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Esophageal Cancer

Archives for October 2013

More chemo if no existing disease is present?
Curious if any of you have had additional rounds of chemo just to prevent possible reoccurance or mets? My dad as some of you might remember really got knocked down by his chemo/radiation treatments as he is a non surgical canidate. But...on the great side there is no existing disease at the moment. His doc is recommending…
Combining other drugs/supplements with Chemo?
I have a very close friend who was diagnosed 2 months ago. While yesterday's scan revealed a 50% shrinkage in the distant lymph nodes and liver, his prognosis is still poor...as in less than 12 months. I've been doing A LOT of reading and wondering if any of you or your loved ones combined chemo with: - Naltrexone -…
Mayo appointment
Clint and I are going to Mayo next week. We will be meeting with oncologist Dr. Grothey and surgeon Dr. Allen. Anyone know anything about these docs? We have an appointment with Dr. Urba at U of M this Thursday so at least we will have some idea where she wants to go with treatment. We are still waiting for appointments at…
New developments 2
Hello everyone, i posted on Oct. 8th about new developments in my ongoing fight with the after effects of " esophagectemy" . I thought i was well on the road to being cancer free. three and a half yrs and was doing great. Now i'm having problems..the posting i had on about my neck was minor compared to this. I don't show…
Reglan
I just passed the one year anniversary of my esophogectamy (Spelling?). My surgeon put me on reglan 10mg/day after the surgery. My regulary Doctor has strongly suggested that I get off of it because of some long term side effects. She also discovered that I have a serious vitamin deficiency & has put me on 2000 mg of…
Over 2 1/2 years after surgery..mets to intestines, anyone else?
Well after 2 1/2 yrs of clean scans a bowel obstruction surgery showed the esophageal cancer had spread. Dr. Says it's a rare place to spread. Just wondering if anyone else has had this. Starting chemo on Monday. Hoping to slow this train wreck down.
Diaphragmatic hernia?
Hello, My latest ct-scan showed I have a diaphragmatic hernia (hole in diaphragm) that has allowed part of my bowel to pass into my chest cavity and in-turn not allowing my left lung to inflate properly. I’m three years post MIE and this has just started over the past year and is now in need of being repaired. I was…
Response to FOLFOX/HERCEPTIN
Went to Mayo clinic for f/u yesterday. Dad had MRI of brain (thought possible cancer) and 3mo PET to re-stage after FOLFOX/HERCEPTIN. We were given great news. Dad's tumors (2) in hip area went from 8 uptake to 2.5 uptake. Significant shrink considering he has only had 2 sessions out of 12. The doctor seemed very pleased…
photodynamic therapy
my husband was diognosed back in january 2013 and the first two chemo's they tried did not work so we just started plan C. The doctors told us this is our last option and if this chemo does not work then there is nothing more they can do and if he wants to try a clinical they would help us try and find one in Boston or…
Treatment Options
Hello, I wanted to ask for your kind help. My mother is 88 years old and has had esophageal cancer for almost 3 years. The initial diagnosis showed that the cancer had spread to multiple lymph nodes and areas outside of the esophagus. She received chemotherapy over most of the 3 year period as well as 3 weeks of radiation.…
New Developements
Hello everyone, i saw my surgeon last week and he said the surgery had nothing to do with my neck problem.I did buy an obus form pillow and that seems to be helping. I have developed some new symptoms and i'm being sent for an MRI of the brain. When i was diagnosed with esophageal cancer in 2010, it was because of a series…
Ned remission cured
Can someone please explain the difference between Ned remission and cured. It can all be so confusing sometimes.
My mom has passed-Thanks to new & old friend from this board
Dear old and new friends, my mother passed away a couple weeks ago from Squamous Cell EC. She courageously fought for 2 years and the cancer stayed stable for a while w/ continuous chemo, but things went downhill in July. We completed hospice at her house for 2 months. She was a fighter and the most important person in my…
Feeding tubes
Hello, My mother has a feeding tube since last week, so far no weight gain. What are the experiences regarding this topic from this group? Thanks!
Radiation long term side effect...what have you experienced?
My last high dose treatment was Aug 5th. For 5 weeks I had absolutely no symptoms or problems. Then out of the blue I began experiencing pain and discomfort in a radial line around my body at the shoulder blades and breast level. Having thought I had simply over done it or something I did not think much about it. But the…
TDM-1 for HER2 positive esophageal and gastric cancer KADCYLA
hello, i just called Genentech , makers of TDM-1 , also called KADCYLA . for people in the US,they have a phone number you can call 888 249 4918 for their GEnentech Access Solutions department. quote from their site :" KADCYLA Access Solutions helps resolve access and reimbursement issues for individual patients every day"…
Pet scans what to believe.
Hi everyone, I haven't been on in awhile and hesitate to write now. But here goes. I've been feeling crappy all summer and was getting worse so went to my Onc last week. Lots of abdominal pain. He orders PET scan on Friday morning. Friday evening the office calls to say I have a partial bowel obstruction..go to ER if I get…
C-Diff?
Hi All, My sister had her esophagectomy a few weeks ago. Her barium swallow looked good, but within 10 hours of being home, she wound up back in the hospital with a tear, more surgery adn all of that trouble. She now has an infection called 'C-Diff' and I am wondering if anyone has been through this experience and if they…
I lost my husband in 3months
My husband was diagonsed with Esphogas Cancer on May 09, 2013, the dr had told him a month ago it was just acid reflux and dont worry they would fix it with the scope procedure. But before May 09, 2013 he started vomiting and not able to swallow. He had troubles digesting food before, for about a 2 months but thought it…

Esophageal Cancer

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