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Esophageal Cancer

Archives for January 2012

Good News Lu
Just got home from my big day at the cancer center. Got there at 8am and left at 4:15pm. Anyway, before my treatment I had a meeting with my oncologist to hear the results of the CT scan and my other lab work to include tumor marker. The CT shows continued no spread, the area in the liver is 50% reduced from 8 weeks ago…
has anyone experienced blister like sores?
Has anyone that has recieved chemo/radiation experienced blister like sores on there body. Jarrell woke up this am with sores on his tummy low down. They kinda of look like chicken pox. He says they do not hurt or itch, they are red around them. He had hydration today and the nurse practioner looked at them then went and…
Mom update
Haven't posted here in a while with a mom update. Mom spent 12 hours in the ER last Thursday, then was admitted with pleural effusion and pericardial effusion. Severe they said. They drained her right lung (painful) and I brought her home Sunday. She is still coughing, but not nearly as much as before. Some of you may…
It's been a while. Update on Tom + a dose of supernatural
Hi everyone, I see a lot of new names on the board, which is unfortunate. But I am also glad to see some old names, which is very encouraging! I have not been to the board for several months, so my delayed best wishes for a new year: good health, strength and many bright days ahead! I thought I would stop by and post a…
Stage IV EC is not "one-size-fits-all". Very thankful for docs who recogniize this
There are many varieties of Stage IV EC patients and many responses to treatment. Here is just our story, so far, if anyone is interested. My husband was diagnosed in June 2011 with Stage IV EC; no other organs were involved but distant supraclavicular nodes were. Our oncologist NEVER gave him a time limit, and we never…
Questions for Dan's O Doc........ need your help
Dan's appointment tomorrow: Pet/CT results. I have made a list of questions to ask the O. Doc. His endocopy ultra sound.. no evidence of Tumor just alot of scar tissue. Dan beleives that a complete response CURED. I want to ask the right quesitons, I want Dan to make HIS own decsion but an informed one. You cannot make a…
Need advice for Homer for his son
I have copied Homer's post for reply. His contact info is hdwchisholm Luketich/UPMC, Reddy/Michigan, Sugarbaker/Boston Judy, Thank you for your reply. I have been reading a lot of posts on this site. I wish that I had found this site when I was diagnosed with throat cancer stage 3 last March 2011. I am doing well now. PET…
Chemo question
HI folks, Just a quick chemo question; has anyone had experience with cetuximab and the Oxylplatin and Docetaxel protocols combined? I understand this is quite unusual but its an option we are considering at the moment. Cheers Steve
New Diagnosis
I am the father of a newly diagnosed Esophageal Cancer patient. I have 2 biological children and now both of them have been diagnosed with cancer. The first one being 29 years ago having survived Wilm's Tumor at age 2 1/2. Now my 33 year old son has been diagnosed with stage 4 Esophageal Cancer. He has masses in his…
Maybe I can share my story and help the "newbies"
Hi everyone, I use to post on this website everyday when my husband, age 56, back in 2009, was having some swollowing issues and eventually October 7,2009, was diagnosed stage four, mets to liver, stomach and pelvis. He did five rounds of radiation, of which most of them did nothing except the last round, at which time,…
Help Wanted!
Hi Everyone, Before I begin, just want to welcome the newcomers. Although the beast we battle is a fierce one, we are here for eachother. I can't offer and advice, just that I read all of your posts and I pray for all of you here. I am new here as well. My father was just diagnosed on December 1st, and everyone has…
New to site and scared!
In October, 2011 we went to the doctor because my husband, of 26 years, was feeling tired and a little short of breath. The doctor said he was severely anemic so she sent us to the hospital for blood and to look for a source of bleeding. He had NO other symptoms. They scheduled an Endoscopy and discovered a very large…
Surgery - Esophageal Cancer
My son will have surgery on 2/22 in Boston. He has been such a success story to date but knowing all he will be going through soon has become very real. Any words of advice or guidance will be greatly appreciated!
Second Stent Placed for leak
Went in for scope 1/25 thinking I would be in and out. Well first stent placed had fallen and was in my stomach...drain tube creating a hole and curled. Second stent placed and drain pulled way back. I have never been in so much pain they could get me stable for over and hour after the placement. My wife said my heart rate…
When do they do swallow test?
OK, need info from you all. Surgery was thursday and Nicholas is progressing on track. I was told swallow test is 5 days after surgery. But they are counting from Friday as day 1? not day 2? The swallow test is scheduled for tuesday, not mon...is this the norm? He wants out of hospital so bad and I will advocate for him…
