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Anal Cancer

Archives for July 2010

Let's Talk about Sex, Babee (Salt N' Pepa)
I see every other topic on the board, but this one - SEX. What happens from here? I am only 6 weeks post treatment, but I'm still a newly wed! My husband and I have been married almost 10 years and he has been a real sweetheart! When I hit the worst of my treatment, I told my husband that he had to stay away from that area…
Radiation to the vulvar
Has anyone had radiation for vulvar cancer? Bumperless in NJ
PET results are in
Hi Everyone-- I had my PET scan yesterday, which was a follow-up to the one I had in May, which showed some activity in my upper vaginal area. Well, I got good news--yesterday's scan showed complete resolution of the activity--it's gone! I'm very relieved with this news, as the SUV in the vaginal area was over 7 in…
cat scan but no pet scan
I was just diagnosed with anal cancer. A few days ago I got a cat scan but no pet scan? Is this adequate? Or am I being shortchanged because I am on medicare? I am very confused and worried about this. Any input would be greatly appreciated.
Good PET Scan Results
Just wanted to update everyone about good results on my husband's PET scan! Hoping that it's scar tissue but will let you know the biopsy results next week. BWK
Joining for the 1st Time
Hi, I was recently diagnosed with anal cancer in April of this year. I completed 30 radiation treatments and two rounds of chemo. I have been looking for someone to talk to for a very long time. I have had some real challenges during my treatment, but now that I'm in recovery, I thought things would get easier, but…
Scar Tissue After Anal Chemo & Radiation?
Has anyone been told upon finding a "mass" that it might be scar tissue? We're waiting for test results, but wondered if anyone had ever been given this information by their doctor, i.e. scar tissue as opposed to tumor recurrence.....
Colostomy After Anal Cancer
My husband was diagnosed with anal cancer a year ago (squamous cell). It may have recurred (we will know within a week after several tests). Has anyone had this experience and if so, can you tell me if you had to have a colostomy? Any info you can give me about colostomy would be appreciated.
Pathology report
this is dottie again. i retrieved my pathology report from my hem'tectomy back in December of 2007 and it reads: "there is a focal area of the squamous epithelium showing high-grade squamous dysplasia (moderate to severe squamous dysplasia). This appears to be an incidental finding, in an area of epithelium that does not…
Oncologist Follow-ups Post Treatment ?????
Question for those of you post treatment regarding follow-up visits to your oncologist. Post Treatment how often did you have follow-up visits with the oncologist and what occurred during the follow-up (blood work, etc.)??? I'm two months out and the oncologist was not particularly diligent during treatment, he seems to be…
options``
Dear Dottie, So sory to hear all your circimstances. You definitely need to look up and down every street, avenue, highway, subway, alley, etc to check out all your choices. I know only rich people aren't the only ones that get canceer, so there have got to be resources available to us regular people. have you checked with…
Liver resection
Hi All, I had my appointment with a surgical oncologist Friday. I guess the good news is that I am definitely a candidate for surgery. He will be removing most, if not all of the left lobe. Unfortunately, he is going away on vacation for two weeks, but will schedule a date shortly after he returns. I'm very anxious to have…
Opinion on what to do please
Hello everyone, First I want to say this is an excellent forum and I have learned a lot here. Thanks to all of you for that. Second, I need everyone's input/opinion on something please. Approximately 2 plus years ago I had a hem'ectomy. Tissue from hemmy was sent to lab and came back with severe dysplasia, doc said level…
Hey Friends
This such a nice place to come...I wish it were under different circustances, but it does help tp just talk and listen to others tell thier live stories. I got out of the hospital at oon today, and I think my hbby is worse than the nazi nurses, lol. In our bedroom we have the bed of course, but the room is large enogh to…
Keep on keeping on
Hey y'all. I haven't been able to visit in a couple of days...see we have some new friends. Sorry to meet you, but welcome.This is Melodie, I'm still in the hospital, with no home in sight yet. As of this am, my whites are .667, my platelettes are 17. They have suspended treatment for awhile to try to get these counts up,…
