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Vitamin C IV Therapy
Although my brother,Joe, is still waiting for the biopsy test results he has heard of vitamin c therapy and would like very much to have that option as a comlementary treatment to whatever the doctor has planned. I have done allot, a whole lot of research in the last week or so on everything to do with EC and understand…
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back from the ocean-thanks!
Hi, Thanks to all of you wishing me a good trip. It was wonderful and made me feel much more normal. I walked a little sat and looked at the waves, a lot!! I had the most beautiful experience on Wed morning, I walked and then sat down looking at the beautiful morning sky pink and blue and thought what a time this year has…
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Chemo started yesterday and we're already in the ER
This morning's bout of vomiting was something I was prepared for. The severe pain around the right eye was puzzling. The spike in blood sugar was expected. The trip to the ER, and admission till Saturday...Surprise, Surprise! Is this really what this road will be like? And we just started!!! Poor Pops! Eating and drinking…
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For a friend
Hello to all. I am a frequent visitor to the lymphoma area on this site and the folks there have been a Godsend to me. Now I want to help a friend and I knew right where to go. She just called to tell me that her husband had a biopsy done and the results show adeno esophageal cells. His next step is a PET scan. I don't…
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I joined this group less than a week ago, and I loooove you all already!
My dad was diagnosed with Stage VI EC less than a month ago, and I don't know what we would do without this network of support! Each one of you has been extremely helpful in sharing your personal stories, methods of coping, and secret "tricks" to help my dad feel more comfortable. You guys are the best! Thanks! Marissa
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It's been 4 weeks and nothings being done
My Brother, Joe, was diagnosed with EC by his Gastro doctor 4weeks ago. He did a biopsy and a CAT scan and sent him to an oncologist. The oncologist ordered another biopsy because the first one was inconclusive. We went to the oncologist yesterday but he could not tell us anything because he did not have the results yet.…
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Singing in heaven...
Hello my friends! Lyle went to be with the Lord this morning just before 2am. He was surrounded by many of us who love him deeply and he went calmly while asleep. I will miss his presence in our home, when I sing in choir at the church, and when I have something I want to just bounce off of him. We met 7 years ago today!…
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Does it ever get easier
We are now at CTCA and have PET, CT and EUS scheduled for this week. Just wondering if the nervousness ever goes away when you know new tests are scheduled???
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cannot get into my response to William regarding my new "update on ed"
William, I was looking forward to hearing from you but my computer will not let me into my post regarding ed., could you please respond again under this post. thanks so much, I love hearing from you. Linda
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going to the ocean!!!!!!
Hi, Ron and I are leaving on my first foray away from home since August!!! It will be just 3 days but I can't wait to get to good old Ocean City MD and look at waves, eat some seafood and watch those crazy senior kids celebrate getting out of high school. Thanks to all of you who responded with encouragement about the lung…
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My father has Stage 1 and just had the Ivor Lewis Surgery 5/24
Hello, I know we were extremely lucky that my father's esophageal cancer was caught early. We met with oncology and surgery before his recommended surgery was scheduled. He had the Ivor Lewis surgery on 5/24/2010 for moderately differentiated adenocarcinoma of the esophagus. He had a previous diagnosis of Barrett's and…
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update on Ed
Hi everyone, just was reading this website and thought I would give an update. Ed is starting his 8th round of chemo tomorrow, xeloda and oxcyplatin, will do one more round in July then another pet scan to see if it is still working, keeping our fingers crossed. yes, he did buy that motorcycle a few weeks ago, is sitting…
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CT scan results for my hubby
My hubby's 6 mo. scan results came back and everything looks good! :) All thanks to God!! ~Praying for everyone on this site ~
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~ Salvation ~
Hi. I am writing to you all from my heart. I know that it is politically incorrect to discuss religion, but I am doing it anyway. We all need to be 'ready' for when our time comes -- no one knows when that will be. Just because someone has cancer, doesn't mean it is soon over -- accidents happen all the time. Only God…
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New: A plea for response
Hello everyone. My wife has Fanconi Anaemia, a condition which gives rise to cancerous tumors. Since 1996, she has had base of tonge-scc- , aesophogectomy & gastric pull-up (2008), larengpharingial scc, lung scc. There are differences of opinion weather lung was secondry or not. So she has amazingly fought her way out of…
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Does this chemo cocktail work? What about radiation and/or surgery?
