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New to the board; my Dad is battling EC
Hello all. After reading the board, I felt compelled to join up. To give you a brief background of my experience, my father was diagnosed with EC on 12/11. The surgeon (who has been awesome) advised him to have an esophagectomy first, then undergo chemoradiation. I've heard of the positive results of this in reverse order,…
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Good News
My CT scans were clean yesterday! Very happy and grateful to be 9 months out of treatment and surgery. Thank you all for your support, prayers and good wishes.
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I'm almost afraid to ask, but...
Hey folks.... Some of you know me and my story. Others not, but I've been here for a while and am planning on being here for a loooong time. If all goes well. Tomorrow I get the results of my latest PET/CT scan. At this point an all clear would put me at 3 years survival, a goal that I will officially mark on July 7th (my…
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larry5
So I took Larry into our family doctor and they were thinking intestinal blockage, X-rays showed nothing abnormal. His doctor was concerned because his blood pressure was 80/50,and he has lost 4 lbs since he went to the same doctor for a cold 2 weeks ago,so they took 3 viles of blood and we should have those results in a…
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Update
Some of you will remember my husband had stage one ec removed in November 2010. He has done pretty well since then except a low potassum count. In january of this year they found three new spots one on ech kidney and one on the adrenal glad which was the cause of the low potassium. Of course our greatest fear was a…
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Newbie
Good morning. I stumbled upon this site while researching information prior to an ultrasound endoscopy that my guy is having on Thursday. He's had two endoscopies, the last which biopsied two suspicious areas, and the results coming back positive for a malignancy. Right now we are in the wait and worry stage, as he can't…
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I made my goal
As many of you know one of my big goals has been to live to see a high school student I have been mentoring for several years graduate from high school. With the help of hospice and a caregiver I got it pulled together to make it to the ceremony. It took a little more pain medicine and a wheel chair but I was there. It was…
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Post Surgery
My husband was diagnosed with Esophageal Cancer in Feb of this year. He is 44 years old. Both of his parents and an Aunt all had this disease as a primary cancer and died from it. My husband, David, was diagnosed with Barrett's Esophagus 16 years ago. David went through 17 hours of surgery to remove his esophagus last…
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Mom's birthday coming up
So excited to celebrate my mom's bday later this month. She's had a rough year and has been so courageous. It will be her first bday since getting diagnosed last July and she's been a fighter for 10 months now. I don't think I let the group know she moved from UCSF to City of Hope. The recurring tumor had blocked her…
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Should I be worried
It has been a while since I have posted anything, two years ago my husband had surgery and had his esophagas removed. Everything has been going along fine until a few months ago. He has no energy, although the scale says that he is not losing weight, his pants and belt say otherwise, his waist in his pants that we bougt…
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AMAZING NEWS!!!!! UPDATE:
If this doesn't encourage you then nothing will. Jr's CT scan shows perfectly clear. They say he is like in remission, no chemo for over a month!! This guy was suppose to be gone 16 months ago!!!! Tell me there is no God!!! Prayers work!!! Thank you all for praying!! God can do anything even with esophageal cancer!!! We…
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Scanxiety over and good news!
Hello everyone, Rob had his first scan since his operation and everything seems ok so far. We shall continue to pray for all our friends here and an end to this ugly and horrible disease. Hugs and prayers to you all! Marci
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One year with Stage IV EC and other updates
My husband, Larry, was diagnosed with Stage IV EC last June. Details of treatments are in the About Me section. He had a CT scan Friday and the report we got yesterday afternoon was great! "Dramatically improved" He'll have a PET scan in Sept and a chemo break til at least then. He had an unplanned chemo break during…
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PET results
Dad's first PET post completion of chemo rads showed "abnormal" signal at esophageal stomach junction. GI doc states doesn't look cancerous but scheduled endo next wed. We have onco meeting tomorrow. Has anyone had junction signal from anything other than cancerous cells?
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Asking for prayer
Hey all, I'm asking for prayer for myself from all of you who knows that anything can happen in this life. I have been having UTI symptoms for almost 3 months now. Had to go to a clinic and they did the regular dip test and it showed no infection but a little blood in the urine, they also did a culture that was sent off to…
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Tom and I are off to Las Vegas...
He's going with a drain into one lung...liquid is collecting between the membranes. So I'm the designated Nurse Rachet to hook it up and put that darn transparent, water proof film on. First I did it, didn't think it was right so I ran to the drug store and got Tagaderm film squares. His side looked a patched inner tube.…
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after effects of esophageal surgeryhI
Hi, Im just reposting an update on my dad who had surgery on Feb 16 of this year. It has been nearly 4 months, he spent the first month in hospital, he has gone from 94 kilos down to 67 and seems to still be loseing weight, vomiting on the odd occasion and experiencing a lot of pain in his ribs as well as stomach cramps.…
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Richard Dawson
From news articles I read today, Richard Dawson, who played many comedic roles, passed away recently with complications from Esophageal Cancer. Condolences to his family.
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Good News
Hello Everyone, Some of you will not know me it has been some time since I have posted. I apologize for not keeping up but life has gotten in the way of my computer time (more about that later) back to the good news. John had his first CT Scan (Chest, Abd. & Pelvis) and all clear NED! I was waiting to post until we…
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Richard Dawson of "Family Feud" passes from esophageal cancer
From MSNBC.COM "It is with a very heavy heart that I inform you that my father passed away this evening from complications due to esophageal cancer. He was surrounded by his family. He was an amazing talent, a loving husband, a great dad, and a doting grandfather. He will be missed but always remembered," Gary Dawson said…
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Questions and Need Information Please
My husband was diagnosed with cancer at the cervical of the esophagus. This was after having laryngeal cancer and undergoing 35 radiation, 2 chemo and laryngectomy with reconstruction of his throat 15 months ago. When we met with the medical oncologist he said that Joe would be undergoing 4 chemo treatments, once a week of…
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Tumeric?
Hi there! I have read a couple of postings that reference turmeric as treatment, but I also read it should not be taken during chemo. Is this true? What experiences can others share with me regarding this herb? How is it taken, in pill form and what dosage is recommended for EC? Thanks, Steph
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Possible treatments for metastatic distant tumor
I am new to this board. My husband, 54 years old, was diagnosed with Stage 3 Esophageal Cancer on 10/14/10. The tumor was at the GE junction and he underwent an esophagectomy on 11/15/10 in which removed 5" of his esophagus and 30% of his stomach. He underwent chemo and radiation as per the McDonald Regimen and was cancer…
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Questions about j tubes
I am hoping to get some advice regarding j tubes. I have never heard mention of this from any of the doctors my dad has seen over this past year, but I keep reading about them here. At this point, dad is 2 weeks out from 20 whole brain rad treatments. He was hospitalized 3 weeks ago with pneumonia, and has been home for 2…
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any body ever had a stent put in
i had a scope done this week after the pet scan showed bone mets. the doc called today and said the places they biopsied in my esophagus tested neg for cancer. however he said by the looks of things down there that cancer is still there. now they want to do internal rad. or put a stent in. any body ever had this done?…
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Sequence/Timing of Chemo and Radiation prior to Surgery
I'm new here, but was diagnosed with a 4 cm tumor at the E-G Junction on April 24. All the testing and appointments seem to move too slowly for me. I had CT Scan, Barium Swallow test, PET scan and Esophageal Ultrasound through mid-May and ultimately diagnosed as T2N0M0 (stage 2a). I had an appointment with Dr. Mark…