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Anal Cancer

Archives for February 2015

Chemo question....
Hi all, So I am scheduled to begin chemo next week as part of my treatment for my recurrance of anal cancer. As of now, the plan is to receive 5FU/Cisplatin as I did initially 4 yrs ago. A few weeks ago I had surgery to remove the mass in my lung and I will not be getting radiation at this time. When I went through…
Colonoscopy
I had an incomplete colonoscopy today. This is the second incomplete colonoscopy since radiation. They used the pediatric scope but they could not get thru the first bend. Has this happened to anyone else? if so what procedure did they recommend to view the rest. I have a history of precancerous polyps.
Scopes
Hi All, Hope you're doing well and filling your days with great moments. To the newly diagnosed, or those currently undergoing treatment, it does get better! I promise your burns will eventually heal! I'm going in for one of my 3 month exams and have asked the (new to me) Dr if he will do a scope. They seem to not know…
3 days on 3 days off - can't think of a better title!
Hi all, Just a couple of questions. My mum is 4 months, well just over, post treatment. She said to me she has like 3 days (for example) of pain-free BMs and then another 3 days of slightly or sometimes, not slightly, painful BMs. So basically, she's without pain some days and with pain the other days and this alternates…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
CT Scan Results
I had my follow-up CT scan yesterday as a follow-up to the questionable area on my liver on previous scans done last summer. Here are the results. 1) No definite CT evidence of recurrent or metastatic disease. 2) Stable 3 mm hypodensity within the right lobe of the liver which is too small to characterize but statistically…
Is it AnalFissure
Hi Everyone I just joined this forum I have been having a lingering chronic Anal fissure for the past 8 months now..started with awaful pain and slight blood (sometimes) during bowel movements I have done a flexible sigmoidoscopy the Dr insists its a chronic fissure and nothing cancarous but the pain has continued I Just…
graphic, I know
OK, so, 7 months post-treatment, I'm seeing a gel-like substance on the toilet papar....What the heck??? I'm telling myself it's scar tissue dissolving and leaving my body, but I just dreamed that up with no rational basis what-so-ever. Anyone else have something similar or an actual explanation? June
SCC metastisus
I am headed to the Mayo in Phoenix next week. Last Feb. I had a radical neck resection for SCC head and neck. I have a lot of pain in the perineum, between and usually including the scrotum inside me area, and often the anus as well. I have tried for months to get a dr, to determine why my perineum hurts so much. I am not…
From a guy who is anything but a crybaby
For the last week or so I have been very emotional. I am grieving lots of things about my life and having cancer. I am wondering if this is a typical part of this journey.
Stage IV (making progress!)
After 9 months of chemotherapy, including taxol and avastin, I went for routine cat scan in January. Per MD Anderson, I have no evidence of disease (NED) left in my liver. At diagnosis, I'd been told I had "innumerable" lesions in liver area. And so I am grateful and happy with recent news. Doctors originally told me…
Next Step.....
Hi all, So I am continuing to recover from surgery to remove the large (3.5 centimeter) mass on my lung which was in fact a recurrance of anal cancer first diagnosed 4 years ago and treated with standard cisplatin/5FU. I met with my oncologist today to discuss the next step. He considers the surgery very successful in that…
Spinal Stenosis
Three years after treatment still experiencing hip, buttock and thigh pain, stiffness and weakness...... Discussed once again with my (new) Chemo Dr. at a 6-month follow up visit this week. Instead of the usual response of silence I get from my doctors when I mention this pain, she pulled up the CAT scan results from May…
My Mom Started Treatment
Hi all, My mom started treatment yesterday, an all day affair! First was her radiation, then upstairs for chemo. She had he blood work done and her hempgloben was 22! I guess 38 is normal? They considered a tranfusuion but her dr feels she is healthy and stable enough to try iron first, the will retest next week. They then…
Pain duration
Hi guys, Just a quick question to ask how long pain, from treatment, persists afterwards? My mum's 4 months post now, just about, but still gets a bit of pain after going to the toilet and other times. Is this normal?
NED for another year
Hi, everyone: After much anxiety and dreading to hear yesterday's CT Scan results, I read them online today ... no evidence of metastatic disease. All I have is a small hiatial hernia, that explains the heartburn I get kind of frequently. Feeling kind of guilty posting the good news, I know that so many of us are not at…
Xeloda
would like to hear from anyone who had Xeloda...side effects...hair loss...hand and foot syndrome,etc
Proton Radiation
has anyone had proton radiation? if so, I guess side effects were the same as IMRT?
You would think I would learn
Hi Everyone, I'm 2 years post treatment. Next month I get my CT scan to see if I'm still cancer free and I'm feeling pretty good about that. BUT I have wanted to go back to my life I had before cancer. What I mean by that is I can't drink alcohol at all now. I use to be a rum and coke person and everytime I have a drink I…
Moving forward.......
Thank you all for your positive thoughts and prayers.....they have worked so far! Surgery went well (I did not have VATS) but still did have the upper left lobe removed, so have a nice big scar on my back/underarm. I am still hurting but not as much as one would imagine. I have been up and walking around the hospital unit…
Pet Scan Results
After waiting three months post radiation and chemo, my mom's pet scan revealed no tumor. Her oncologist said nothing lit up! Of course you would think that we would be elated by this news! And we would have been--but my mom's tumor has always been felt by her on her bottom. For months she thought it was a hemorrhoid. It…
Accidents
Hi all. I was diagnosed in Feb of 2013. Finished all the usual treatments at the end of April 2013. After 4 months or so, I was doing well. Totally off Immodium. Things were going well. Even able to tolerate an ocassional glass of wine, but only one! The food was hit and miss, but quickly found my "triggers". So, when I…
Scan results
hello all ! I don't respond on this site too often but read almost daily now. This board has given me so much information that leads to hope and knowledge to get me through my days. I finished treatment March 2013 and was stage 3b. I did the same treatment as most on this board and had simular side effects too. I still…
Three Years Out and Still Having "Accidents"
Hello Everyone! I hope you all are doing great and at this point only a few of you might remember me. I have been cancer free for over three years now but at least once a month or maybe once every two months I have an accident. It usually happens when I am somewhere where I can't make it to the bathroom. On Wednesday I was…
Wondering about what to expect post treatments
You know what? I am gonna make it after all. My treatment at Duke Raleigh Hospital began in December 2014. It has involved chemotherapy by portable infusion pump with the drugs 5FU and Mitamycin (?). Also, radiation therapy was M-F. I finished eveything one week ago today. I'm not feeling any relief or better in any way,…
Eyebrows and eye lashes
I notice that everyone has had hair loss on their head...some have lost all, others just had hair thinning. Did you also lose eyebrows and eyelashes? I haven't begin treatment as yet (possibly Xeloda and mitomycin-c), but my hair has been thinning for the last few years . I am worried that it will all fall out and not grow…
NCI trial
Does anyone have any information or experience with the trial study at the National Cancer Institute in Maryland 13-C-0032? I have stage 4 cancer that mets to the liver and lungs. I am concerned about travel and housing costs and if someone has any suggestions. Thanks

Anal Cancer

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