking to me, but I can't completely believe them. I got him to do Chemo, so by that respect, I DID poison him. In…
Violent Delusions?
My husband has become convinced over the last week that I am "trying to poison" him and that I am "the Antichrist". Giving him his medications (Ativan, Morphine, Dilauded, Prednisone, and oral 5FU) is becoming harder. Tonight he grabbed and twisted my arms for over 2 hours while screaming that he is being held prisoner…
A Caregiver's Life
I am posting this in this section because my husband suffers from Liver Cancer and I know that there are plenty of caregivers who read this particular section because they too have a loved one who suffers from Cancer! I have participated and read this page since my husband was diagnosed in 2009. Most of the time it has…
Mom is stage four small cell lung cancer
Hello, Mom was diagnosed with stage four small cell lung cancer with mets to brain, liver and bones on June 15. She has tolerated three rounds of chemo pretty well; just tired...but Decadron and other anti-nausea helped with side effects. She was in ER the week after first round of chemo due to a bladder infection. She is…
grandma
omg i cant believe that i just realized that there is a caregivers forum! my name is lani im 21 years old i work full time and im in my senior year of college. I have always thought of myself as a good person yet i feel like im being punished. When i was 19 years old i witnessed my aunt pass from lymphoma. I was her…
kimmygarland?
I have found myself wondering about kimmygarland. Has anyone heard from her?
sodium levels
Has anybody here ever had low sodium levels? My husband has been in the hospital since Wednesday evening with low sodium levels and pneumonia. He saids that he was feeling real weak. He had a low grade fever that is why I took him to the ER. The doctor said that his sodium level was 126 but he wanted it to be at least 135,…
25 yr old husband with possible renal cancer
My husband is 24yrs old and had a 4.5cm mass found on his kidney 3 months ago. The radiologist and urologist decided it was a complex cyst, and we needed to rescan in 3 months. Well...the urologist called today and said the radiologist was more concerned this time, so a total nephrectomy is coming up. We meet with the…
Emotionally and physically spent
Not even sure where to start here. This has been a week from He**!!!!!!!!! My dad has been deteriating so quickly it's making my head spin. He started getting numbness and weakness on his right side. I've noticed it was getting worse for about two weeks. I finally got him to mention it to his hospice nurse... She did a…
29 year old wife caring for 30 yr old husband with stage 4 colon cancer
Anyone else in their late twenties or early thirties and caring for an equally young spouse or partner with stage 4 cancer? Looking for people in my same boat to chat with about coping with this disease and all the crap it brings you. My husband just started his first 6 mo Folfox chemo regimen on 8/12/11.
Anyone a spouse or partner of someone going through chemo right now?
My husband has stage 4 colon cancer and just started his 6 mo Folfox chemo regimen. He's only 30 years old. I'm looking for someone to chat with about coping with having a loved one going through this.
My Turn
Not my turn to have cancer, but my turn to be the one that everyone is worried about. I'm throwing in the towel and going to see my doctor today about a bucket of symptoms I'm now starting to think are all part of menopause. Hot flashes, I could live with (don't get those anyway) - ditto the hairy chin, the weight gain,…
The End is coming
Well it's been awhile since i posted: Things have not been great honestly.My dad is getting worse quickly. He's been doing so well for so long. And all the sudden we hit a brick wall!! He is 58 years young. Stage Iv stomach cancer mets to spine esophagus and kidney possible brain. We've been in hospice for the last four…
Brain Mets...and have a fantastic day!!!! (some sarcasm)
So, we had a PET scan 16 days ago showing no further spread, Cancer of Unknown Primary still in Lt. Axilla only...but Monday night, my husband became confused again, responded to a trip to the ER and IV saline, was GREAt Tuesday morning....tuesday night...confused again, back to the ER, CT scan performed...lesions…
managing lung cancer cough
My mom's late stage ovarian cancer has spread to her lungs, and her occasional coughing spells are getting worse and more frequent. Besides codeine cough syrup, do any of you know of other ways to manage the cough? I did some research that suggested inhaling steam, but wondered if anyone tried it.
New to all of this....
Hello, my 86yr old dad was just diagnosed with stage 4 non-hodgkins lymphoma. Because of his already ill health, weakened condition, dr. is only giving us a time-frame of "months" (because dad does not wish any treatment or want to "fight" this). Needless to say, many many decisions to make very soon. I simply want to…
dealing with a borderline sibling while caring for dad
Does anyone have any tips one dealing with the out-of-town borderline sibling? Our dependent dad has stage 4 melanoma, in the brain and lungs, and he is doing "OK" at the moment, all things considered. Not so sound trite, I know she has a very real problem of her own (but will not get help), but I cannot handle it and have…
Need a better frame of mind!
I am overwhelmed with sadness. Her diagnosos came only 2 months ago. Lung cancer that had also moved to her brain. They radiated her brain and the maintenance medication has made a vegetable of her. She is 77. Overcome many a health issue before but it seems she just isn't going to take the next 6 months of chemo standing…
Comics to laugh and cry with
My kids subscribe to this online comic and passed these on: http://xkcd.com/933/ http://xkcd.com/931/ (Sorry, have to copy and paste as I STILL haven't learned how to make links.)
How to cope/help a person who is in pain?
When you are seeing a person with cancer in pain and there is nothing you can do, what do you say?
a poem titled "Will We Ever Know"
Will We Ever Know Tears are inseparable from cancer In a similar way compassion is bound to our hearts wings Cancer leaves an undeniable grip on us as we breathe its danger Upon hearing about someone’s battle and all that cancer brings Our very steps are stopped in their tracks Before we can catch our fleeting breath A…
Hello - I am new here
Hello - I am new to this forum. My husband had a GBM tumor, brain tumor. He needs help 24/7, I am currently working part time, how much longer I don't know. It all depends on how much longer work will put up with me. I do need a little income to make it. My husband had surgery on 6/3 and the doctors said they removed it…
It's Gettin to Me
Watching her strength, stamina, memory and just caring slowly disappear is really getting to me. Going from a patient, do anything I can, caring husband when she's awake to an angry, resentful, don't give a **** about the world zombie when she is asleep. I can't accept this torture she is having to endure as part of any…
dad hovering between reality and denial about his health
Taking dad for a followup with his Onc tomorrow. Finished round 3 of 160 mg Temodar (3 wks on/ 1 off) which is treating stage 4 melanoma with numerous lung/ brain mets. During the first week of the last round I had to take him to ER for chest pains. Not his heart, best estimate was tumor pain. (Had been very lethargic,…
having more kids .. uknown... :(
My daughter just asked me if I had a baby in my tummy? I wish so badly I could say yes honey! I hate that an innocent question from my 5 year old would not get me so down. I wish I could see into the future and know that indeed we will be able to get past this hurdle and be able to live long happy lives and be able to have…

Caregivers

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