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Caregivers

Archives for July 2009

kids
ok for those of you who dont know me im a 42 yr old whose wife has sclc-ed and shes not doing well.Treatments have stopped,and hospice has ben brought in.Barb has ben doing well emotionally however there seems to be much ado about telling my kids(boys,11&13)about whats happening and whats going to happen.On two diffrent…
Taking care of a spouse/partner
I've been caring for my spouse for over 5 years as he battles kidney cancer. We are both in our early/mid 30's and been married 11 years. Are there any other spouses around our age dealing with cancer and marriage issues? It seems that although all marriages go through difficult times because of cancer...younger couple…
how to juggle helping your mom with cancer AND help myself?
I nvr realized there was a "Caregivers" section here....my question is my mom has been diagnosed with colorectal cancer with liver mets....onc said 6 mo to 20 months, i refuse to believe this....its been 4 months and i dont like to count months, but its getting harder and harder to take care of myself during this ordeal. I…
losing it....HELP!!!!
My mom was diagnosed with Ovarian Cancer in March. Life has been HELL!!! I live with her and take care of her when she is not in the hospital. I have lost friends and apparently my mind and there is so much more to go. I am lost. I love my mom more than anything in this world, but I feel like I'm losing myself. People I…
Been running myself to death and its just the first month
My fiance was diagnosed with extragonadal mediastinal germ cell tumor (yolk sac) 4 weeks ago stage 3 (possibly stage 4). He has been put on a ventilator to help him breathe because the tumor is blocking his airway and collapsed his left lung. It is causing pressure on his heart that caused pericardial effusion. They…
Physical Activity
My husband had surgery on June 1 to remove a large part of a metastasized kidney tumor. For one month prior to this operation and until today he does minimum physical exercise. He has been going to physical therapy twice a week. Now, he is having pains in different places in his body...neck, pectoral muscles, ribs, lungs.…
too soon --- to say ........
my husband is in hospice . i called the nurse to see how he's doing and see if he was awake to talk to , not wanting to wake him up if he were sleeping . she was oh he's sleeping most of the time then needed to talk about funeral arrangements . i was oh --- i don't know ---- i need to call the crisis pager and talk to them…
dogs
a little background to get started...i live with my wife barb,our two kids and two dogs in a small 3 br ranch.Barb was diagnossed in nov 07 with sclc,and at that time her mother came to stay with us.Her mom does not like dogs,and during this visit mother in law complained about dogs constantly.Barb told her mom "you can go…
help help help help help help help
wife Deb is a 15 year breast-cancer survivor we need support help and guidance of another caregiver to help us a shoulder to cry on do the right thing and make the right decisions even if it means helping fill out certain forms a week to search out where we can pick up insurance my wife is being treated at Dana-Farber…
What next?
It looks like my dh's surgery is going to be pushed back ANOTHER week - what the heck? Does anyone out there understand he has cancer? He needs to have that surgery done to remove the darn tumor??? I guess the Lynch Syndrome Test might not be back in time and they need it to decide how the surgery will be...jeez put a rush…
Cancer humor
Hey - I wanted to share a funny moment from my mother-in-law. She has metastatic breast cancer and has had mastectomy of her left breast. She has taken to teetering around and also fell in the bathroom this last Saturday (don't worry, no broken bones, cuts - not even a bruise!). She started talking about it the other day…
help
I am asking for help and i guess support. Today I feel so alone. I been married less then 2 month My huband has bone ca with unknow primary site. He just finished radiation to diffrerent sites in his body. Later today we will go to the hospital for more testing- cat of lung and abdomen stomack etc to find the primary. Then…
ptss and cancer caregiver
Hi: Many years ago I was diagnosed with post traumatic stress syndrome (not in the military). I have learned to cope pretty good with my stress but a couple of months ago my husband was diagnosed and treated for throat cancer. According to his doctor he is doing "outstanding well". I am not. My stress level is over the top…
Where are you?
I've been on this board for a couple of months now. I'm a full time caregiver for my husband with stage IIIB adenocarcinoma. He is unable to do much of anything for himself and my life consists of caring for him at home ( I can't leave him at anytime) , traveling to doctors, going to hospitals for either ER or transfusions…
How long.........
Can anyone one on Folfox 6,during their first round,tell me what is the average amount of time to go without being able to eat? My husband still after DC on Thuresday si not able to eat more than a bite or two of food a day.
