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Brain Cancer

Archives for May 2011

Church Member Faking terminal cancer
Yes it's true. A lady I know has been faking cancer for the past two years. She has scammed her church, family and friends out of thousands upon thousands of dollars. Let me give you some background on me so you know I do not make such accusations lightly. I say these things with a very heavy heart and with intense…
glioblastoma-new diagnosis
I was just diagnosed with level IV glioblastoma this week. It has taken the hospital six months to get this diagnosis; it scares me that the whole time they were testing me this thing has been growing in my head. It is too deep down within the motor strip to be operated on and we have been searching for alternate…
First MRI Since Radiation Ended
Hi Everyone - Just wanted to post the results of my husband, Jerry's MRI results. We just got the results from his first MRI since his Radiation Treatments ended on March 31st. Monday we went to his Neurosurgeon and he told us that he can't say 100%, but he is about 90% in remission at this time. He also told us that he…
Gama knife radiation
Has anybody had or know of someone who has tried Gama Knife radiation. A friend of mine with Glioblastoma Multiforme Grade 4 a (1 1/2 year survior) is considering it. The reason I am interested is because I too am a GBM4 survior of 2 1/2 years. I had surgery in Jan 09 and have had relativily good quality of life. Meaning…
Astrocytoma III caused by cranial radiation 26 years ago--anyone have similar case?.
Our son has been diagnosed with a high grade astrocytoma (grade III or IV, the docs aren't sure, or at least they won't say). It has occurred in the same spot where he had cranial radiation for a medulloblastoma when he was 8, which was 26 years ago (he is now 34). The docs have been pretty open about saying that it is…
AVISTON?
I have been in temador the last few months. 5 days on 23 off. My Mri's havebeen coming back clean. My MD wants me to try Aviston. I am alittle confused as to why he wants this change when everything is OK. Although I am gettng pretty nauseous and extremly tired from the Temadar. Pros and cons to Aviston?? Also, anyone ever…
Astrocytoma III but acting like a IV.
Saw our son's chemo doc for the first time last week. He's starting Tamovar and radiation tomorrow. The doc said that the pathology report said it was a grade III astrocytoma but acting like a IV. Should have asked what she meant by that but didn't want to in front of our son as I know it can't be good. Has anyone had a…
targeted chemo for gbm grade 4
Hi everyone, Does anyone out there has had any experience with targeted chemo?? Could you possibly give me some more info about this?? My husband might be considered for this "new" (?) therapy. thank all of you and wishing you a good day, never give up hope and faith, in life, in miracles, Hetty
21 days of Temodar
Looking for info and side effects of Temodar for 21day cycle
radiation necrosis
Could anyone tell me more about necrosis?? And about your experience with this??? They found another "spot" (1 inch ) in my husbands brain. The old tumor had reacted very well on both radiation and chemo. But now this new "spot" has been growing through the therapy, meaning that if it is a tumor it did not reacted at all…
House cleaning
In case there are people out there that do not know what kind of services are available to chemo patients. There is free cleaning service for patient going through chemo, it's called Cleaning for a Reason. It is available for any type of cancer and is available in almost every state. Just look them up online and fill out…
the story of my life: Panormitis
My husband is nearly 46 years old and was diagnosed with gbm grade 4 in april 2010. We have two daughters of 17 and 15 years old. My husband is Greek, I am Dutch and we lived on a small Greek Island ( me nearly 30 years) where there is no medical care, no airport, nothing. We were in hospital in Athens, where they said it…
grade 4 glioma
Hi all. I am new here and this is a club I did not want to join, but my wife is diagnosed with stage 3 glioma and is to shortly receive surgery to tame the beast a bit prior to chemo and radiation. I don't know how long she may have, but she is extremely healthy in all other ways and is a relatively young 42. If anyone has…
Anaplastic Oligodendroglioma Grade III
Has anyone had to go on 21 days of temodar? This is the second round for my husband and I whaven't read anywhere on this site anyone taking it for 21 days. They tell us now that he is doing 21 days, he will never go back to 5 days. They saw something on his last MRI that they said could be from the radiation he had (…
help! need answers :)
My sibling has a brain tumor (anaplastic astrocytoma...grade 3) he got whole brain radiation (it is not operable) and so radiation is not an option again. temodar by mouth was not working so he is now on a chemo cocktail through an IV once every 2 weeks for 6 weeks. my question is how long can someone live on chemo? can he…
statistics of a glioma blastima multiforma
Statistics What can I say??? Statistically my husband was given just a couple more weeks of life. This was at the end of April 2010. Statistically, the side effects of chemo brain surgery/radiation/chemo are many. Statistically, the patient will get depressive. Statistically this.... statistically that.....!! But are we,…
Diet recommendations for managing nausea?
Hi there, I've been a following discussions for a long time now and this is my first time contributing. I sincerely appreciate how open and helpful each of you are to one another. I hope that I can provide some contribution and reciprocate the love that I've witnessed. My mother was diagnosed with GBM in Sep 2010. She has…
RIP SEVE BALLESTEROS!
One of th most Golf legends ever! RIP.
radiation treatments are over now what?
Feel more scared now. My sisters radiation treatments are over and now Im feeling more overweld than before. Is this normal? Im afraid of the first MRI to come. She had to stop temador a week early because of low platlet counts. Now if the dont come up by next week they will make her hold off on the avastin. Good God the…
ommay resevoir causing violent sickness
HI just wondering if anyone has experienced a voilent reaction when the chemo is put through the ommay resevoir. The docs. have tried so many anti-sickness now and all fail the only one that works is one that puts me to sleep, but even at that I can wake up with in 2hrs and still want to vomit. I end up asleep for about 14…
Brain stem glioma
Hello I am 33 years old and was diagnosed with inoperable brain stem glioma.I am on my 3rd week of radiation therapy and will be on chemo starting next week. I have lost all my hair already and have not been feeling well at all.I have been week and nasueaus each day i had to stop working and everytone is telling me to quit…
Avastin Copayments
I have Blue Cross/Blue Shield and the four infusions of avastin that my wife took cost us 1840.00 dollars per infusion in co-payments. I'm glad it was there for her, it worked on everything but her cognititve impairment... But, I am scrambling to pay.. How does everyone else compare in the area of co-payments?

Brain Cancer

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