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Caregivers

Archives for May 2011

More Good News
We have more chemo tomorrow, started pre-meds today, Dexamethasone 8mg orally 2xdy. So far, so good. The new good news is, though, that my husband had a bizarre rash spreading over his chest that the onc. was totally baffled by...after his mental reaction I did a TON of research, and discovered all of the "weird" stuff was…
Rife Machine Rental
I am looking to rent a rife machine made by Gary Wade for 1 week. I live in North Idaho but would be willing to pay for shipping. Are there any networks that provide these sorts of connections or does anyone out there have one to rent? Feel free to contact me at prairie39@juno.com.
micgrace
Wondering how you and your lady love and the family are doing. It's Memorial Day weekend here in the States - lots of time for thinking. For me anyway :)
Need to vent
I'm truly amazed at how callous and uncaring some people can be, even family. You really see who cares and who doesn't when cancer enters your life, or the life of your loved one, don't you? Their true colors come glaring through their bullsh!t, and you see them for the small, hypocritical, selfish, self-absorbed a-holes…
Do you know if Marinol can be prescribed in Alabama?
Dad's lost his appetite. It wasn't affected during the 15 brain radiation sessions, though some thing didn't taste as good as usual, he still pigged out. the week rads ended, chemo (160 mg Temodar) began. It took over a week to see his appetite begin to fade. Then there was a 3 night stay in the hospital for blood clots in…
Goodbye Bob, my defiant Harley riding husband
I should have known my husband would have the last words even though he was not aware of his surroundings in the end. I guess he showed everyone he was going out on his terms and that meant "when"... No time for Hospice for him! I'm thinking he had a big ride planned and did't want to hang around waiting for us to finish…
Saying Goodbye To My Best Friend
I think I'm going to be sick... my head hurts, the tears come when I don't want them to, people hug me when I'm not ready to receive them. I'm so not ready for this! Bob's doctor's appointment on Tuesday, MRI - no new tumors... that was the good news. The days leading up to that appointment were scarey, I didn't think I…
Almost like the Diagnosis of Cancer all over
Wow it's been awhile since i've even been here... But Here I am Caregiver to my father with stage IV stomach/esophagus cancer. Today was the day we had been waiting for, the day he had his scope and espohagus dialation. We thought just get through today and everything would be fine again. He'd be able to eat and drink…
DOCUMENTARY TONIGHT 8pm on HBO, WHAT U NEED TO KNOW ABOUT MAKING END OF LIFE DESCITIONS&YOUR RIGHTS!
"How to die in oregon" is a documentary that will be airing tonight on hbo at 8 pm. It follows the lives and the struggles of quality of life over quantity of life. It is definitely something to see. Best documentary at Sundance Film Festival. Tell your friends and families unfortunately this is something we will all face.…
I am afraid...chemo
I am turning here because I am afraid and need help. We found out my Mom had cancer in mid March. Since then my whole life has been turned upsidedown. Her cancer is stage IV and I am so scared of the unknown. And each day it seems that I venture into another day of the unknown. She had her first chemo treatment on Monday.…
How many treatments
My husband was diagnosed with colorectal cancer Nov 14, 2010, stage IV with numerous mets to liver. He will be taking his 11th treatment this fri. and number 12 on June 13, 2011, they dropped the oxy due to fear of too much nerve damage still on 5fu. After that the onc is talking about a 3 month break and go from there. I…
Keeping vigil and lighting the candle for Steve update
Steve is still holding onto this world,the nurses persuaded me to shop for groceries yesterday as the vigil is much longer they than expected.It was very strange to step out into the world again after ten days in the house almost alone except for a nurse. I have tried to post and thank you all several times-but I see my…
Love
“Love knows no limit to its endurance, no end to its trust, no fading of its hope; it can outlast anything. Love still stands when all else has fallen" I don't know who said that, I found it and thought I would share it.
Virtual Hugs To Everyone Here... Can I Give You Back My Ticket For This Roller Coaster Ride?
So once you are on the ride there is no getting off, right? Maybe for some people there is but not for those who lead with their heart. For some of us there is only one ride and that is sitting right beside their loved one holding on for dear life. Because the one person who didn't ask to be on the roller coaster ride of…
saying
I love that say "marriage is a challenge cancer is the test
Good News :)