Rehashing the past
I wonder what experiences others are having with their loved one reliving the past. Specifically - past trauma of initial treatments, surgery, pain and the like. My mother in law often starts to talk about the suffering she had in the initial stages of her treatment. She usually does this until she starts crying. I am…
grief and feeling so helpless/planning future
my husband comes home from rehab tomorrow ... with hospice following close after . my husband and i have a soulmate relationship . it's ripping me up inside knowing that all too soon we will be seperated until it becomes my time to join him . i had seen my case manager and began flipping through emotional stuff grief fear…
MOM
I guess I am just looking for advice. Mom was diagnosed with a sarcoma, April of 2006 I was lucky to be with her the whole time in the hospital and then back to be with her in June and July of that year She did very well through Chemo, there were tough times and rough times and of course my dad was on a roller coaster with…
Coping when taking care of someone with mental and physical changes near end of life. HELP
Sometimes I feel like I'm at my wits end. I ask God to please help me because my mom can't get out of bed. I will probably ramble through this but I hope and pray that someone will take the time to read this. My mother has moved in with us. She has been here for 2 months now. I would not have it any other way. I love my…
Can't Cope Anymore!
I am a 33 year old caregiver to my husband who has stage IV kidney cancer. We have 3 small children and have been married 11 years. My husband's first surgery to remove his tumor and kidney was over 5 years ago. Since then we have endured several surgeries and chemo therapies. Currently he is taking Nexavar an doesn't seem…
chemo day 2 and three need hope
Well,I can say all started out really well on the first day of chemo. Sean was hungry and ate some,however day two and the start of day three aren't not going as well. We have been dripping 5FU since about 12:30 Tuesday and by the end of day one going into day two thing have went down hill. He can no longer eat and…
Please help! Can my boyfriends chemotherapy affect my skin or body thru fluids?
My boyfriend is going through strong chemotherapy treatments via port and I am concerned that the chemotherapy can effect my health through the exchange of body fluids, specifically saliva. I have recently formed a rash around my lips that seems to be severe chapping but is fairly sore and I am wondering if anyone can tell…
Husband has pseudomyxoma peritonei
husband has stage lV pseudomyxoma peritonei-does anyone have clear understanding of prognosis in terms of time?
sister has breast cancer
My sister is trying her last try at chemo. The cancer is now in the bone marrow. She is ready to give up. I can feel it. I am supporting her in everyway but it is taking a toll on me. Just need to talk to people about it.
first day of chemo.........
I wanted to post this for anyone else who maybe facing their first day of chemo. For my husband the first time sure did have him and I scared,however,upon arriving our fears were quickly laid to rest. In his case,he only did a 2 1/2 hour push in short stay and was able to bring the 48 hour drip home,therefore,as I write,he…
HELP!! MY FIANCE'S FAMILY IS TREATING ME LIKE CRAP-WHY?
HELP! DOES ANYONE HAVE PROBLEMS WITH THERE IN-LAWS BEING NASTY SINCE A DIAGNOSIS? MY FIANCE WAS DIAGNOSED IN MARCH OF 2009 SO WE ARE REALLY NEW TO THIS WHOLE THING. ABOUT A WEEK AFTER THE DIAGNOSIS HIS MOTHER AND SISTER HAVE BEEN RUDE AND PRETTY NASTY TO ME. I STILL HAVE NOT FIGURED THIS OUT BUT WHAT IS THE DEAL? ANY…
Losing my dad
Hello, everyone. What a wonderful place this is for all of us. I'm looking for strategies and support for helping my dad. He's got stage IV melanoma with mets in lung and brain. He beat melanoma twice 25 years ago. Now it's back with a vengence. The brain mets are causing him confusion and taking away his ability to be a…
Need Recipes/Ideas
I'm running out of ideas for pureed foods. Anyone got good recipes? I made a turkey, spinach walnut mousse last night that my husband said was good - it was a nice change from all the cold smoothies he's been drinking.
well all HE*^*^ broke loose in a very strange way last night!
Well, I just posted the other day that my family was a mess with DH's dx (3 weeks now). I really appreciated all the support I received here...last night it all came out and it's really strange - I feel so much calmer and in control and if I do say so myself - I really held it together and was able to function! We were all…
My family is already a mess and we are in the early stages
My DH was dxed with cancer 3 weeks ago - still in the process of going to different drs, setting up surgery and after treatment. And my family is already slipping. DH is in denial and contradicting everything I try to tell my kids - they are 16, 14, 12 - he is making so light of this, acting like all the drs. appts are a…

Caregivers

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