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Petscan results on my brother!!
Just talked with my brother who is so excited and also so exhausted. The test results shows the tumor is just about completely gone except for two pieces of it. One mass on the top where the tumor was and one mass on the bottom, very small. I don't know specific details on size as I am getting news second hand and my…
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Georgia is proclaiming April Esophageal Awareness Month. YEHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH
I spoke with Ben Smith at the Govoners office today and they are setting up a photo shoot for myself , family and friends to go to Atlanta for the signing of the proclamationdeclaring April Esophageal Awareness Monthin Georgia. I am so happy. My Vince is gone but this may help some other people get early detection. for the…
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side pain after surgery
My husband had an esophagogastrectomy four years ago. Since the surgery, he has pain in his left side in the evenings. Does anyone know of this or have any treatment that has worked?
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Interesting reading - Freeze Dried Strawberries and EC
I found this interesting reading. This article discusses consumption of freeze dried strawberries and their link to prevention of esophageal cancer. http://news.xinhuanet.com/english2010/health/2011-04/07/c_13816094.htm The text of the article from http://news.xinhuanet.com follows:…
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NEED HELP FROM ALL OF YOU! :-) Pretty please...............
So...I have visited with many of you on this site...a few of you via private messages...however, I'm trying to keep everyone straight... because as hard as it may be to believe... Besides.... Taking care of Brendon Taking care of 3 daughters (softball practices, band concerts, school dances, temper tantrums, feeding them -…
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5FU Continuous Infusion
The past couple of times I have been at the Cancer Center, I performed an informal, non-scientific visual poll. I was the only one out of a packed house with the continuous infusion pump. I am on a 24x7 5FU pump. Is this rare or was I just there at an off time. I am in my third week on it and you almost get used to it but…
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Ecan event in Blairsville, Geogia
Since's Vince's death I have really been so sad but truly want to be involved in eradicating this BEAST of a CANCER. We live in Blairsville, Georgia and on April 30th a small shopping area called Main Street Shops is having their one year anniversary. I have spoken to them and they were so kind and I can set up an ECAN…
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To anyone who has Pittsburgh Penn/Dr. Luketich as an option, but is afraid to step out of the box...
(This post tells my story and makes reference to the Lord, God Almighty-if you are offended by the mention of Him or His sovereignty-please make a choice now regarding whether or not you want to continue reading. I cannot say what I have to say without including Him) My name is Dana. My husband, Billy, had a terrible pain…
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NO SURGERY FOR NOW
After difficulty swallowing symptoms appeared in March 2010, I was diagnosed with gastroesophageal (GE) junction cancer in May 2010. The tumor was located just inside my stomach to the left of where my esophagus connects. The inflammation from the tumor caused my lower esophagus to constrict to the size of a straw and I…
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Low Potassium
Has anyone had low Potassium results? Any ideas on what could cause it. GI Dr. said it could be from PPI med, but would typically see low Magnesium also, if that were the cause. I've done the typical web searches but thought I'd ask here too.
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No Cost Esophageal Cancer Screenings in Pittsburgh, Cleveland and Chapel Hill
********************************************************************************************** Disclaimer: I am not a doctor. I am not offering medical advice. However, I wanted to let you know about a study going on to help develop new screening protocols to detect Esophageal Cancer and Barrett’s Esophagus in its early…
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CAT SCAN TODAY WAITING
Jim's oncologist felt it was wise to have the catscan to determine what is causing his pain, so it was done today. We are waiting........... I know God was with us today, as while waiting in the outer room I started up a conversation with a lady using a Kindle. I mentioned we were here because my husband had had EC and was…
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Still Learning... NED?
Okay, this post will probably only require one response...but I need to know... What does NED stand for?? I know people use it when they have scans and tests and are cancerfree...but just didn't know the real definition of it. Thanks. Susie
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A year since my surgery!!!!
Hi All, Just wanted to share an important landmark with every one, its been exactly a year since my surgery, and what a year it has been...many ups and many down's..though I have to admit as time passes by it only keeps getting better. I have had two scans and two endoscopies and both have been clear. Here's to many more…
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chemo fog/trouble with words etc???
