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Breast Cancer

Archives for February 2013

NED Has Changed to NEAD
I read this on Inspire a little while ago: I have been confused about NED and its meaning. Nothing lit up on my last Pet scan - but my liver tumor, which has shrunk by 60%, was still noted on the radiology report. So when I attend a Stage IV News seminar this week I asked on of the presenting oncologists to clarify the…
Need a Pink Bus Ride *UPDATE*
Tomorrow I go to my breast surgeon. I will have answers regarding the mammo I had 2 weeks ago. Keeping fingers crossed. I trust her with my whole being and I know she will tell me one way or the other if there is anything to be concerned about. This is the first time I have someone coming with me ... my sister. She is my…
PINK Bus-
I say we gas up the bus-all jump on and go for long ride cross country-see the sights! NO worries-just have fun! NO Doctors, no tests, no blood work-just be free to tour around.. Denise
Need help finding smaller mast. swimsuit
Anyone know where sells smaller sized mast. swimsuits? The 2 places here thst have certified fitters can not find any that sell smaller than size 8 and according to the measurements that it will fit is too big for me - a 4 should fit. Also - do not like one-piece so looking for a tankini. If I can't find a mast. suit I can…
DIEP method of reconstruction
I am considering reconstruction using the DIEP method, whereby the radiated skin is removed and replaced with skin, fat, and blood vessels from my belly. I need to wait ten months and lose twenty pounds, but I am looking forward to the procedure. Has anyone else had this procedure? What was your experience?
Maybe i'm worried for nothing?
Hey everyone, i'm not actually sure what to say and have never posted on a forum about a subject like this. I know this a "survivors network" but i figure i would get a lot more helpful answers from on here. I've been searching for forums, and came across this one. Last year of this month February i found a lump on the…
Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
O.T.65 days
Until we leave for our first "DISNEY" cruise-alone! Much needed (whole familly lives home-college daughter, other daughter and 2 grandsons ages 6 & 8! Bahamas here we come Denise
PET scan
Onc said little other than he wants me to have a PET scan and will then see me back. I asked him about my lab work and if he was concerned. He said he was not overly worried but it has been 2 years since my last PET scan, so he wants to make sure nothing is missed. Sigh.... Now here is the funny of the day. He was…
I actually got to do chemo today.
My WBC was a whopping 2! Onc said go ahead with chemo because I'll be doing the neupogin thing...did decadron with this chemo so my energy is pretty good now. Hugs, Linda
Holy Moly Cost of Cancer
Was looking at what Medicare was charged for my treatments so far, and crap, it's alot. Below are just a couple that were more expensive: Ultrasound/Biopsy/clip $6,248 Port $6,006 Pet Scan $10,183 Muga scan 1,273 Chemo 3,018 Neupogen shot 8168 (yep, that's right 8,000 for the med, 168 for the push) I don't know what people…
* If You Could Change Something About Yourself, What Would It Be? *
I can actually think of several things I would like to change about myself, so, how about you? If you could, what would you change about yourself? And, you don't need to just post one. Thanks!
New to Board
Hello, My names is Sharon and I was diagnosed with HER 2 BC Jan. 11,13. I just had a double mastectomy Feb 15,13 with reconstruction started. I will be starting my chemo/herceptin treatments around the first week of March. I'm a little afraid (ok alot) of the chemo treatments and the chance that this crap comes back. I…
Painful sores on feet after #7 Taxol
I've had some painful sores show up on my feet after my #7 Paclitaxel infusion (Taxol) I wonder if that means I'm done with Taxol? I'm sure they'll tell me on Monday, but meanwhile, I was wondering if any of you had had that problem?
I need the bus Tuesday also!!!!!!
Cypress Cynthia needs the bus on tuesday and since im riding along with her we can go to my oncologist appointment to get my bone scan results from where i had a bone scan on friday and forgot to get the bus sorry i drove my self,Linda im looking forward to the tea~~MollyZ~~
I had a blood transfusion on Friday.
Apparently, the chemo is not only attacking my WBC it is attacking the bone marrow overall. Which means my RBC, hemoglobin, platelets, etc. have been getting lower and lower too. So the onc said I needed a blood transfusion. I tell my hubby this and he freaks out...after a few hours I found out he interpreted 'transfusion'…
