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Esophageal Cancer

Archives for June 2012

staging after surgery
After surgery did your stage change after surgery?? ex. before surgery-T3N2M0, after surgery no cancer but stage T2N0? just curious. Carolyn
If cancer comes back..is there any hope?
My Dr told me in the beginning after my surgery that if it comes back there is nothing that can be done. Has anyone else been told this? Friends say there is always something that can be done, But I'm not so sure. The last 30 days I was on a trip and felt fine and didn't give much thought to the cancer for the first time…
First routine cat scan post surgery after 6 mnths
Hi guys, I have not been posting here since dads surgery but have been keepin an eye on all da posts ... Well dad scan was schedule for 19 th and the scan came out clear of any signs of reoccurrence ...I have had many sleepless night. Just thinking abt the scan I have read,reoccurrence is common in esophageal cancer in the…
Navigating through the system
To add insult to injury, just getting the ball rolling on treatment can be a real challenge. Dave learned a week ago yesterday that he has Stage III EC and so far nothing has been done! We saw a local oncologist on Tuesday, she was more than willing to order at PET scan, but since we told her we have plans to be seen by…
recurrent food impaction with esophageal stents
Does anyone know any articles or have any knowledge of what can be done when food gets impacted in an esophageal stent??? A few days ago we all had a huge scare, Jr began choking after only sipping on a pop. It took a while of him gagging before whatever it was went down and he felt better. Again today it happened when…
Going into surgery
Going into surgery @ the uofmich tomorrow 730 am. Wish me luck!!!!
Missing voice
Has anyone else with Stage IV lost their voice due to EC? The tumor in my Dad's esophagus is pressing against his vocal chord. Just wondering if anyone has encountered this... or come back from it? On top of the hand-foot syndrome he is having because of the chemo, losing his voice, and dealing with all the pills he's…
Clinical Trial
Well, this second round of chemo is not working. I now have three subcutaneous tumors in my right chest area, and of course the so-called infection in my mouth turns out to be malignant. So, I'm off that chemo, going in for simulation and then radiation on the mouth tumor starting tomorrow. And next week, we'll figure out…
Pectin for Dumping
Keith was having a lot of dumping syndrome despite full compliance. I want to share something that has been of great help. He still dumps, but less severe and less frequent and his portions are increasing too. Seems if he sticks to fish and veggies most of the time for dinner, oatmeal in the morning, and high fiber bread…
Looking for a site, book on Hospice - when is it time
My father-in-law was diagnosis last Sept and had radiation but because of his age now 87 and health that was the only treatment. The last PEt scan in December showed 4 spots in other parts of his body and in May a new visible lump appeared on the bone just below his collar. And now he is experiencing back pain and for him…
Hi Everyone
Hi everyone. This is my first post, I have been watching you all for a while now. I’ve silently shed tears for you and rejoiced with you and finally decided it was time to make my presence known. I’m a spouse of stage 3, diagnosed May 1st. We have less than week of chemo/radiation left, then wait for the PET scan and…
Jarrell lost the battle
On June 1 at 4:50 am Jarrell passed away at home (which was his last wish) our two children and myself were by his side. My heart is broken and I miss him so much. His last month was very hard, he was pain free but suffering so with the confusion and parania. Some days he did not know what was going on. The last week is…
Within the sorrow, there is always a light!
I know there are several people - fighters, supporters, caregivers, friends, & family that have joined this site in the 12 months I have been "gone". I'm sure my post was depressing to some of you...so I want to give you some light. I'm not sure I ever posted this so starting at ground zero... About 2 months after Brendon…
Leukoplakia / Precancerous cells
I'm kind of scared right now, for the first time in my life. I'm 28 and was diagnosed with Leukoplakia and was told there was only 1 % chance it was cancerous. My blood worked showed elevated white blood cells, out of normal range, and then my live blood sample showed one single solitary jagged cancer cell, which really…
Callaloo you are one strong woman
Lu I read your post and I cried for all of us. The last time we spoke on the phone you told me you were going on a family vacation. I am so happy that you went. I know how much that meant to you. You have been Such a courageous woman throughout all of this. Lu I think of you so often and Sherry (bailey1459) and I have…