Hi, I have been doing good except had a bad bout with some bug caught when my dr sent me to an ER and got sicker from whatever bug was lurking there. I was wondering if some of my survivor friends noticed that they are having more trouble than usual saying words. I have noticed more recently that I will substitute the…
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Last Wednesday scan shows a slight shrinkage and it's not spread
yet. Tom has had some negative side effects from the carboplatin that he discussed with his oconcologists today. Feet tingling etc. They gave this week off and will take him off carboplation and use a different taxol type drug at a lower dose. This means he'll have to go once a week instead of every 3 weeks. But the…
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Malignant Ascites (abdomen fluid overload)
My brother is in the throws of esophogeal/stomach cancer, has had chemo and radiation but was not allowed to receive surgery due to low albumin levels. He began experiencing abdominal bloating, and during evaluation they did a CT scan indicating spots around the abdomen lining and a potential spot in the liver and…
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Just an update on Tom and the end of his treatment
Hi everyone, I still read the board fanatically but do not have any energy to reply to any posts. Trust me, you are all in my thoughts and I am very happy to read about any and all positive developments. So, we have passed another mile stone recently: Tom has completed his treatment with the last radiation past Wednesday.…
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hip dislocation?
I had a total right hip replacement 7 years ago. I am very active and never had any problems. However, last Monday my hip dislocated while I was just standing and talking to a friend. I also had a couple of recent near dislocations and had my hip checked out just last month and was told that everything was normal. The…
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dont know what to do
I have been told I have GERD and peptic ulcers. I have been dealing with reflux for the past two years on a regular basis. The past three months have been misruble. I have been having diarrhea &constipation, regurgitated at least once a day & blood in stools and vomit a few times. I have been to three er's in the past few…
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A few thoughts on Stage IV, recurrence and treatment options
I had hoped, (actually, I truly believed) that on the one-year anniversary of my stage IV diagnosis (April 1), I would be able to report that I was cancer free (or NED). Refusing to believe the doctors who told me a year ago that I was incurable, I chose to undergo radiation concurrently with the most aggressive course of…
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Pain above feeding tube
My husband has been having pain above his feeding tube and it has gotten worse. I want him to contact our internist, but after talking to the surgeon's nurse he wants to wait to see his surgeon in Portland. We are going there Friday for a check and he will have a three month catscan. The nurse said it sounded like a…
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dumping syndrome/ advice needed
Hello, my husband has started to have what we think is dumping syndrome. 10 to 15 minutes after he eats he has diarhea. I read somewhere that one should lay down after eating, but I thought he needs to sit up, as not to get reflux. Do you think he is eating too much? We are only 4 days eating soft foods etc. Ronnie69
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Esophageal/stomach cancer with malignant ascites
My brother James, age 63 was diagnosed with esophageal/stomach cancer (at the upper stomach sphincter) around Sept/Oct 2010 after experiencing swallowing difficulty. He had chemo and radiation shortly thereafter. He was soon thought to be cancer free with a Pet scan early February 2011. They were prepared to do surgery to…
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PET Scans & False Positives
Hello, I wonder if you folks could kindly help me. My mother had an upper endoscopy and biopsy done, and was diagnosed with esophageal cancer. She is 86 years old and in poor health and the recent cancer diagnosis was devastating news. When we went to see the Thoracic Surgeon, my mother had not yet had a PET Scan done. The…
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Pain in neck and back shoulder 7 months after surgery
Wondering if anyone else has experienced neck and shoulder pain several months after surgery. I had esophageal surgery this past July with 2 good CT scans since. The last one was done in early February. Lately, however I am experiencing back shoulder and neck pain, the pain even shoots down my arm (from time to time). I am…
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Thinking about all of you
Hi, I just wanted to say that I am still reading this forum and still thinking about alot of you that I have spoken to in the past. Diana and I are doing ok, we still have our days, many of them sometimes, that we still get very sad about losing Eddie back in September. Life is not the same but we are trying to figure out…
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41yr old husband just home from surgery, need help
My husband, age 41,just had an esophagectomy etc, we are 2 days home from hospital and he can't sleep and is not tolerating food well, (not listening to directions) his mental state is a mess. Could use advice on eating, sleeping (positions to keep food down) and mental healing. His diagnosis was made end of Feb. was stage…
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CT Scan Today
My husband is 1 year since dx, and 7 1/2 months since surgery. Good CT today with NED! Linda
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Back from Dad's post-treatment appointment with the surgeon. Not the news we were hoping to hear.
Seems as though all the treament that my dad went through did not work. The one large regional lymph node they were originally very concerned with got even larger. They also discovered a 2nd regional lymph node involved that they did not originally detect. The surgeon ordered a full body PET scan to determine if the cancer…