My father
My father was recently diagnosed with Stage 4 esophageal cancer with mets to retroperitoneal lymph nodes only. Not a surgical candidate. He started a clinical trial at the Cleveland Clinic. Does anyone have experience with the Cleveland Clinic? He is happy in Cleveland and I'm not sure about moving him to another city to…
One month since surgery
Hi friends, It has been a month since dads surgery today.....he is recovering well ...but we started another round of chemo today ....they will be given once every three weeks for 4 times....(4in all) the oncologist said as they have found one node positive along the greater curvature of stomache in post surgery biopsy…
Dad and his battle with EC...
Last November 2010 my Dad Arnold Drange was dx with EC stage iv b...after a long 13 month battle it traveled to his brain...With my heart so heavy and my tears i could not and can not control on januray 7th 2012 my dad lost his battle against this horrible disease.. i thank all of you who have helpd me thru the fight..i…
letting the cat out of the bag..... Chantal's new life, part 2
Well, my friends, You have all been so great to me through the last year, helping me with Lee's ec. I've shared with you the tale of Lee's daughter, and you were so very helpful to me, now the next crisis is being unveiled, and I could really use some more advice...... I've posted this to the lung cancer page as well, so…
new to the board
Looking for the best treatment am located in central mi, jackson. anybody know good docs and surgery center
Time for an update on Bob
Bob will be released from the hospital tomorrow. He is healing very well, and that is his job for the next 4-6 weeks. He has had a bronchoscopy and where they resected the trachea is healing nicely. No cancer was found inside the trachea so that was a very good thing. The esophagus was not resected and that open area will…
crazy!
Okay, Jr. (Ray) was suppose to have his chemo for 6 weeks, I believe, and then PET on the 7th week. He just finished his 4th round and the oncologist says he wants to wait another 2 months for the PET, he wants more chemo in Jr. Get this, Jr. lost 6 more lbs. but the onc. "is not concerned about the weight loss." Am I…
Another great appointment
Well the ol man had onco appt yesterday and we got more info on plan of attack for the next three months. Yesterday was last chemo only appt, we will now have about 3-4 week break from chemo then will head to chemo/rads. Dad has only had 240 of the cisplatin so we will continue that and the 5 FU will change from 2 day…
Not good news at all
Didn't get great news from the oncologist yesterday. The tumour markers have more than doubled since November (CA19.9 - 963) making the 3 months chemo prior to that seem useless even though it worked for a time. There won't be any more as Brian is too weak. The fluid that was drained from the capsule around the liver has…
Barium Swallow = Constipation...
Hello! I am so sorry I haven't been able to keep up with everyone. My life is back in NH with my parents in Florida. Good news - 3 1/2 months after surgery (Ivor Lewis) my dad is riding his Harley, camping (in a motor home) with friends and doing anything he wants to. The only pain/discomfort is self induced. (He is trying…
Dad passed his swallow test!
I haven't been on this board much the past week as I have been busy with Mom and Dad. I feel almost guilty writing how well my Dad is doing. I am home today, back to work. I was with him for a week and very happy to be able to do that. Dad has his entire stomach removed and about 2-5 cm of the esophagus. The tumor was…
FINALLY!! Surgery Date Tomorrow!
Hi All, Just wanted to let you know my hubby finally has a surgery date Thursday. This is 1 day shy of 10 weeks since finishing chemo.What a wait, and over the last week he has coughed up food a few times that has went down wrong, so this was too long to wait. This is all making me very anxious. Would really appreciate…
need some advice from neutral people..... this is NOT related to ec....
Hi all.... just a word of warning, this may be a bit lenghty by the time I'm done, and if any of you don't want to read my sob story, feel free to pass it by. I'm looking for some neutral advice and don't want to tell my friends and family whats been going on lately. I know that you all will be honest and fair. This has…
Cancer has spread even with 3 rounds of chemotherapy
My dad was diagnosed with esophageal cancer at the end of September 2011. He started chemo infusions in October, every three weeks with chemo pills daily in between. In November, he was admitted into the hospital due to severe dehydration and a stint was put in so he could eat and drink by mouth. He was vomiting everything…
Cancer has spread even with 3 rounds of chemotherapy
My dad was diagnosed with esophageal cancer at the end of September 2011. He started chemo infusions in October, every three weeks with chemo pills daily in between. In November, he was admitted into the hospital due to severe dehydration and a stint was put in so he could eat and drink by mouth. He was vomiting everything…

Esophageal Cancer

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