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Help to sleep on back comfortably after dbl mastectomy & reconstruct
I am scheduled for double mastectomy and reconstructive surgery for next week. Any suggestions for comfort in sleeping on my back after surgery? I am a belly sleeper and don't know how I am going to keep myself on my back (in my sleep) while healing and while I have the drains in on both sides. Any suggestions will be…
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I may be able to donate my kidney to my son!
Some of you may remember that my breast cancer was discovered when I had a mammogram so I could donate my kidney to my son. That was 3years ago. In December I read in one of the threads on the boards that we can donate blood after 2 years. So I called the Yale transplant center and they say giving my kidney to Rob presents…
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Komen drops plan to cut Planned Parenthood grants!
NEW YORK (AP) — After three days of controversy, the Susan G. Komen for the Cure breast-cancer charity says it is reversing its decision to cut breast-screening grants to Planned Parenthood. "We want to apologize to the American public for recent decisions that cast doubt upon our commitment to our mission of saving…
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stage 3 cancer and SS disability
I was diagnosed stage 3 and I applied for temporary disability when I realized I would be having 18 rounds of chemo and would not be working all of 2010. After 9 months they agreed that I was disabled but thought I would be better in a year. Had to get a lawyer and now after two year I have a hearing next week. Since chemo…
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BRCA1, Grapefruit, and Strontium
Hi ladies, I'm an ovarian cancer survivor who learned some interesting things from my naturopath today. Sorry, I cannot quote the sources, as she said these were just small mentions in larger, unrelated papers. BRCA1 positive wormen should NEVER eat grapefruit as it interferes wtih the p450 pathway. And BRCA1 women should…
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Tamoxifen side effects and alternatives
Umm... I'm just sitting here in my "chemo scarf" counting the days til my hair grows back and I'm reading on some of these posts that Tamoxifen makes your hair thin!! What?! No way am I dealing with this ever again! Is this a common and significant side effect? If so, what are some alternatives? I start rads in the next…
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Cleaning for a Reason--They are legit and I got in!
I saw a lot of discussion on Cleaning for a Reason in Dec when I got my diagnosis and joined this group. I just wanted to let you know they are legitimate and I am SO grateful. The social worker at my cancer center gave me the information on them but said it was hard to get in as there was a lot more demand than…
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Another chemo appointment and another UTI
This time I saw the PA and she did a urine test which came back positive, then she actually did chemo markers, YEAH! My Onco doesn't do them but she likes to keep track with them, so that was good, I have wanted them forever. She also followed through with a complete thyroid, liver, adrenal, and kidney function panel,…
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Imetelstat Clinical Trial reaches milestone
Hi all: I mentioned in previous posts that I would let you know of the progress of the clinical trials. Geron has announced that the clinical trial for metastatic BC has completed its enrollment goal ahead of schedule. Additional trials are underway for brain mets, nsclc and others. See link:…
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question? how do I get the little man with the hat next to my name
Chuckling...I see that it doesn't appear. What am I not doing? Thanks, karen
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Soooo Excited
Good Afternoon Ladies and Gentlemen So every year our company lets you nominate some one from their office who has shown exceptional customer service and if your name is pick you win an all expense trip to San Francisco with spending and transportation money not to mention you are allow to bring your spouse with no cost.…
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Today is Tommaseena's Birthday!
Happy Birthday! Hope you have a great day - filled with many nice surprises! -Jenny
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metastatic breast cancer
Hello everyone, I have metastatic breast cancer and am taking Tamoxifen and Zometa. I am experiencing excessive hair loss/thinning. It is not coming out in clumps like I understand a chemo patient experiences, but very excessive thinning during showers, combing, etc. I can't seem to find hair loss listed as a side effect…
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I posted Abby's essay.
For those of you who asked to read the essay Abby wrote, it is now posted on my expressions page as a story. Hugs, Linda
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Komen Stops Giving
Ladies, I read an article that has kinda got my dander up. The Susan G. Komen foundation will not give any more money to Planned Parenthood for exams, mammograms, etc. for the low income and women without insurance to get the care they may need. Why??? The new VP is against abortion so no more money because Planned…
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afraid to finish my reconstruction
I am new here, and am so wanting to talk to others who have had bad feelings about their reconstruction surgery. I had the Latissimus flap (SP) and have a huge scar running down the right side of my body, in addition to the scars across and around the breast. I chose this surgery because my body doesn't welcome foreign…
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OT - "Slow Down; Move Over - It's the LAW"
Our Highway Patrol this month has a program going on TV and other places to remind people that when you see flashing red, blue or amber lights on a road(side) to remember to slow down and get in the other lane if possible. When these lights are flashing, there are people there doing their job, be they law enforcement…
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MRI done - Thanks pink bus warriors!
MRI went smoothly, in fact, fell asleep through part of it. I know, I know, slept through last bone scan too. I guess if you lay me down anywhere for more than 10 minutes I will be out. Sure did bring a smile to my face more than once (when awake) to think of my rowdy pinks outside on the bus waiting for me. Thanks for…
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More snake oil?
Yesterday I stopped in at my precancer hair salon to buy some lipstick. I took off my wig and showed my precancer stylist of 20+ years why I hadn't been back. She told me about a new Aveda product, Ivanti, and asked if I'd like her to try it out on me for 6 weeks as her guinea pig. She'd take before and after pictures and…
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HAIR GROWING BACK
I am finnished with chemo/rads and my hair is coming back again. I am 66 and my true hair color is salt and pepper. I don't mind the color but my hair is growing 'weird",haha. The top of my head is thick and the sides and neckpart is thinn. Now the "funny" thing is, I have so many cow-licks on the sides it looks too weird.…
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prayer for chemotherapy
wanted to share with you all a prayer my son wrote before i began chemo. i found it very helpful, and used it before each treatment. please feel free to share. if anyone wants a printed card, let me know. here is the link https://sites.google.com/site/chemoprayer/home
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OT - been gone for a while
Between my MIL health issues, the holidays, and the start of my reconstruction I've been missing for while. Need to check in and see how everyone's doing! This could take a while unless you want to post a reply to this message. I've noticed a LOT of new names here so it will take a while to catch up. (I've also moved to…
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For those who have had cataract surgery-
Did they do a chest x-ray when you went to your pre-op screening? Tomorrow is my appts to go to optometary for measurements and then to the pre-op screening to give med history (not really sure why I need to as they already have all my medical for the last 16 yrs on file and I've given previous HX before but they want it…
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Today is GayleMc's Birthday!
Best wishes for a wonderful day and a happy, healthy year! much love, -Jenny
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Prayer for Chemo
my son wrote this prayer for me before i started chemo. it helped me through. thankfully i finished two months ago. thought some of you might like to use it or pass around. i have printed cards if anyone wants. https://sites.google.com/site/chemoprayer/home
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SKATING SKATING SKATING!!!!!!!.....jumping up and down like a 4 year old....
http://www.dutchnews.nl/news/archives/2012/01/get_out_the_skates_icy_weather.php The canal out front is not solid yet...but it's showing signs...the water gets 'thicker' (can't think of a better word) and moves more like syrup... Dutch knuffels, Kathi
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Can't get into Chatroom
I have never been able, nor am i am able to get into Chatroom :(