And so the journey begins...
Dave and I had our first visit with an oncologist today. We went to see a local oncologist just to get a consultation from someone in his community, so that if he can do chemo locally we'll have met the doctor. She was very nice, but her news was sobering. As we all know, EC is not a nice cancer (my Hodgkins was simply…
Thanks Sangora (Sam) for posting and giving me courage to do the same, Lu
It’s been a long time since I’ve posted. A lot has happened. I won’t bother with the details of the blood clots and blood transfusions, We all know how hard chemo is on the body. I was waiting for some bit of good news before posting again, but it never came. The Taxotere stopped working. Then the doc wanted me to start…
One year ago today.....
My loving husband passed away a year ago today from EC. Please keep our family in your prayers and thoughts today as we try to focus on the good things Brendon brought into our lives rather than the sadness we experienced on this day. My prayers go to each of you on this site as I know the pain and struggles you have or…
Post 11 day Surgery
While I had my Surgery on June 7 after being DX T3N1M0 back in Jan and here are my results, Clear Margins, they removed 14 lymph nodes and one came back positive. I will start chemo in 4 weeks and be put on Trastuzumab every 21 days for 10 months is this normanl?. Not sure what is worse not having a clear margins or one…
Dad passed away last night stage 4 post Ivor Lewis
Hello all, dad passed away peacefully surrounded by his family. Diagnosed August 2011 stage 3 T3N1M0. Chemo and radio for 3 months, ivor Lewis on December 21st 2011, 3 months of clean up chemmo and devastating news of tumors in liver, both lungs and under his new esophegus 2 weeks ago and passed away last night. Dad was…
Opting out of Chemo?
Has anyone ever opted out of chemo? Obviously there is a higher risk for a shorter life span, but what are the odds of opting out? I will comment more, but I was just looking for feedback. Thank you, Jayme Dad, Stage IV inoperable EC
Heading for three years...and so far ok
Tom doesn't have to see his oncologist until after his next scan in September. We're truly grateful for our blessings. jan
Today we find out the severity of my dads EC...
Please send lots of love our way... I will let you know the outcome.
Is there stomach acid or isn't there stomach acid
In reading some of the posts, I see comments that post ECers have stomach acid problems and take prilosec or prevacid or whatever. Then, I see posts that say stomach acid is no longer a problem. You ask a doctor, should acide reducers be taken, and the general consensus seems to be If you want to, fine; if not, fine. Hey,…
9 weeks out of surgery and still nausaus
Hi i had 2/3 of my esophagus removed and most of my stomach drs say they got it all but i still have an appoint ment on wed with chemo dr. Sometimes hardtime getting food down choked a couple days a go all this normal i have been afarid to go on the net for bad news.
My father has just been diagnosed....
And I am so very scared. They did the biopsy and a CT scan. The doctor called him on the phone to say that it is carcinoma and that his lymph nodes are enlarged. We go in tomorrow to find out the real results. He is healthy and had no symptoms other than 6 months ago started having trouble swallowing food once in awhile.…
Results of Endoscopic ultrasound are in...
And unfortunately it was not what we wanted to hear. Dave has stage III either esophageal or gastric cancer; we won't know for sure until the biopsy is back. It does involve 2 lymph nodes. It's at the juncture of the esophagus and stomach. While this is certainly grim, it could be worse, at least it is treatable. Had a…
Results of Endoscopic ultrasound are in...
And unfortunately it was not what we wanted to hear. Dave has stage III either esophageal or gastric cancer; we won't know for sure until the biopsy is back. It does involve 2 lymph nodes. It's at the juncture of the esophagus and stomach. While this is certainly grim, it could be worse, at least it is treatable. Had a…
Always good to hear...good scan news
We're back from Vegas. One of the best trips ever! Tom was fine, we just walk slower..vbg. I figured out early and from previous experience, I never win in the afternoon..so I went shopping. At least when I handed over my debit card, I got something in return. Also went swimming and people watched, always entertaining. For…
I can't believe I JUST found you all!!
I have been looking for somewhere to bounce information and news off of others for sometime now. Now, as I'm sitting in the hospital with my dad for his chemo infusion, I stumble upon this forum FULL of familiar stories and encouraging statements!! Thank God!! My dad is 67doing years young and has been fighting EC since…

Esophageal Cancer

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