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Contamination from laparoscopic hysterectomy - Anyone else have this?
Hi, My 2nd occurrence was over almost 6 years ago. It was a tumor in my rectus abdominis muscle as a result of contamination in one of my scars from the laparoscopic hysterectomy. It occurred 6 months after chemo for the 1st recurrence (in 2 pelvic lymph nodes - which was found about a year and a half after the original…
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FIGO staging updates for endometrial cancer
Just came across this news. The FIGO stages now have a bit more detail in the breakdown. I hope this will help to improve treatment for anyone diagnosed in the future. Inclusion of the various histological types, tumour patterns, and molecular classification to better reflect the improved understanding of the complex…
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I feel alone…
Hi, so I wanted to tell my story and maybe just get some advice. I was diagnosed with Endometrial Cancer at 22 years old. My doctor says I’m one in a million for this diagnosis.. I feel guilty for being diagnosed on my moms birthday, I feel like now she just connects her birthday with the day her little girls whole world…
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Terrified and can’t decide what to do. Precancerous, doctor tells I need full removal of everything
Hi everyone! my biopsy came back with borderline adenocarcinoma, and suddenly I was offered atomic bomb version - full removal of uterus, ovaries, cervix - all of it. Sounds a bit too excessive to me, and I am not sure what to do? They say it has 25% chance of developing cancer. I am 52, thin, fit, eating healthy and never…
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Newly Diagnosed
Greetings to all you prayer warriors! We got some not so good news on Friday, but we’re trying to stay positive. After an ultrasound and D&C, I received preliminary results stating I have Endometrioid endometrial carcinoma, FIGO grade 1. My GYN told me that I will need to have a hysterectomy to start with. So, we have…
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Fallopian tube recurrence in lung?
Hi, Ladies. I haven’t created a new post here in a very long time. And I’m just sick (and furious) that I have a reason to do so now. In late 2020 diagnosed Stage II FTC with secondary peritoneal. Remission 2021. Last fall my CA125 rose very slightly and so GYN/ONC was insistent I have CT. I was so devastated and so ill…
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Looking for information on/experiences with conservative treatment (Mirena/levonorgestrel)
Recently diagnosed with endometrioid adenocarcinoma FIGO grade 1 and had a Mirena IUD placed due to being at high risk for complications from hysterectomy. Does anyone have experience with this? Approximately how long did it take for relief of symptoms (bleeding, discharge) with this treatment ? What side effects were…
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Chemo-resistant cancer mutation
Hi folks, thanks for all the helpful info and support on this forum. I've been browsing occasionally since diagnosed with Stage IV endometrial cancer last year but this is my first time posting. I've been fortunate to have nothing observable since surgery, although it makes it weird fighting this invisible disease. Anyhow,…
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Icing hands and feet to prevent peripheral neuropathy from carboplatinum, taxol, other meds
Just a reminder to newcomers here that this works. I was in for a completely unrelated treatment last week, and saw a woman beginning chemo who had been offered the scalp icing to save her hair, but had not been offered hand/foot icing, which I think is a terrible shame, since hair grows back quickly, but the pain of…
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Highlights from SGO Meeting for Endometrial Cancer
Hello everyone! If you are interested, I am so hoping you can click on the link below and watch the eight, short videos from recent Society of Gynecologic Oncology meeting that just took place. They touch on the RUBY and GY018 studies that show some interesting promise on treating our cancer.…