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Esophageal Cancer

Archives for January 2012

dad's lab report
Hello guys, Dad's lab report were given to us yesterday and he was staged at T3N1M0. I was told earlier orally by da lab doctor that none of the 14 nodes they took out tested positive but in the report now they are saying one tested positive, I have asked them to give me slides so that I can get it tested in a different…
New to site - Diagosed 8/11 - treatment nearly complete - SLEEP PROBEMS ABOUND
Hi, I'm Donald Boothby, aka Raleighdon. I am 61 years old, an endurance cyclist (average over 10,000 miles per year) and love old Raleigh bikes, hence the name. I was diagosed with EC (Stage IV) on August 11th. Survived two 5-day inpatient chemo stays 3 weeks apart commencing on 8/29 (very fast I'm told to be able to get…
Holding steady....
Hi all, My partner James (42 years old Stage 4 EC) completed his second round of chemo and another PET prior to Christmas. (the first round included radio). We made the call not to get the results of the PET until after Christmas....why risk ruining a perfectly good time with the family!! The results show that the mets to…
Holding steady
Hi all, My partner James (42 years old Stage 4 EC) completed his second round of chemo and another PET prior to Christmas. (the rist round included radio). We made the call not to get the results of the PET until after Christmas....why risk ruining a perfectly good time with the family!! The results show that the mets to…
2 good responses--But how do I---?
In the Christmas letters I sent out this year, I included a paragraph about EC, getting tested and a link to the ECAN site. We've already had a note from one friend saying he was having a physical this month and will talk to his doc about it and thanked us. Then today, we had an email from an old friend who had a…
Radiation questions....
Hello I am the middle daughter to Popi who my sister posted on 12/11. We found out about the EC on Nov 10th and have been on task since then.. This has been a hard time for our family as you all know and I am just coming up for air to "Be a Big Girl Now" We are doing this clinical trial with…
Touchy topic, Medical Marijuana
Hey friends. After a rough post infusion weekend where meds didn't really help, I started looking at alternatives. I live in Kentucky which doesn't allow medical marijuana so it isn't an option for me but for those of you who live in states that allow it, have you considered it or used it? Did it help? From what I was…
Fentynl Patch
Hello everyone - I didn't want to hi-jack the "Pain Relief" thread, ergo this new one. I was just prescribed the fentynl patch and my oncologist mentioned that the biggest side effect this pain reliever has is extreme nausea & vomiting for the first 3 days. I do realize every body handles medication differently, but just…
Peace in the New Year
I don't post on here very often,but I've kept up with all the cyber friends that I care about on these boards. Here is a beautiful video that should give you peace and hope for the New Year. God bless all of you. Please watch it all the way to the end, I hope it gives you the peace it gave to me. It's been a year since I…
What words of support would you offer?
Hi friends, As I explained before, my dad who is 62 years old just learned on December 1st that he has Stage II Esophageal Cancer. He had an Esophagectomy on Dec 14th, and then another surgery the following day due to internal leakage. He is still in the hospital recovering (and it's Jan.2/12). He seems very down lately.…
Pain relief?
Hi all As many of you know, my husband, is stg iv with mets to the lungs and is now palliative care only, he is really suffering from pain in his bones legs and hips, cannot seem to get comfy, also sometimes his legs seem to not support him and down he goes, we call his legs gammy now cause they just aren't working…
Another Eric Update
Here's Michelle's most recent posting on Facebook. It's easier for to access that than to access CSN. nother update on Eric is in order. Today we received his blood panel back and he is critically low on blood counts. 2.8 is his HBG count. The doctor offered to redo the test for Eric to verify the number as Eric was having…
New to board
Good morning and Happy New Year. I am new to this board and wanted to introduce myself. My 51 year old siste died December 21 of this horrible disease after an 8 month battle. I wish I had known about this board sooner, I could have used the support and information I found. All of you are amazing and I am in awe of how…
DX 11/7/2011 and......STILL NO TREATMENT PLAN - Case considered a 'Wild Card'
Hello everyone, I’m sorry I haven’t posted in a while. I’m sure you all know, doctors more doctors, holidays, running around and tending to a 3 year old. Yeah so pretty much the gray hairs are just popping in every day. My father was diagnosed on November 7, 2011 with Adenocarcinoma. He is 74 years old. He has gone through…
Stomach Acid Question
Made it thru my MEI Surgery on December 12 and came home December 20th. I have been coughing up alot of what seems to be stomach bile/acid. Taking my prilosec and a drug for ulcers that the Dr. prescribed when I left hospital. Does this acid ever seem to deminish? I sure hope so, cause along with the acid comes up the food…
Update on Chemosmoker
Michelle posted the following on facebook and asked that it be shared with everyone here. Apparently the internet access and the CSN site are challenging these days for them. I know it has been for me as well. Often I can't get on and the pages take forever to load. Please keep them in your prayers and thoughts. Love to…
New Year-New Hopes
To all my old friends and new ones. I just wanted to say "Happy New Year" to all, although I know many of you are not feeling like it's a happy new year. I had just lost my husband around this time last new year so I know exactly how some of you are feeling. I hope the new year brings new hope to alot of you hearing…
burping and belching
My husband is 4 months post MIE. He has terrible burping and belching after meals. He has no difficulty with swallowing. Has not needed dialation. Wondered if anyone else is having or has experienced this. It does not cause him pain, but embarrasses him and he really doesn't want to go out to eat or anything because of it.…

Esophageal Cancer

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