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And the oncology and radiation oncology verdict IS.....
I saw the oncologist and radiation oncologist today. They said all the mentions of lymph nodes on the CT scan were insignificant "because it was read by Betsey". If anyone else read the films, the report would have been only 1/3 as long .^_^. [Drum roll please!] The cancer is gone!
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anal mapping????
My doctor has said I will need to have this done? Has anyone here had it done? What exactly is it and why is it necessary? Are there any negative side effects? I feel I've been through a lot of trauma down there already having had a squamous cell carcinoma in situ removed surgically and am unsure as to whether I'll do this…
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Any others with Stage IV anal cancer?
I am a 43 year old male, diagnosed in March 2014 with metastatic anal cancer w. spread to lymph node and liver. Following a second opinion, I started chemotherapy in April w. high doses of avastin, carboplatin and taxol.... every three weeks. In September, I was told by doctors there was no evidence of disease in anal…
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So Scared
Hi I'm 21 months post treatment and I'm getting side effects from the radiation now. I had bleeding and narrowing so I was told to go on Miralax and a bulk laxative. I don't get diarrhea I'm the opposite. Anyway, I was ok for awhile but now my stools are narrow again and my stomach is distended. I'm 55 years old and I look…
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I can't believe I made it this far!
Wow what a nightmare of a journey have I been on. I think last time I was on the forum I was in agony with pain and radiation burns. Not to mention the fatigue had me pretty much bedridden. I did finally get the pain under control which helped tremendously. I have also completed my radiation three weeks ago today. It has…
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Tired of so many opinions!
Saw my oncology PA a month ago and she was very concerned because my FDG score only went down to 4 (from 18). Wanted me to cancel my vacation and get right in to see my colorectal specialist, then decided a couple of weeks wouldn't make a difference. Whether she "sensed" my anxiety or whether she was really concerned, I…
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PET or MRI ... Doctor is getting back to me today on which he will order
So for a long time I was hoping for a CT Scan or PET Scan and now I am going to get it. He said not a CT Scan but either a PET Scan or an MRI. Now I am nervous. Those feelings are back all over again. I had a check up from the surgeon six months ago where he stuck a scope up my butt etc. and he said everything looks great…
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Sigmoid-ouch!-scopy
I had a sigmoidoscopy with biopsies on October 10th & saw the colo-rectal MD today. The mild dysplasia is graded as an AIN-1 (low grade anal intraepithelial neoplasia). No treatment, re-scope & biopsy in 3 months. (Doc says, "Low grade dysplasias rarely become cancerous.")…
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Recurrent Anal Cancer Current Treatment Options
Good Morning All, I am very impressed with all the members on this site and lots of useful information!! I was diagnosed with Stage II Anal Cancer and had the standard 6 weeks of Chemoradiation and was pronounced NED. Now, about 2 1/2 years later, it appears the cancer has returned. I am meeting with specialist for…
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Scared I have anal cancer. 20 years old, mother recently died of colon cancer
I'm a 20 year old male and a few weeks ago while cleaning myself in the shower I discovered a small, hard bump inside my anus. It is internal, but does not go in very far. I suspect that it is on my sphincter. The bump is very small in size, probably a little bigger than a grain of sand. I was able to view it in the mirror…
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Met with Oncologist today
No more scans! No more biopsies! No surgery! They don't even call it a tumor and it's definitive as definitive can be at MSKCC which is probably as good as it gets - It's not any kind of cancer on my lung and definitely a metastasis is ruled out at this point. I almost feel like it's unfair I should be this lucky. I hope…
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Almost 3 years since treatment ended and still no scans?
Hi Everybody! I hope you are all doing great! I finished my treatments on 12/23/11 and have never had a PET Scan or CT Scan since. I have been checked every six months by my doctor who gave me an anal exam each time with a scope etc. Is it strange that I have never had any scans? I had a dream last night that they found a…
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anal cancer who is afraid of chemo and radiation
2014-10-23 I am trying to find someone in Las Vegas to help a friend of mine with anal cancer. He is losing hope as he is afraid of the chemo and radiation that has been suggested to him to cure his anal cancer. He lives with his 90 year old mother and is a retired car salesman. He has lived and worked all his life in Las…
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interventional radiology lung biopsy
Hi everyone, I had the second procedure/third biopsy of the cystic consolidation on my lung today. So far so good. They didn't find anything yet. The pathologists take usually about four days and I have my appointment with my Oncologist on Friday so I should know much more by then. The Surgeon who did the biopsy said that…
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Hi all - treatment finished!