Hi All! Thanks to William66, I discovered that my dad's diagnosis of adenocarcinoma of the esophagus is not really stage IV, but more specifically, stage IVa. The past three weeks have been one test after another, with the first chemo treatment scheduled for this Monday, June 7th. I've researched several chemo combination…
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update on lung and breathing problems
Hi, I waited till I saw the lung dr before I posted an update. I had cxrs, bloodwork and a full pulmonary function. The results were kind of disappointing. According to my dr, I have thickened lung tissue on the right bottom lobe which restricts my breathing, have 63% of lung function for someone my age, now have asthma.…
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dad update. one week of treatment left!
So dad has done amazing with his treatments! Only about four days total of any sort of nausea, kept all his hair, no mouth sores, etc. He just finished chemo and he has one week left of radiation. Just this week he started experience horrible reflux and he can barely swallow. Has anyone experienced this and have it go away…
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Everything's happening so fast!
Hi All! Hopefully you can help! My dad has had horrible reflux for years and was just diagnosed with stage 4 adenocarcinoma of the esophagus. Not really sure why he's a stage 4 since no other organs have been affected, but lymph nodes are involved. Anyway, it's been a 3 week whirlwind of tests, port placement, and stent.…
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for all EC caregivers - patients -family & friends
Hi all. I am doing this partly to remind myself to do something that has been on my "TO DO " list for a while---go to clubnedwear.com. They have lots of clothing with a positive message---my favorite is the t-shirt that states: "CAREGIVER EXTRAORDINAIRE"! I have no financial interest in this website, but support things I…
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Sloan certified as first hopistal in the country to begin genetic testing of tumors to direct indivi
Hi all - here is some encouraging news for the future. Although they are not testing for esophageal cancer yet --- perhaps we can change that --- they are testing for lung, colon, thyroid and melonoma. The EGFR testing is required for the Third Clinical Trials currently underway using Erbitux in the treatment for…
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C.T. scan results
Hi All! We were able to hear back today about Dad's C.T. scan. Apparently, his oncologist takes Wednesdays off, so he talked with his oncology nurse at Kaiser Permanente. She read him the dictation the doctor had done, and it said " Tumor is demonstrated by a thickening in the distal esophagus." And then she went on to say…
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Moving to the next step!
Hi everyone, its been awhile since I posted, but I read almost everyday. I have learned so much from all of you. We seen hubby's onc. today and got the news that chemo is on hold and he will see the surgeon on the 14th. The surgeon wants a contrast CT. scan and then to see him to talk about if this is something he can do…
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My Dad's Battle is almost over
I wanted to give everyone an update on my Dad. His battle with this mean nasty disease is almost over. The last post that I made I said that Dad finished his chemo and radiation was looking to have surgery, but spots were found on his liver. The spots did prove to be cancer. Three days after receiving that news, my Dad…
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Sad News
Early May I posted this http://csn.cancer.org/node/191464 I received a lot of support from everyone here and really and truly appreciate it. A week after I posted this, my father had the endoscopy/biopsy procedure. The following morning he had a heart attack. A new CT scan showed that the tumor in the liver had grown quite…
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Anyone have advise/experience this?
Hi everyone! I haven't been on the board since my mom was diagnosed in late February. Unfortunately, it has been a rough road through her chemo and radiation treatment plus I am pregnant. She has been hospitalized twice in the last 6 weeks and I have been running back and forth as well. She has stage IIIa (first we were…