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Doing great!!
Hi everyone, A few of you have recently posted on my thread "chemo questions" and I just want to thank you for your kind words of encouragement and well wishes. I began treatment for a recurrance of anal cancer in my lung last spring and finished in June. The chemo really knocked me down for the week of treatment and a…
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5 months post treatment
Hi there, I'm so relieved as I just had my first pet scan last week. Everything is good. I'm NED! Yay.... I'm still hurting while going #2. It's still so painful. I still go #2 at least 4-5 times a day. I've changed my diet so I'm not eating salad's, fresh fruit, etc its just so frustrating. is there anything they can do…
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a lot going on here
I am two years out from Stage II anal cancer treatments of Metomiacian Spelling and 5FU and 6 weeks radiation. The treatments like many others I am sure has forced me into menopause and osteoperosis. I was diagnosed a year ago before i lost my insurance. I just now got my insurance back and I have an appointment Sept 2 for…
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Please help
Hi all My mom was dx in January, stage 2, standard protoocall radiation and mytomici. She finished in March and has been feeling pretty good, and was cleared by colorectal surgeon today she called me concerned she has a little bump inside her nose and it has been dropping clear fluid. She said shea had it about a month and…
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Off Today for 2nd Round Opdivo
Thank you all for your good wishes. I'm leaving in an hour, heading back to Houston for round two of the Nivolumab and I'm hoping it will be a lot less eventful than the last visit. My doctors here have decided that my daily fever is something called "tumor fever" and is caused by the tumors themselves growing and stealing…
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Dr John Skibber. MD Anderson
i just returned from MD AndersoN. Dr Eng also told me I did not qualify for the trial. 1. There was a wait list and 2) she did not consider my cancer metasized. My 4 cm tumor is on my left uterer tube and has invaded my pelvic wall, muscle and sciatic nerve. All my reports say I have met disease but Dr Eng considers it…
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symptoms of lung mets????
Hi Everyone. After reading some of your blogs about mets to the lungs, I am starting to worry just a little. My anal cancer was diagnosed over 2 years ago. Stage 1 no lymph involvement. However, recently, I have been having some chest discomfort and congestion. Made an appt. with a cardiologist for September 1. Has anyone…
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Nivolumab/Opdivo Clinical Trial
Last Monday, the 3rd, I got "the call" from MD Anderson that I had moved up to the number 3 slot on the waiting list and nos. 1 and 2 were going in this week, so could I be prepared to go on August 17th. Well, there is a lot of pre-testing involved, blood tests, ct scan, biopsy etc and apparently, one of the people ahead…
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Stage 3b Anal Cancer
I just finished treatment for Stage 3b Anal Cancer about 7 weeks ago. My first Pet Scan shows the lymph nodes are clear, and the tumor has shrunk significantly if not completely. I will have a biopsy in a few weeks. I have been feeling very optimistic about the outcome as I have been feeling great other than being tired.…
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Fatigue
I am @ 7 weeks post treatment. Anyone want to comment on fatigue? I have days where all I am able to do is make a cup of tea. I know as soon as I get up that I'll be going right back to bed. Is this normal? I've got things to do! Life to live! Everyone tells me I am trying to go to fast. Thoughts?
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CT testing-how many years?
I had my CT scan yesterday and NED! I met with 2 oncologists. My medical oncologist said everything great, see you next year. My radiation oncologist said you really don't need to see me again or get any more scans, unless something comes up. It has been 4 years since your diagnosis and your cancer isn't going to come…
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What do I do and what questions should i be asking?
Hi all! First off let me start by introducing myself, my name is Tim, Im a 47 yo gay guy who has been HIV positive since 2007. My cd4 count is good and am considered non detectable. 2 years ago I had a sore in my perianal region that just would not go away. To describe it as being painful would be an understatement! After…
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Sleep Apnea
I am 2 years post treatment and I just found out I have sleep apnea and chronic fatigue syndrome. I see a specialist in 2 months to discuss treatment. I was told this had to do with the chemo. Has anyone else been diagnosed with this?
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Getting Aggressive (with suspicious nodules)
Hi- i posted recently about the "suspicious nodules" that were on my recent cat scan. To get right to the point, my Oncologist and the thoractic surgeon want to go right in, remove a lung lobe, biopsy the 5 nodules, and go from there. This of course has thrown us for a loop. I will be in hospital for as long as a week.…
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Stage IV survivors?
Hi! I'm new here and I'm just wondering - are there any other Stage IV people around. I was diagnosed with IIIb in 2012 and after treatment got the all clear in 2013. Then it came back in 2014 and it had spread to my lungs. I've had several treatments, both radiation and chemo which worked with various degree of success. I…