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Still a lot to learn...
Wow! Busy last few days! I'm at MDA and have had a colonoscopy, mammogram, pap, X-rays and, blood work. I've been to see FIVE different docs and I'm all good .. STILL NED! I learned quite a bit as well. The doctor who did the colonoscopy sat down with me AFTER I was awake and went over all the pictures she took and showed…
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Reaching out to this site again
I still "lurk" but I kinda stayed off of this site while I've been going through this process. I was diagnosed December 14th and will finally be starting treatment Monday February 25. (I think). I started out with a colonoscopy and then the numerous scans and tests. It wasn't until the PET Scan that anything showed up. I…
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hair's still
.....falling out. I'm almost 3 weeks post last round of chemo and it's still coming. I'm not bald by any stretch but it sure is getting thin. Lost literally all my pubes which I don't really care about... but this post is actually about the hair on my head. It's not a huge concern of mine but it's "duly noted." Any…
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nerve damage
Have any other members experienced nerve damage after treatment? I am currently prescribed Neurontin - 4/300mg capsules per day. Any known or experienced side effects taking this drug? Has anyone's nerve damage 'self repair'? If so, after what length of time? Thanks!
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Recs for a good colorectal surgeon in DFW area?
Hi everyone, I don't currently have a diagnosis of anal cancer (and pray that I don't!), but I'm very concerned I might. For several years I've been having chronic hemi's/fissures and the last few months things have gotten much worse (increased pain/itching/bleeding). I have just discovered that I now have an…
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Post TX questions
Hi, I finished TX on Jan 10th. I have several questions about followup TX I have already been to see RAD ONC 2 weeks after TX ended and was told all looks great, i am healing well and they want to see me again in 4 months (is this appt necessary) or I am just going to go there and they will say yup you have some nice scars…
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Scan Results
Just back from MD Anderson. Scans are all good thank God. 3 1/12 years now, but always one day a t ime. Lori, how did your check up go? Liz
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starting to feel
better.
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anal cancer convention
we all are from interesting areas of the country .... and hearing about all of the snow with you Northerners makes me wish i could meet all of you....we should all get together some where in the middle of the country, if possible, .... i really know that it is not possible due to work, healing, appts, finances, etc.... but…
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false negative?
Hello, i had a petscan done on my colon . it showed uptake fdg of 7 and a mass. Had a catscan done showed nothing?...now doctor wont do anything..what can i do?
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Off topic....big blizzard
Well, I have my firewood, my food, water, flashlighhts. Are there any others in the NY/New England area?
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Good News Today
Last weeks ct showed a spot on my right lung, and lymphatic involvement. Had a petscan today, lung is good YEA! Only 1 lymph node involved (inguinal). Still IIIB which was a little disappointing but better than it could have been for sure. Colonoscopy tomorrow, port next week and then full steam ahead to kick this dude's…
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And So It Begins
For the most part, I have been just sitting back and "lurking" on here. I was first diagnosed with anal cancer on 3/15/2012. At first they thought they got it surgically, but to paraphrase Nietzsche, "That which does not kill me grows back and tries again." I started chemotherapy and radiation therapy today. I'm getting…
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And So It Begins
For the most part, I have been just sitting back and "lurking" on here. I was first diagnosed with anal cancer on 3/15/2012. At first they thought they got it surgically, but to paraphrase Nietzsche, "That which does not kill me grows back and tries again." I started chemotherapy and radiation therapy today. I'm getting…
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Anyone had Hyperbaric Oxygen Treatment?
Hi, all, I haven't been around a lot since my treatment ended, but I do lurk a bit ;) . The last time I visited my colorectal surgeon, he recommended hyperbaric treatment. The way I understand it is that the increased oxygen therapy hastens the healing of radiation side effects and damage and gets those tissues back the…
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Scared 29 years old
Hi everyone. I have been reading this board for a couple weeks now ad I am scared I may have anal cancer. I am 29 marriEd with a 3 year old son. I am frightened beyond Belief. I saw a GI about 3 weeks ago he performed a DRE and said everything felt normal but ordered a ct scan. CT scan was normal except for a small leaking…
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Finally!
CT done, showed lymphatic involvement and 1 small spot in r lung. Pet scan next. Did finally get to meet the Oncologist yesterday and will meet the radiologist this Thursday. Port placement scheduled for next Tuesday and chemo/radiation to start on the 18th. Finally a plan, just want to get this show on the road and be…
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Another lump
Hello everyone my mil had a biopsy the other day and the dr said he was sure it was anal cancer but had to wait until the biopsy results came back before he could tell us anything else. we go in the 11th to find out. She just told us tonight that there is another lump in her anal region that was not there before. Should we…
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All Done :)
Well, my last treatment was last Thursday. So thankful to be done. I wanted to go over a few of my post treatment pains and side effects. Of course I still have internal pain when I have a bm. I'm still drinking a lot of my meals hoping I don't have to go as often. I suspect that will let up some in the next couple of…
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New Study regarding link between dairy and bone health
I saw this on the news this morning and thought it was worth passing on considering our potential hip problems after radiation. Eat your Greek yogurt! http://www.sciencedaily.com/releases/2013/02/130201132336.htm?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+sciencedaily+(ScienceDaily:+Latest+Science+News)…
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finished treatment, now lung nodule
I was treated last June for stage 2 anal cancer. It was hell but I got through it and was looking forward to putting it all behind me, so to speak. I went for a routine CT scan a couple weeks ago and it showed a 9.4mm lung nodule which was not there on my last CT scan in July. This week I'll be having a PET to determine if…
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Another newbie to this "select" group
Greetings, all . . . . I'm thankful to have finally found this site after realizing what a "lonely" cancer this is to have, and how uninformed both the public and many medical personnel are. I confess to a bit of cyber-stalking over the last few days, as I've attempted to get my ducks in order. My story, I'm sure, is…
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Good News today
We got the news we wanted to hear today, NED never sounded so good. Now hubby just has to hope a lot of the other issues will dissipate in due time. The oncologist did tell him the eye sight will not improve so we will be off for a new pair of glasses. Hope all the newbies are hanging in there, the tx was tough yet we are…