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Anal Cancer

Archives for January 2013

Hospitalized
Hi friends. Just a quick note to let you know that I have been having some very severe abdominal pain the last 4 days accompanied with vomiting. It got so bad last evening that I had my husband take me to the ER. I was admitted and still don't know what caused this. ER doc and my friend, Dr. Mac, thinks it may be either an…
Starting out to destroy this anal cancer!!
Hi everyone! I am a newly diagnosised anal cancer patient. My family doctor diagnosised me with hemorrhoids due to a small amount of rectal bleeding. She prescribed hemorrhoid cream. I used the cream even though I saw nor felt any evidence of hemorrhoids, the bleeding continued and I told my husband I wanted to go to a new…
Results are in
Well some of them anyway, biopsy confirmed squamous cell. Now waiting for the navigator to call with staging/oncology/testing appointments and port appointment. This waiting is making me a little crazy(ier) but what a relief to be able to tell my family and a few friends last night.
anal intraepithelial neoplasia grade lll
This is what they put on my MILs discharge papers from her biopsy it was under diagnosis can anyone tell me what this mean?
Alone right now
Never thought I would do anything like this; last Thursday (on the 1 yr anniversary of my mother's death) I was diagnosed with anal cancer. Too embarrassed to have a "hemorroid" (or so I thought) addressed, I waited for a couple of years. Darn it! Biopsy results will be back Monday, but the surgeon said she has no doubt…
Result
Hi All just wanted to check in since ive not posted since my last post. Took MIL to the coloretal surgeon had a biopsy done yesterday. He said we wouldnt get the results for a week to 10 days but he told me and hubby that he is postive it is anal cancer. I asked him if the biopsy would tell if it had spread anywhere else,…
Mucus
Hello, hoping for some feedback from someone. It has been a while since I posted, the answers to my last post to the board were most helpful for my husband. Now he is dealing with more unpleasantries. His last day of tx was 11/2/2012. The first few weeks in recovery were rough, thank godness healing happened way faster…
'Behind Cancer Campaign'
The UK's 'Behind Cancer' campaign is outstanding. http://www.behindcancercampaign.co.uk/ http://www.analcancerfoundation.org/2012/11/17/two-families-twelve-models-one-mission-de-stigmatizing-anal-cancer/ From what I understand they haven't launched anything like this in the US. Why not? This is perfect in helping…
burns and radiation
Hello again-- Has anyone had 2nd or 3rd degree burns and NOT had to delay treatments? I have only 3 treatments to go, tomorrow, Friday, next Monday and Tuesday but I think the external burns may either be infected or simply "wet" and oozing, but I plan to tell no one because I just want to get this over with.
CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
tapering off oxycontin
Hi everyone I will soon start to taper off the oxycontin I have been taking since October. I am curious to know how this experience was for other people. Was it easy? Was it awful? How long did it take as you tapered off to be off completely? Did you experience any withdrawal symptoms? I'd like to hear about any experience…
Just a Quick Update
Hello everyone, I just thought I would give a quick update on my recovery. I'm 6 weeks post treatment and back to work for the past 2 1/2 weeks. I'm doing well..skin is easy to irritate but overall doing good. I'm not on any meds at this point including no Imodium and seem to be what appears to be normal other than the…
my mom was diagnosed anal cancer grade III A
Hello everybody.I 'm a new member of this gorgeous Forum.My mother age 58 was diagnosed anal cancer stage III a, it spreads into vagina rectum anus muscles but the lymph nodes hadn't been involved (yet).We live in Italy and here, in my country there are a few information regarding this rare cancer. My mother has just begun…
pain pops
Hello again everyone, As some of you know, I'm experiencing pain now that I simply can no longer bear. I haven't taken painkillers because they make me sick. Can those who've had experience with pain pops (and what do you call them again?) can you tell me if you have some control over the dosage by either finishing or not…
agony
Domobro, aquaphor, 100% aloe vera, silver sulfadine, all sting and make it worse. Just tried something OTC called Dibucane, which has knocked the pain down to a "10." Has anyone ever tried Magic Mouthwash on perinium burns? I'm in agony.
If Anal Cancer Returns