Hi guys, Just thought I would let you know, my mum finished her 5.5 weeks of treatment on Wednesday just gone. She actually managed to go for a 5 minute walk this afternoon! She's getting bored with not being able to do her normal things, anxious about whether the treatment has worked and fed up with having to rush to the…
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Two years!
Today I am celebrating my two years of getting past cancer! I'm having lunch with a friend who is marking her 27th anniversary of sobriety today. So a non-alcoholic toast to us and to everyone in this community as we help each other get through. Also, a very happy birthday to Martha! Janet
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No Evidence of Disease!
Three words I love to hear! Thank you my forum friends for your support. I TRULY appreciate it. Judy
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digestion tricks that have helped me
I'm one year, 9 months post treatment. Mitomycin and 5FU destroyed my digestion and gave me gastroparesis. As we're left to find our own solutions post treatment to problems that result from treatment, and after trying many things, most of which have failed, I've come up with these things that mitigate the inability of my…
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I posted my first blog
I posted my first blog on Anal Cancer https://whydoihaveanalcancer.blogspot.com
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CT scan result query
If a scan shows that one has no evidence of disease (NED), will it actually say that?
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scan results
I met with my chemo-oncologist last week and I am happy to report my first post treatment scans are clear, no sign of tumor NED. I also had an appointment last week with the colo-rectal sugeon for my anascopy however she felt I was not healed enough for the procedure and rescheduled me for November. I told the doctors how…
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good news after EUA
I had an exam under anesthesia 2 weeks ago. It included a biopsy so I had a bit of healing time, stayed home from work for a few days and needed percocet for those days. Feeling much better and met with my surgeon today. We talked through all the post-exam stuff I had been feeling and he was very clear in explaining things…
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Vaginal Scar Tissue
Hi, I hope someone can help with this problem. I have vaginal scar tissue from my radiation treatment. My Doctor wants me to try a Estrogen Cream for a few months but I see that there are so many side effects, that I am afraid to use the cream. Has anyone had this problem and treated in a different manner? Also, my hair…
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Leg Cramps while exercising
Hi everyone, I have another one that has hit me all of a sudden. I started exercising on the treadmill. I could only walk at a 2mph pace for only 15 mins! Just 2 months ago I was doing 30 mins at 3.5 mph. First it is the rectal bleeding after 20 months post treatment, now I can hardly exercise??!?!?!?! What in the world is…
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New to forum and scared
Here it is... If my cancer is not everywhere they will do total hysterectomy, colostomy, if in bladder remove bladder and another colostomy. I live alone and don't have family able and close by... they are sick themselves. I am very nervous and anxious and scared. I have a 30% chance if it is not everywhere, but that's a…
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Cancer gone!!!!!
Just went for my 3 month check up and the PET Scan showed that the tumor is gone and the biopsy did not show any cancer cells. What a relief until my next check-up.
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Rectal Enteritis
Hi everyone, I'm 20 months post treatment. And now the fun begins. Before I begin I need to throw in a disclaimer as far as my words go. I don't know if they will be bad. I'm on and off of this site because I work full time. I wish I could be on here more. Anyway, I have been terribly constipated. And today the dam broke…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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NCCN Guidelines Version 1.2015
I hope all of my AC friends will see this post and go to the website for the National Comprehensive Cancer Network to view the latest version of their guidelines for the diagnosis, staging and treatment of anal cancer. While there are but a few changes, a couple of them are significant, as follows: 1) The previous…
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Talk: "Financial Considerations" by Adria Gross
This information came from the same seminar that the talk on the late effects of treatment, 2nd annual "Life Beyond Cancer", 20 September 2014, held in Newburgh, New York; organized by the Hudson Valley Cancer Resource Center of Montgomery, New York. Ms Gross operates Medwise, an insurance advocacy company in Monroe, New…