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Lesions after radiation
I’m almost 2 years out from radiation. However I’m now getting open lesions. It started as just small red spots which was treated with Augmented Ointment. it took care of the red spots but now I’ve developed open lesions which are ext painful with the pain running down my leg. Has anyone else experienced this? Any…
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Kanjinti (biosimilar Herceptin drug)
Hi All, My mother has just been informed that all patients currently on Herceptin will be switched to this new biosimilar drug, Kanjinti. It was recently FDA approved for HER2 positive patients on Herecptin. Kaiser has adopted it and will switch all patients (including breast cancer) to this new drug. I'm unfamiliar with…
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Papillary Serous Endometrial Cancer
My mother who is 74 was diagnosed with stage 3B papillary Serous Endometrial Cancer. She has completed the 6 cycles of chemotherapy and is now on Maintenance every 3 weeks. Her tumor was sent in to a Genome Fundation to see if she qualifies for other cutting edge treatments. Doctor told us that as of about a month ago, the…
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Pathology report not so good from Look See
My onc doc just called with the path report. There was UPSC tissue within the clotted blood mass. She cleaned the vagina out so all growth is removed for now. She suggested we wait and see what the next visit shows as it took almost a year to show up again. If there is regrowth, she said we would talk treatment but for…
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NCCN Guidelines
Link again for new members. https://www.nccn.org/patients/guidelines/uterine/50/index.html Guidelines for treatment.
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5 years, still NED from metastatic EC
It has now been five years since my D&C and official diagnosis of Stage 3b, Grade 3, endometrioid adenocarcinoma in Oct 2015. Grade 3 endometrioid is put in the same category as serous carcinoma, the most aggressive type of endometrial cancer. Two months after my hysterectomy my cancer metastasized to my liver, spleen,…
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Vaginal Surgery? And Radiation question related
I am 63 now. In 2017 I was diagnosed with Endometrial Adenocarcinoma. I had been spotting and bleeding for quite a while prior to discovering this news, and appeared, even at sixty, to have period aches and symptoms. My life marched on, as I was overseas caring for my Mum, so my health, while in need of attention, as a…
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immunotherapy complications
For the past two months I've been sick on and off as a result of side effects from the clinical trial of a new immunotherapy drug. I was removed from the trial in August after the cancer continued to progress. Then I spent some time in the hospital with what was hypothyroidism. Went on levothyroxine. I went on a dream trip…
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In hospital for Look See
Surprise for me at my 3 mo. exam. CT showed no cancer anywhere but alas it did show a golf ball size sac of fluid at the vaginal cuff. In order to have a pelvic w/o excessive bleeding due to blood thinners, had to go off the Eliqus and then 48 hrs. later, have pelvic. Due to bleeding when the sac was punctured, gyn/onc…
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Ibrance and Aromitase Inhibitor
Hi there, After two recurrences, I was put on Ibrance and an aromatase inhibitor. I am in remission for now. I've been on this regimen since December, 2017. Is anyone else on this combo? If so, for how long? Thanks.
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Bleeding years after cancer and chemo
Hi girls, I am back with more worries. Several months ago I posted about my CA125 going up for the first time in 8 yrs post chemo, and it turned out to be from pelvic inflamation due to periformis injection with steroids, 2 days prior to getting my blood analysis. Got that scare out of the way, and now I have another one.…
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evolo58, how are you?
She hasn't been on the board since July. Is anyone in touch? Veronica
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clear vaginal discharge after external pelvic radiation - normal?
I finished external beam pelvic radiation which included the vagina (no brachy) about 5 months ago. I'm feeling MUCH better. Bowel function is greatly improved. My Gyn-Onc did a careful look-see internal exam about 3 weeks ago, said everything is fine. My Ca-125 is finally under ten (barely) for the first time since I was…
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Brachy Therapy Experiences?
Hi all, my gynecological oncologist originally said I didnt need brachytherapy . However the radiologist at the center I'm treated at says that I do and that he consulted with another hospital and they agree however that radiologist does not do brachytherapy so I have to go for a consultation at another hospital tomorrow…
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Interesting study about checkpoint inhibitors
This is just a preliminary study, but interesting. Checkpoint inhibitors include Keytruda (pembrolizumab). https://jamanetwork.com/journals/jamaoncology/article-abstract/2749683 September 12, 2019 Association of Prior Antibiotic Treatment With Survival and Response to Immune Checkpoint Inhibitor Therapy in Patients With…