new member
just been diagnosed with anal cancer for the third time in three years. I start treatment monday july 26th. My first diagnoses in 07 i had 5fu and mitomycin with radiation for 6 weeks(with a week break for burns)the second time was 09 when it reappeared i was dealing iwth lymphoids and liver. i was given 5fu and cisplatin…
newbie
Hi all, I am Norma. I started mytomycin and 5fu yesterday. Today I begin IMRT radiation. T4N1MX squamous cell anal cancer. Just wanted to check in. I have been reading the posts for about a week, I feel they have helped me get ready more than anything else. I have always been a fighter and survivor, so we will see how this…
anal cancer & treatment
I was diagnosed with anal cancer from what I thought was "just a hemorrhoid". I began chemo (mytomycin & 5FU) and radiation on 6/23/10. The skin being treated has started to burn and I'm using 2 creams and cornstarch talc for irritation. During my first round of 2 chemo treatments, I followed doctor advise and started…
Flavored water
I am having a terrible time finding something I enjoy drinking these days. Now that I am doing chemo again, I know I need to work at staying hydrated. As a rule I do not like flavored water. Too artificial tasting to me. My BF Teresa suggested I try Hint flavored water. On the heals of her recommendation I read about it in…
Thanks for thinkin' of me
I last posted on June 30th the day of my first chemo infusion. I just reread it and laughed at my comment "hope I don't hit the wall in a couple of days...". I would say now that it was an understatement. I felt unbelieveable energetic on Thursday (day following treatment) just at suggested by the infusion nurse, due to…
Dialators
In the various postings, vaginal dialators have been mentioned by several different women. Here is my really stupid question: How did you know whether you needed a dialator? Did you set up an appointment with a gynecologist to check for tissue damage? I think someone may have mentioned painful intercourse, but I am not…
Good News on 1st Set of Followup Scans
Diagnosed on 03-04-10. Stage 2 N2M0. Started Protocol on 04-05-10. Hospital 05-12-10 to 05-23-10. Finished Protocol on 06-03-10. Good news: I had a CT Scan done 07-06-10 and the booty cancer is gone completely. Also verified with "latex glove" exam and a proctoscope. My butt is no longer broken. Also good news: The lymph…
Nausea tips
Just a quick little tip that a friend suggested for minor nausea. Ginger Chews - they are kind of like a candy. We found them at Whole Foods in the bulk food and nuts section. I also had an Rx for Compazine (prochlorperazine) for severe nausea but could only take that every 6 hours. Inbetween doses of that, I could nibble…
Leg and Hip Pains
While reading the thread about Lymphadema (ankle swelling), I noticed a lot of people mentioned aching in their legs and hips - especially at night while sleeping. I too have had this problem since about halfway through my treatment. To me it feels like the growing pains I used to get in my legs when I was an adolescent.…
Joanne how are you?
Joanne Just checking in to see how you are doing? Thinking of you. Liz
PET scan results
I found out that I do have an involved lymphnode in the anal area, but also they found I had abnormal uptake of my left ovary. They arent sure if its cancer yet, I went yesterday for a MRI and now I am having to wait. The doctor said the radiologist couldnt be 100% sure it was cancer until they did a MRI. Im, like as many…
CT Scan
Hi All, CT scan scheduled for tomorrow - wish me luck, I'm so anxious about it. Lisa
washing hair
I got this figured out. After radiation tomorrow I will put on my bikini and have my sister wash my hair. They are taking weekly turns driving me to my appointments, bringing my groceries up, changing the litter boxes, etc. I got the first chemo pack off today and they checked my mouth. It's not thrush, but my tongue and…
Words of encouragement
I thank all of y'all for your input.I get the chemo back off tomorrow for a few weeks, now the mouth sores are setting in. I feel like I'm swallowing glass. I know you all say it gets easier...I'm heading into week 2 of treatment...so that is my point of focus. My prayers are with each of you in this journey we are all…
side effects
Hey all, I've had a real hard time swallowing today. Any thoughts or comments? Also, I know there are wig and turban banks, does anyone know of places that will wash your hair? With the chemo line I can't do it without getting my PICC Line wet, and I'm starting to feel gross. Thanks, Melodie

Anal Cancer

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