going bald
writting a blog about my Chemo experience...trying to find humor in a crappy situation http://chemobiyatch.blogspot.com
Great News For HER2 Positive Breast Cancer Patients
The US Food and Drug Administration (FDA) approved ado-trastuzumab emtansine (Kadcyla) for the treatment of patients with metastatic HER2-positive breast cancer earlier today. HER2-positive disease accounts for nearly 20% of all breast cancers. The new drug, known as T-DM1 during clinical research, is intended for patients…
March 3 2013 Triple Negative Breast Cancer Awareness Day
Hello Everyone, March 3rd, 2013 is Triple Negative Breast Cancer awareness day!!! Please tell your Triple Negative BC Story here and maybe we can get this page out to other sites to build awareness!!! My name is Patrice Sarnatora and I myself was diagnosed in March of 2011 stage 2A IDC. I had 3 months of dose dense chemo.…
FDA Approves Another Treatment for Metastatic HER2 Breast Cancer
The FDA just approved the new treatment for about 20% of breast cancer patients who have a particular form of the disease that overproduces the protein HER-2. The drug now called Kadcyla, combines the Herceptin with a powerful chemotherapy toxin and a third chemical linking the medicines together. The chemical keeps the…
Lymphedema treatment with Active Cancer
My primary doc has referred me to the lymphedema clinic. I requested the referral. About a month or so ago I did finally noticed my effected arm was much larger than the other. It's been 18 1/2 years since the 1st lymph node dissection on level 1 nodes and 14 years since the 2nd lymph node dissection, removing all of level…
Modified radical mastectomy and general anesthesia
Tuesday is the day. I hate this. I don't wan't anyone cutting part of my body off. That being said, can someone tell me how I will feel after surgery? I've been "under" before for small things...but never had a surgery like this, or to this extent. Will I feel awake the rest of the day? My family and friends want to visit…
Have you heard of Christina Cooks?
I was watching the create channel (one of PBS/American Public Broadcasting channels) and have seen a few shows by a lady who goes by the name of Christina Cooks. To be honest, veganism and herbal remedies are not my thing. However, while watching a show of hers when she cooked with Tempeh, some kind of tofu like product.…
$ $ $ $ I Won The Lottery $ $ $ $
YES! I got an email stating that I won the Nigerian lottery! ALL I have to do is send them some money and the millions are MINE! YIPPEE! This is about the millionth ( if that is a word ) time that I have won. I guess I need to send the money to get my millions out of the country. Do you think? LMAO Let's see, what should I…
Monthly Check-Up
Just a short post to let you Ladies know how my monthly check-up went today. Stage IV with Bone mets. No aches or pains and all blood tests looking good. Still on chemo drugs; Afinitor 10mg & Exemestane 25mg(generic brand for Aromasin). Side effects: dry mouth, fatigue & shortness of breath(if too much exertion). Still…
Gyno appt-18 mth post hysterectomy
Happy to say all good! I honestly thought after the total hysterctomy no interanl exam-but I was wrong...! (surgery from tamoxifen) Denise
Explanation of what NED means... :)
I have noticed that some of the newbies don't seem to know what NED means. I didn't until someone told me. So, just so you know, NED is a good thing! NED means No Evidence of Disease! We usually post it after a check up of some kind or a test to let everyone know that they didn't find anything. ( no more cancer or…
Newer Update
I saw and endo for my thyroid he was not interested at all with that part of my body more interested in my onj from zometa . As for my low blood sugar his answer was to see a dietation sorry about the spelling. I told I couldnt because I have almost no teeth left in my mouth . I hope later today to pickup my dentures from…
Pink Bus on Tuesday
Ok, now I am a little nervous. My markers doubled and my liver enzymes and alk phos are elevated. Cardiologist NP just called to tell me to stop statin, but she wanted me also to know that alk phos is not usually elevated with statins. I see my oncologist on Tuesday and, of course, Danny is out of town then. Katherine is…
Please, List Your Side Effects - Taxol
I would so very much appreciate it that those of you who did Taxol as a solo drug to list your side effects. Abraxane is out (for now). I did call the oncologist office and the nurse return my phone call with the message about insurance. Every time I think about my decision, I think it might be easier to slide out, then I…

Breast Cancer

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