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colostomy reversal
I'm scheduled to have my colostomy reversed on 4/20/14. My fistula healed on its own, and I will not need a resectioning. My radiation oncologist told me when I first saw him that I had a 100% chance of having the colostomy for the rest of my life. My surgeon said she would do her best to reverse it, so I kept that in mind…
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Worried that "it" is back!
I was diagnosed 2 years ago and went through 2 rounds of chemo and 30 days of radiation. Doctors found no evidence of disease after 6 months, but the fact that it was already in my inguinal lymph nodes has always bothered me. Now I am worried about stabbing pains I have every once in a while in my anus and groin. I have…
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I'm a little confused...
I got a phone call from my surgeon's office and the receptionist said she wanted to book a phone consult for me for May 5th. My surgeon is on a 2 week vacation and that would be his first day back but I'm confused about the length of time between surgery and getting results. I don't technically have a family doctor.…
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no longer in limbo
my surgeon called this morning before I left for work with my pathology results, it appears this was the final biopsy and the pathology came back with an invasive report, I will see her next week for my post-op but in the mean time she told me to call the radiologist today and move foward with treatment, of course the…
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One year after biopsy
I was diagnosed with stage II analysis cancer went through treatmenta but one year after I can feel pain if I squeeze my sphincter muscle I wonder does anyone else feel this I am wondering if it is from the biopsy
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Second Annual Anal Cancer Educational Forum- San Francisco
Below is information I received rgarding the second annual anal cancer forum to be held in San Francisco California. I thought I would share it with everyone in case anyone is interested. ==================================================================================================================== My name is…
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Colostomy vs Radiation
I've been curious about something for awhile and decided to post this thread to get some opinions. After reading about so many long term effects of radiation, I'm wondering if anyone has chosen to have a colostomy instead. Back in my 20's I dated someone who had a bag due to Chrohn's and although I'm sure he would have…
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frequency of rectal exams after radiation
I am starting to wonder about my radiation oncologist, but wanted to hear from others. My radiation ended in early December, and since then I've had various scans and a biopsy all of which showed no cancer. I am now seeing a colorectal surgeon about reversing my colostomy, and she has done two physical exams of my vagina…
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How long does nausea last on average after pump out
Made it through the first week of radiation and chemo. Yay. Now can say I'm halfway through chemo. But it was rough. Constant, constant nausea. Compazine didn't help much, mainly just put me to sleep, which I guess was okay. Pump out yesterday, have a bit of energy today, but still somewhat nauseated. This WILL go away in…
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shin and anckle muscle cramps
hello all ! i was wondering if anyone here is experiancing muscle cramps in shins and ankle/foot areas? im getting them all the time now. mosty at night if i move my foot the wrong way or stretch a bit . this was always there since treatment ended a little over a year ago but its getting worse. sometimes it will slow down…
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leg swelling after radiation
Need some advice. I just got done with chemo and radiation. Im not sure if I am starting to get lymphoedema or water retention. I have been done for 4 wks now and even had visit with chemo doctor. He said it look like it gone but I havent even had a scan yet. I been exercise and went back to work. All of sudden I have…
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Damnit! the anxiety is kicking in...
Tomorrow I find out the results from my surgery. I find out if the wide local excision got clear margins and I find out what the other "4 areas of concern" are that the surgeon also removed. My emotions have been up and down while waiting for all of this to happen but now the anxiety is kicking in full force. That feeling…
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Nodules in groin
I can feel a small nodule in my high groin. Can anyone else feel this?
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First Infusion Tuesday
Tuesday I have my first infusion of Human Blood Plasma Immunoglobulin g. I have CVID which increases my chances of getting gastric cancer by 50%. Compare that to smoking increasing lung cancer risk by 15% to 30%. The problem is, while the infusions have been proven to help a patient prevent infections, there is not much…
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Has anyone had leg pain after pelvic radiation?
My radiation ended in early December and for the last month, I've had leg pains in my left leg. I thought it was sciatica, but the symptoms don't seem right for that. I hurt in the middle of my buttock, then down the side and front of my leg. It feels a little like shin splints and sciatica and is starting to be all the…
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marynb
not sure if anyone has a personal e-mail address for Mary but if so, I would appreciate if you could e-mail it to me, I would like to get in touch with her to see how she is doing, thanks .
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Keeping a wound clean
Yesterday morning one of the area on my anal margin that had been stitched up, busted open. It's a large area and deep and when I have a bm, it gets in there. I called my surgeon's office and she said I could come in and see him. I figured he'd give it a good clean and maybe stitch it up again but he didn't even look at…
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First PET scan after treatment completion
Got the word this morning that my "PET scan was normal"! I'm excited and thrilled with this news and know that I have a long road ahead of me, but this is the way to start. Thank you everyone for your support and encouragement. Judy
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This time of the year 3 years ago...
I was sitting in the oncology chemo room waiting to be hooked up to the pump for the first time. As I was sitting there, my eyes tearing up, I wondered if this was really happening to me. It seemed so surreal... Fast forward to the present - I survived and am almost 3 years post treatment. Scans, labs and checkups have…
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Finally diagnosed
Hi! Am new to this board. Diagnosed about 6 weeks ago, had major symptoms since November, but looking back probably all summer. A GYN actually felt the tumor in December and decided what he felt that was "hard as a rock" was constipation, didn't even do a rectal, and ordered a D&C and ablation as I was having…
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I'm not sure how to react
I went in for my surgery to remove some growths and pigmented areas on my anal margin on Friday. Just before I was wheeled in to surgery, I had to sign the standard form they give you and at the top in big bold letters, it said "excision of carcinoma" something about seeing it in writing made it real to me. I started to…
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new tumor and back in limbo
Hope everyone is doing well, I have been off the board for a while, just everday craziness but back to say hello and update my unfortunate new development. Went to my colo-rectal surgeon this past week for a routine 6 wk checkup (last biopsy in the OR was done early Feb and deemed carcinoma insitu) I knew going in and told…
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Anal cancer not cured with chemotherapy and radiation. Desperate to find alternative to colostomy
Thank you for taking the time to read our story. My husband is 51-years old and was diagnosed in November with anal cancer stage IIIA. There was cancer in one lymph node. He underwent about 35 radiation treatments and chemotherapy 24/7 for two weeks of 5-FU and Mitomycin. Follow-up scan post-treatment demonstrates no…
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Spot Bleeding
Has any female had spotting? (I believe it's vaginal.) I am 45 years old and have not had a period since right after beginning treatment for AC in Jan. 2013. Last month and this month (about 30 days a part), I have one spot of dark brown blood. (Sorry if it's TMI) Could my periods be returning? My oncologist vaguely…
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CSN terms & conditions
Each person agrees to abide by CSN terms & conditions upon registering. It is a violation of these T&C to advise or attempt to influence the views, beliefs, or decisions of other members with regard to their medical care, religion/faith, or politics. Venting about health care costs and sharing one's personal experience is…
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Thank you for all the support!
Unfortunately, I have been told that my discussions here have not been appropriate and have been deleted. For this reason, I must say goodbye to all the friends who I have met here. I can no longer post on a site that does not allow free speech about the costs of health care. For me paying for health care means survival.…