Well, So Sorry I didn't post yesterday, but entire day was devoured by Oncologist, Radiologist (Hector the Awesome), and a drive to the Neurologist who we saw this morning. Now, for the Good News~~MRI shows NO spread to the brain!!!!! My biggest fear after the weekend of Hell was ENTIRELY unfounded! *Jumping for joy* As…
Exhausted
Roby had his APR surgery on Monday and had to have another surgery yesterday to repair part of the incision. I think he's doing better of course he's "Mr. Gloom and Doom". I've been with him everyday all day, I was going home at night (35 miles away) now I'm staying in a motel a block away so I could stay with him longer.…
new here, feeling down,
How is everyone? Situation: May 25th: took my pregnant wife to er room due to extreme back pain and vommiting. Spent 3 days in the hospital trying to find out what's going on, due to the baby, they couldn't do certain tests. Sonogram picks up renal mass. May 28th: Induced Labor for three days, which started March 30th, my…
Taking care of Jack
My name's Alicia. I have been helping my mom care for our friend Jack for about two years. In the beginning he wouldn't say much about what was wrong with him, but we knew it was more than the Hep C he's had for years and years (he got that from a blood transfusion after a motorcycle accident when he was much younger). We…
So Tired And So Many Questions
Im the caregiver to my father he is 57, Been diagnosed with stomach cancer/moved to esophagus. Im trying to do everything esentially on my own. Im so wore out physically and emotionally. He's Stage IV. Today we have two different appointments I've had no sleep yet again due to my unruly schedule. Im really hoping today…
Feeling run down :/
My mom's cancer is growing in many different places now. Since a hospitalization in October of 2010 she has been in one institution or the other. Her doctor finally said she needs to be at a skilled nursing facility for the time being as I alone cannot provide the kind of care she needs. Dealing with her cancer is hard…
rollercoster ride part 2
Well the xeloda and temador didn't work this time around. Tumors popping up all over the place. We will try to get into trial this week. Still a few other options too. All prayers welcome! Steve
Very new here not a clue about being a caregiver
My wife has just be dxed with a stage 3 glioma. I have not the slightest idea on how to be a caregiver. A role I did not want in a club I did not want to join. But I have been chosen. Suggestions.??
New here, feeling sad
My husband was diagnosed with multiple myeloma 6 years ago. We’ve had a long fight with chemo, spinal cord injury and surgery, kidney failure and stem cell replacement. It is so tiring and so sad. We have 2 boys that are 16 and 11. Their dad doesn’t work now so they get to have more of him in their lives, for this I am…
*sigh* My life has become Hell
Short story 31/f married to 64/m with Parkinson's Disease and Cancer of unknown primary. Both are being treated by the dept. of Veterans Affairs Medical Center. I am so damn sick of the run-around the VA gives that I want a second, independent opinion....problem...no insurance outside the VA, and the VA won't give us a…
Keeping vigil and lighting the candle
Today Steve moved towards the end of his journey here, the house was lit with candles for when those that wanted to come and pay their last respects, would find the peaceful atmosphere that we have in these past days. Seizures continue and he floats between two worlds now. Many times they wanted me to put him in the unit,…
How do you begin to think about the beginning of the end...
How does one even start thinking about the beginning of the end. I talked to my wife's onc at length this evening and since she has cancer cells in the brain (mets cells in the csf), there are parts of her brain that will probably be permanently affected. She told me she has what they call the 'flat affect'. She is very…
Could really use a miracle, a hug, and some advice (in that order)
Hi there: I'm a thirty-year-old who is caregiving for my mom. She was diagnosed with Stage IV Lung Cancer, with Brain Mets, in July 2010. It was very unexpected. She went through emergency brain tumor removal surgery and treatment that was so aggressive (whole head radiation, followed by simultaneous chest radiation plus…
Hospice versus "giving up"
I was sad to read the news: "Harmon Killebrew announced Friday that he no longer plans to fight his esophageal cancer and has settled in for the final days of his life, saddening friends and fans of the 74-year-old Hall of Fame slugger." But sadder to read the Yahoo link for it: "Hall of Famer Harmon Killebrew gives up…
A day off!
I have a day off, all to myself! Hallelujah! (My FIL took my dad out for a day trip before his chemo starts tonight.) Now, what do I do for fun again? Where do I begin???

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