Hello Everybody! I have a question. I was talking to a man who also had Stage 2 Anal Cancer like myself that lives in my town. We were both saying how we are in complete remission and how we are feeling etc. I then said to him that if the Anal Cancer ever came back they would catch it early since we get checked and just do…
"sunburn" in groin area and hemoglobin questions
Well. Tomorrow, the needle comes out for the last time (and I have 5FUs for the FU). Tuesday this blessed port comes out. And oi nothing goes wrong, the last radiation treatment is scheduled for the 29th. I still have off-the-chart pain when going to the bathroom, has me screaming into a towel so the neighbors don't hear…
I finally got some good news
Last Tuesday I had a surgical biopsy as a follow-up to my first post-treament PET scan. The scan had shown a very small area with an SUV of 6.6, high enough to need the biopsy. Well, my surgeon told me today that my pathology results show no residual cancer. I feel like I can breathe again!
YIKES! This is getting complicated....
I had a PET Scan on Monday. If any of you had seen my previous posts under GOOD NEWS BUT.... you will know where I was in this process. In short, after my original diagnosis nothing showed up at all on my CT or MRI. They put my case in front of the tumor board last Thurs. They called me after the meeting that day and said…
I was healed of Ovarian Cancer
First I would say no one understands what it means to have cancer or have a loved one who suffers from this disease. My name is Pamela velafuert I was diagosed with Ovarian cancer 5 years ago and I thought my world was over. I went from one specialist to the other and nothing worked and then I decided to turn in for…
Voting for Anal Cancer Ribbon Color Has Been Extended thru 1-23.
Ok. My mission to spread the word is officially done.
To move or not to move...
Considering moving to Dallas/FW area to be closer to docs and hospitals. In one way it makes a lot of since, in another it feels as if I am letting my illness run my life. I love the high desert...... Just far from good medical Opinions? ( do have daughter in D)
To move or not to move...
Considering moving to Dallas/FW area to be closer to docs and hospitals. In one way it makes a lot of since, in another it feels as if I am letting my illness run my life. I love the high desert...... Just farthings good medical Opinions?
Good News
Just wanted to share the good news I got today..... The PET Scan I had last week, 9 months post treatment, came out clear. Praise God from whom all blessings flow. Thanks to everyone on this site for the sharing of your knowledge and experience in this fight. My best wishes to everyone of you, especially those of you…
Voting for Anal Cancer 'Color' Deadlines tomorrow, Jan 15th!
Vote here: http://www.analcancerfoundation.org/news/vote/
Post Treatment Anal cancer anal biopsy
Hi All, I completed treatment Oct 31.2012 for 4 cm anal cancer tumor with 3 pelvic nodes involves 2 close to the tumor and one by the tail bone. I had good news this past Wed, from the oncologist, with a clear CT ( after being denied PET scan by insurance) I was told I need a biopsy and have scheduled an appointment with a…
Appetite
Hi all, Have completed 18 radiotherapy treatments and 1st round of chemo. Due to start second round of chemo Tuesday with 10 more radiotherapy treatments. I have had to start using analgaesia regulary over past 4 days and now have lost my appetite. Anyone else experience this? Also my ALT levels are raised, but consultant…
Cancer is back..On phase 1 clinical trial MPDL3280A
My last scan reflected cancer had returned.....several nodes in my lungs and found a mass in left pelvic area. My Oncologist sent me to SCRI in Nashville and I qualified for a Phase 1 clinical trial .....drug is MPDL3280a, given every 3 weeks. I would really appreciate if anyone on the trial has had good results. At this…
Will I be able to work during treatment?
I will be starting treatment soon. IMRT twice a day for a total of 26 treatments. Chemo with FU5 and mitomycin C the first four days and possible the last 4 days. Was wondering if it would be better to work or take sick leave with short term disability? Anyone have experience with treatment and working? Wondering if the…
questions
Hi I am new to the board and i have a few questions im hoping someone will be able to help me with. My MIL was recently diagnosed with anal cancer, she went to a general Dr for what she thought to be hemroids, that dr sent her to a proctologist who looked at her and said it was cancer. there was no biopsy or anything done…

Anal Cancer

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